June 2008 Blog Posts (77)

Dancing in the rain

The steam rose from my second cup of coffee as I sat at the table composing the day’s “to do” list. The day was far too new for the sun to have risen. Nevertheless, the skies were bright with the anger of the approaching storm and the house echoed with the resounding claps of thunder. The door from my youngest daughter’s room swung open and out strode my sleepy eyed princess into the kitchen. Fourteen going on 30, still a child but not. The thunder, her nemesis from childhood, had rocked her… Continue

Added by Tony on June 30, 2008 at 11:55am — 2 Comments

Sunday morning inspiration -- Please pass it on!!!

The older I get, the more like my father I become -- and that's not a bad thing at all!! One thing in common that I notice that I have with Daddy is that Disney movies make me cry -- they're guaranteed tear-jerkers, no matter what movie it is (yes, even Fantasia!!)

At the end of Meet the Robinsons, there is a quote from Walt Disney that I found to be very inspiring, and SO appropriate for the members of this community. I'm going to share it with you, and feel free to… Continue

Added by kastababy on June 29, 2008 at 10:38am — 3 Comments

Is it just me?

It seems like I'm so comfortable being the bald girl... my self image completely identifies with that, but it's every other tiny little thing that is driving me nuts. That little mole, the width of my fingers, my second toe is longer than my first, HEY is one breast smaller than the other? If there is anything wrong I can find it ... "drop ten pounds CAR - no better make it 20, LOVE - CAR". I think I'm starting to lose it.
Hope you're all far less crazy than I am

Added by Carmella on June 28, 2008 at 8:30pm — 1 Comment

The White Hairs Are Coming In with bumps...

Ok, now that I have owned the clean dome look I have a situation that just deiced to start happening on my head. Well it's really on the sides of my head, I am starting to grow a lot of the white wirers gray hairs that are becoming very curly the longer I let them grow, but are also causing bumps to appear with them as they grow. This is making it harder for me to shave with my bic, afraid of cutting the bumps and having something else other than smooth skin. Oh and I have black hairs growing… Continue

Added by Yvonne~Yhoney on June 28, 2008 at 4:00pm — 4 Comments

NAAF and Alopecia World-class members

This year, I was honored to attend my first NAAF annual conference. Of course, I owe the privilege to the phenomenal woman of my dreams, my lovely fiancée Cheryl Carvery. She has attended and participated in the conference for 17 years, and this was the first time she asked her mate to accompany her. I'm delighted that I did because, not only was the conference itself great, but it simply made each of my days there to meet and…


Added by Alopecia World on June 28, 2008 at 11:00am — 4 Comments

I'm going away for 4 weeks.


Im going to india for 3 weeks then Queenstown for 1 week to ski. So if I don't reply to messages etc I am sorry. I will do so when i get back around the 28th of july.


Anna. x

Added by Fitzy on June 27, 2008 at 8:15pm — 3 Comments

Second Opinion.

Ok I know that a second opinion is not going to come out as the doc saying it’s all just a bad dream that is not such thing as Alopecia. But I have decided to get a second opinion because of the first derm we went to. The nerve of some people, this derm as so SO rude you wouldn’t believe it. Our first visit was no help at all, the doc walked in and said "yep its alopecia. looked at me and said I just wanted you to know that because she is under the age of 18 and she has alopecia there is a 100%… Continue

Added by Jennifer and Alieena on June 26, 2008 at 2:57pm — 8 Comments

It happened again.

I went to the store to return a movie to one of those movie vending machines and I saw her again. She was coming out with her kids and S.O. and I was getting out of the car (that my S.O. was driving with the kids in the back). I wanted to say something or wave, but I just smiled. Time seemed to move too slow and both families appeared to be staring into the bizaro world of each other.


Added by Carmella on June 26, 2008 at 12:28am — 2 Comments

Check out my hats!!!!


I have had these bald patches made to sell in my ebay store, "Alopecia Accessories and Things." There are six sayings and 12 different hats to choose from. They will be custom made to order. I hope they are a good seller. I just love them. I have been wearing a different one each day and I have gotten lots of… Continue

Added by Dotty on June 25, 2008 at 10:20pm — 4 Comments


It's only been 3 days of wearing a wig to work and I'm already sick of it! LOL. I mean...I like it and it makes me feel pretty...but geesh! It's one thing to wear it for a couple hours out to the bar or out with friends...it's quite another to wear it around allllll day at work! 11 hours is a long time! For a wig, mine is VERY comfortable. Fits perfect without slippage and it's pretty light. But after wearing it for 11 hours...man...that's a long time! It gets pretty toasty in here and my head… Continue

Added by Mandy on June 25, 2008 at 3:59pm — 5 Comments

Back in track

After 20hrs of flying here and there im finally home. Louisville-Philly-London-Stockholm....what a trip...but all I can say...it was worth it.

The conference and the people was amazing.


Added by Roger on June 25, 2008 at 1:12pm — 1 Comment


omg you guys! i just loved kentucky! i am completly bald, but i wear a locks of love hair piece so i "fit in" but now i might not wear it as much, u guys really opend up my heart, and anybody who has myspace add me! my name is kellsie, my URL is www.myspace.com/purple_and_gold_girl add me with a message of i have alopecia, or i am a friend/ family member of someone who has alopecia

this is me and cody at the confeance in minnianpoils, i don't have any… Continue

Added by Kellsie Anne on June 24, 2008 at 5:37pm — 1 Comment

Louisville 2008

Thanks everyone I met at the NAAF conference in Louisville.

Take care everyone.


Added by Roger on June 24, 2008 at 3:32pm — 2 Comments

Louisville, Kentucky

Dear all, since this site is about diversity, below, you'll find my impressions about the NAAF conference, first in French, which is my first language and after in English.


Louisville, Kentucky. Pour la majorité des gens, cette ville, ce n'est qu' une ville quelconque aux États-Unis. Pour moi, cette ville est l'endroit où, pour la première fois, j'ai eu le sentiment de faire partie de la majorité. Pour la toute première fois, ma pelade ne… Continue

Added by Diane on June 24, 2008 at 2:25pm — 12 Comments


My oldest daughter graduated from high school this weekend. I’m so very proud of her. My Mom sat next to me during the ceremony. At one point, Mom reminded me that she and my Dad were married a little more than 6 months after their high school graduation. I swallowed hard, realizing my first born, the little girl who snuggled in my arms as I read her fairy tails before bed, was now all grown up.

The ceremony was filled with pomp and circumstance. Most of the speeches were no more to… Continue

Added by Tony on June 24, 2008 at 7:09am — 3 Comments

More wigs, please

I'm getting so much into wigs and I look online for the craziest things. I wish I could afford at least one more wig. Yesterday I got one wig from Ebay with really long hair. That might be the new style for my wedding in august.

When I go to the wigs store I'm in the best mood and I want to try on all different kinds and styles. Short hair, long hair, curly hair etc. The sad thing about it is that all other people who come into a wig store are not in a good mood. They all have… Continue

Added by Zoe on June 24, 2008 at 3:30am — 2 Comments

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Added by Alopecia World on June 23, 2008 at 12:30pm — 2 Comments

ATTN Louisville and sothern IN alopicians

I have updated our website and am currently working on bringing it up to date, anyone has any suggestions that want to see on it let me know. Julia could you send me some of your pictures so I can put on the site.



Added by Kelly Fineman on June 23, 2008 at 9:29am — 2 Comments

most thoughts

for most of you, you kn0w what i mean by giving up love. i mean all the time i was growing up i always felt that in the back of my mind that no guy could ever love me because i was bald, there was just something about people with no hair. and im sure some of you feel that way. by the time i turned 20 years old, i was giving up even though i was still so young, it seemed relentless. thats when i got with jerry, the love of my life. me and jerry had already known each other for a couple of years,… Continue

Added by jen on June 23, 2008 at 3:43am — 1 Comment

I did it! I shaved my head!!

Well it's done! And I'm 100% confident that I made the right choice. I feel like 20 lbs lighter!!! LOL. It's just so hard to describe but I feel soooo good! I've left the fringe in front like I said I would. Not gonna lie...I'll probably end up shaving that too real soon cuz I just feel so comfortable shaved. A night like this really lets you know who your true friends are. I love you all so much.

Shave… Continue

Added by Mandy on June 22, 2008 at 3:30am — 8 Comments

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