May 2016 Blog Posts (8)

On the radio sharing my alopecia story

Hi all,

I was on the radio this morning sharing my alopecia journey.  If interested click on the link, scroll to the 1pm showtime and move the audio cursor to 1:30pm.  I am on the show from 1:30 - 2pm.

Added by Jennifer Krahn on May 24, 2016 at 4:00pm — No Comments

Makeup - contouring and baldness

I am living with my alopecia areata, without wearing wigs since 2011. I have no issue being bald in the world. I am glad living free of the "when-will-I-lose-my-hair" nightmare. I am a musician and am photographed often. I see in my photos that I am washed out; one big beige ghost-like blob.

Does anyone out there have any tutorials or info on learning contouring with make up for those of us who don't wear wigs and live bald in the world? I am certain that the correct makeup will help…


Added by Lili Añel (aka Eulalia) on May 23, 2016 at 9:30pm — 3 Comments

Advil liquigels for spots?

Okay, so I was thinking about something... Researchers have developed topical Ruxolitinib, right? So I have a question - Has anyone tried poking holes in Advil Liquigels to apply to the scalp to see if that might have any effect? I mean, Ruxolitinib was developed for arthritis to tamp down inflammation, Advil is an OTC anti inflammatory. Id love any feedback about this.

Added by Kat on May 17, 2016 at 10:57am — 1 Comment

GoFundMe for Freedom Wig

Added by autumn on May 16, 2016 at 2:30pm — No Comments

My Reaction To Humira + Seeing Some Growth

I'm still taking Humira on my journey toward getting Xeljanz. I was liking that the Humira was making my arthritis feel better, but I've noticed lately that I am having a worse reaction to it each new time I inject myself with it. There is redness and swelling that is extending 8 to 10 inches beyond the injection site and it is becoming quite swollen--worse every time. I don't know how much longer I can take it. But I did think it worth mentioning that there are pubic hairs growing, and I'm…


Added by Susan on May 8, 2016 at 6:27pm — 1 Comment

Why the peach fuzz?

Hi all. My son was diagnosed with alopecia Totalis in the beginning of April 2016 he's 2 1/2 years old. I'm noticing some regrowth without any meds but it's almost like peach fuzz texture and white in color. Does anyone no why it's looking like this??

Added by Brask on May 5, 2016 at 8:00pm — 1 Comment


Hi, I am based in London and am now looking to wear a wig.  I cannot stand to see my sorry face in the mirror anymore without hair.  Have looked at wigs before in various shops, but have left in tears.  Anyone who knows of a good wig shop or supplier, I would love to hear from you.  

Added by Vicki on May 1, 2016 at 1:39pm — 11 Comments

My testimony with alopecia

Hi there beautiful people!

My testimony with alopecia and maybe how this going to help you. First of all I’ve been suffering from alopecia, one third of my life. I know how hard it is to deal with it, and I want this to stop just like you. They say it’s is incurable but sending people into space. We cannot wait for them to come up with a cure. If  they does it’s okay, but ‘m not going to wait for that.

I feel a great responsibility helping those who are also suffering from this…


Added by David on May 1, 2016 at 6:30am — 4 Comments

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