May 2011 Blog Posts (96)

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Four Graces

A homage to Grace Jones, whose birthday was on 19 May.



https://www.youtube.com/watch?v=uVAHYeVPuBY

https://www.youtube.com/watch?v=PfVewf36ugs

https://www.youtube.com/watch?v=2Qn5osgYmPY…

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Added by David B327 on May 21, 2011 at 7:02am — 4 Comments

BALD AND FABULOUS

Hi everyone
this is just a quick note, as some of you might have read already, Im trying to bring together an awareness event in my city. And hopefully make it an annual thing. Today I added a new group to my facebook page and Im now presenting it to you, my alopecia family.

i tried linking it but it didnt go .....you can look for it maybe on facebook "BALD AND FABULOUS"

I hope everyone has a FABULOUS day XO

Added by Bald and Fabulous AKA Terri on May 20, 2011 at 11:00pm — 1 Comment

Bald for the day

I decided to get up this morning, showered didn't even smear my mirror as it was fogged, walked out, got my cleaning clothes on,blared some music cleaned all 3 floors of my house, then showered again, smeared my mirror and put my make-up on, with some lipstick, creamed my head and sat outside waiting for my husband to come home and start the bbq, and when he came in he kissed my head and rubbed his hand on it and said, that's a sexy feeling,,that totally got me by surprise and he said I'm in no… Continue

Added by Lisa-Lynn Marini on May 20, 2011 at 7:00pm — 17 Comments

The TRUE test!

So, I've been out of work going on 3 years. August 20th will be 3 years since my layoff to be exact. I have had a time of it trying to find a day-job. While I am a musician, a performing singer/songwriter, music right now does not pay the bills, is not a true "wage earner". When I was signed to a label in the mid-90s I worked as a full-time musician for about 2 and a half years and made an excellent wage, was able to sustain myself 100%. When the label dropped me it was "start over", worked… Continue

Added by Lili Añel (aka Eulalia) on May 20, 2011 at 4:30pm — 1 Comment

Get over it





I always get these kinds of ads all over the internet.

Stop trying to change me. I'm completely cool with who I am. Get over ittt.



If I had a genie and he could grant me three wishes, not one of those wishes would be for hair.

Actually, if I woke up tomorrow with a full head of hair, I'd be mad! I would probably shave it, or wax it.. do anything… Continue

Added by Erika Vincent on May 19, 2011 at 11:00pm — 13 Comments

My update

Writing has always been the only comfort to me. I turn to it in times of happiness so it only makes since for me to call upon it in times of sadness. It's been awhile since I have been on Alopecia World. Mostly because when I come to this site I am reminded more of how real my condition is (as if looking in the mirror and seeing it every single day isn't enough) But I find that this site, regardless of how hurt it may make me feel at times, also serves as the only place I feel "accepted". I can… Continue

Added by Danielle Pace on May 19, 2011 at 8:00pm — 7 Comments

Today's therapy: "Negativity"

Just keeping everyone updated on my therapy for those that read it.

Today we dealt with negativity and I thought I would be ok but I just couldn't cope with it as that is my worst ever is negativity, as a young child I was used to everyone coming and going out of my life and now I worry that now that I am bald my negativity is this," how long will it take before my husband gets sick of looking at me bald? so naturally I shed some tears today I couldn't hold it back, it was the worst… Continue

Added by Lisa-Lynn Marini on May 19, 2011 at 6:00pm — 4 Comments

My eyebrows & lashes

Hi everyone......

Haven't been on here for a while, but I just had to share with someone my good news. Both my eyebrows and lashes have decided to return to me?!?! I'm so very excited and I really can't share this with anyone else because no one else knows (sshhhhh...) or they just don't understand that such a small thing, can mean so much to someone dealing with AA for over 15 years. So I thank God for my gift, hope they will continue to grow in thick, and dream someday I can throw away… Continue

Added by Hope on May 18, 2011 at 9:30pm — 4 Comments

Check out Shannon!

Olympian winner Shannon Miller was on the TV news this morning in the USA for boldly appearing bald in a national magazine after chemo. She had beautiful bald portrait photos that they showed on-screen, but she wore a nice wig for the interview.

Added by Tallgirl on May 18, 2011 at 1:13pm — 2 Comments

Update on my therapy

I went today and wow they weren't kidding before it all gets better it gets worst, I've never meant so many people with so much pain including myself, but I made it through and I feel good about myself today. The more groups I go to the better I can heal over my alopecia amongst other things. Next week we will talk about NEGATIVITY and I am looking forward to it because that for sure is going to be for me with my alopecia.

Just wanted to keep some of my friends on here… Continue

Added by Lisa-Lynn Marini on May 17, 2011 at 7:30pm — 2 Comments

Update on my progress. Things do get better. Graduation!

I hope everyone is ready for summer fun..lol..I have been concentrating on school and not so much worrying about my hair because truth is I can't change it..It has been seven months from the day I discovered my bald spot and life has changed because of this AA. I have become a better person, more understanding, and compassionate, especially in my nursing practice..So, I graduated and I am just waiting on taking the state boards and am very excited..I remember when this first happen it stole my… Continue

Added by Trish on May 17, 2011 at 4:30am — 13 Comments

Need of help and support

Hello,

And please excuse me for my English

Need of help and support

In France I do not find a doctor or a treatment

I have just read your messages, I can announce you my situation which looks like your problems, > > > in a sense(direction) different, > > > with much more pathology.

I am always in search of a solution,

I ruin myself in doctor, medicine

And most of the answers are " I can nothing for you "

And hooo! I am… Continue

Added by coccinelle on May 16, 2011 at 5:29pm — 4 Comments

Help picking the right wig - Blonde or brunette?

I'm new to wearing wigs. Suffering from hypothyroidism and losing hair by the handfuls :( I had very long, thick hair. I was depressed for a long time, but, am now just trying to move on and deal with the fact that I have to wear a wig.



I've purchased several over the past few months and there always seems to be one thing I don't like about each one. Either this one has the right volume, but, the front looks funny. Or, this one is the perfect color, but, the part is weird. I wish I… Continue

Added by Beverly on May 15, 2011 at 8:30pm — 9 Comments

Cruelty

it's amazing how many people can be so rude, Friday I decided to take out the trash in my turban, we live in a complex so we have to leave our house to get to the garbage house, i thought no one would see me considering it was during the day and it was working hours fo most, As I came back out of the hut my neighbor yells, you looking to be an indian with that turban on? I was not only in tears but furious because i thought it was racist I was so tempted to go up to him and knock him out. But I… Continue

Added by Lisa-Lynn Marini on May 15, 2011 at 10:00am — 9 Comments

Hair...It CAN come back

Hey everyone - it's been AGES since I've been back on. I feel bad and guilty...as a fair-weather friend. I've stopped in from time to time just to see if my friend are online for a chat, but alas, haven't been able to connect (you know who you are!) :-)



This is a quick note, but wanted to assure those new to the group that your hair CAN indeed come back with full regrowth. I remember when I used to spend COUNTLESS hours on this site and was amazed at how many new members were here… Continue

Added by John M. on May 15, 2011 at 12:00am — 15 Comments

Appalled

Absolutely unbelievable that someone would try and take over a website such as this and am glad things worked out legally on behalf of Alopecia World!

So far, since I signed up two years ago (approx.) I have been fortunate enough to have that one and only spot on the top back part of m scalp. Now I wonder does my Dermatologist know what he was talking about when he diagnosed me?

If could be from my Lupus as well. Has anyone else experienced this situation?

Added by Pamela Garrahan on May 14, 2011 at 10:30pm — No Comments

Old memories resurfacing

I found out today that my brother is moving from Ontario to here in Alberta. My mom has been discussing with him for a while now about making the move. I'm truly happy about having him closer as its been many years since I have seen him. But with this move comes old memories and securities. You see he was the kindest when I was first diagnosed with alopecia and in fact he was the one that told all the kids at school that I was Bald and wore a wig. I know we are now adults and have fought our… Continue

Added by Bald and Fabulous AKA Terri on May 14, 2011 at 9:00pm — 13 Comments

AlopeciaWorld.COM is back! :-)

We are immensely pleased to announce that the domain name ALOPECIAWORLD.COM is back with Alopecia World!

Just to remind you, it was recently seized by a cyber-squatter who attempted to sell it for $18,000.00 or the highest bidder.

Thanks to the intervention of Alopecia World’s very able legal team, the cyber-squatter's efforts were thwarted and the domain name was transferred back to Alopecia World…

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Added by Alopecia World on May 14, 2011 at 5:00pm — 13 Comments

Dr's apt.

I went to the dr's apt. this evening to take a look at my head as for some reason I has these very soft tiny stubs onver my head , I asked him if there was a chance it would grow and that it has been like this for a vey long time. He told me ufortunatly it will stay that way, it is your white cells overly acting. I came out crying in hopes I'd gt at least little good news but I got bad news instead. So basically i've got the lining for hair but it just won't grow:(

Has anyone or does… Continue

Added by Lisa-Lynn Marini on May 13, 2011 at 7:56pm — 2 Comments

Sauna and wigs

Hello all, I was hoping someone could help me with my dilemma. I am a newbie to wearing hair and I bond with supertape all the way around the perimeter. I am going on my hols to Turkey early June, where I know the temperature will be hot hot hot! (yes)!



One of the nice things about Turkey is the Turkish baths, but as it is a steam room/sauna can I still go in with my wig on, or will it loosen up? I am going to 10 days so was hoping not to have to re bound while I was out… Continue

Added by dannii on May 13, 2011 at 5:00pm — 4 Comments

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