May 2008 Blog Posts (56)

Cats, hair balls, et al

I’m feeling sorry for the cat. She’s shedding something terrible. Aside from the hair balls, there’s hair everywhere…in the shower clogging the drains, on the floor sticking to my feet, on the counters and in my food. Oh wait, that’s my hair.



Made a trip to the docs yesterday just to make sure something insidious isn’t lurking below the surface. Knowing that I’m 40 something, he began with a well rehearsed ‘it’s natural at your age to start losing your hair” speech. I’m pretty sure… Continue

Added by Tony on May 21, 2008 at 6:30am — 2 Comments

Please give me some advice :(

Sorry, I'm a compulsive blogger! But I really really would appreciate some advice now more than ever. I'm starting to get this sinking, scared feeling in my gut as my 2nd derm appointment this Friday is fast approaching. When I went the 1st time 3 weeks ago, I had 4 spots, which wasn't bad. But now I have 14! Should I let the doctor inject all 14 spots? I hate hate hate the dents/divots that formed in my scalp from the 1st set of injections. They're still there and I hate how it feels! I can't… Continue

Added by Mandy on May 20, 2008 at 8:18pm — 15 Comments

AA Update 5/20/08

Since my diagnosis on 5/2/08 when I had 4 bald spots, I now have 14.



Since my last blog with pics, here are the new ones...



Number 11 is new...small for now



Numbers 12 and 13 are new



Number 14 is on the left side...I didn't photograph it because I have a dorky little mole there...funny how I'm more embarrassed of that then of showing the bald spots.… Continue

Added by Mandy on May 20, 2008 at 11:38am — 2 Comments

It's been a while

I haven't been on in a while. I'm so busy with school, its the only thing that I can manage right now - and I can't only get through that by chanting "Less than thirty days" over and over and over. I'm so tired and ready for summer. It doesn't help that it's been 90 degrees for three days!!!
So I was just popping in to say hello and I hope that everyone is doing GREAT!
XOXO
CAR

Added by Carmella on May 19, 2008 at 9:08pm — 1 Comment

Hello

Hello, I am a breast cancer survivor and have started a new company for female hair loss patients. I just wanted to share our website with all of you who are affected by alopecia. It is www.iwearitwell.com. As you all know it is a mental struggle to try to obtain some harmony in your life when you are faced with hair loss. We have put together some fun, bright and cheerful options to ease your days ahead while eliminating the daily concern of what to wear. I wish all of you many healthy and… Continue

Added by Kelly on May 19, 2008 at 1:09pm — No Comments

Talking to my daughter

Kids. They know more than we realize yet less than they might think. Disinformation is often more troublesome than no information at all. Imaginations run wild, thinking the worst…afraid of the perceived truth.



Such was the weekend. I was worse for wear but managed to smile despite the trials and tribulations of the week. Apparently my best attempt at a happy face was less than convincing as my youngest daughter sensed something was amiss. Her nervous demeanor was obvious as she flit… Continue

Added by Tony on May 19, 2008 at 11:58am — 2 Comments

Ode to Little White Fuzz

Oh, little white fuzz

on top of my head

You are so short and white



Oh, little white fuzz

so soft and cute

Inspire the other patches...you might!





LOL. Dunno...just feeling silly today. But seriously...so when I got the first steroid injections on May 2nd, I had 4 spots at the time. Now 3 weeks later, I can see a small patch of white hair coming in in one of the spots...but just one. I'm trying to think about this logically...and if it was the… Continue

Added by Mandy on May 19, 2008 at 11:57am — 3 Comments

Relationships...

So.... I haven't really written any 'blogs' before... (weird word)... Anyways, so I'm just basically gunna vent. I'm sure some of you know exactly what I'm talking about.



You know what I'm pretty sick of? Meeting a guy while I'm wearing a wig, then adding them on facebook or msn and they see a picture of me bald and they just stop talking to me or avoid hanging out and whatnot. I'M SORRY, because we all asked to have this, right? I'm not complaining about it but it would be nice to… Continue

Added by Courtney on May 19, 2008 at 12:30am — 9 Comments

Peace

Just had to write and say how at peace I finally am with this whole thing. Having aa was so damn hard on me, but now that I have au (which you would think would be worse) I just don't seem to care. Everyone has been so awesome -- even jealous -- that I no longer have to shave my legs that it's almost funny! I am lucky to have a husband and kids who honestly don't care what I look like. I'm beautiful in their eyes and that's what's important.



It's strange.....I really don't know what… Continue

Added by Daria on May 18, 2008 at 7:11pm — 2 Comments

My pictures...

I delayed putting my pictures of my AA up here because I didn't want people to just feel sorry for me. I have learned to (for the most part) accept this disease as part of my life and to keep living. I won't lie, I still have up and down days, but I am no longer ashamed to tell people what I have and talk about it in public. Gone are the days of "I don't know why I have a bald spot" or my all time favorite: "I hit my head as a child," an excuse for both my bald spot and my personality. But I… Continue

Added by Drew on May 18, 2008 at 1:41pm — 1 Comment

Mother’s Day Massacre

I figured that sounded like a good term for this story. So mother’s day became a double holiday for my mother as it was also her birthday this year. So when Sunday came we went out to a very nice restaurant which is very popular especially on holidays.



From the start my mother could tell I was uncomfortable. For the last couple weeks I have worn my Atlanta Braves hat backwards pretty much everywhere. Since this was a nice restaurant I wasn’t going to try to wear my hat however. I… Continue

Added by Drew on May 16, 2008 at 8:39pm — 5 Comments

Hope and optimism are powerful teammates

Hi everyone, I should clarify what I wrote in my previous blog. I got way ahead of myself and skipped over details that I feel it is only right to share with you. The Alopecia Registry is not directly researching for a cure. They are only data collecting at this point. I feel, however, that without participation, no progress can be made in our cause. And that progress can possibly lead to a cure.



I spoke with my rep at MD Anderson today. She stated that answers I provide on their… Continue

Added by Kelly on May 16, 2008 at 3:23pm — No Comments

An epiphany

Epiphany - the sudden realization or comprehension of the essence or meaning of something.



I did some web surfing last night, trying to get a handle on both my emotions and the reality of alopecia. Somewhere between the dark and the light I had an epiphany. I can choose to wallow in self pity, wasting hours, days, even years which are then gone forever. Or, I can take the bull by the horns and live with passion, regardless of the opportunities, even those disguised as obstacles,… Continue

Added by Tony on May 16, 2008 at 12:02pm — 3 Comments

Growing up with AA!

I was diagnosed with AA when I was 5. I grew up in a private school from kindergarten to 8th grade, It was a small school, my 8th grade graduating class was 6 people! lol We'll when I was in kindergarten, my mom was blow drying my hair and saw a spot on the back of my head. After that I think I lost probablly 40-50% of my hair. My Aunt took me to the doctor, my mom was always working. I love my Aunt by the way! The doctor said I was going to loose all of it. My teacher stood me in front of the… Continue

Added by Jennifer on May 16, 2008 at 11:25am — 6 Comments

The past 8 months...My story so far

So much of my life has changed within the last 8 months I don't even know where to begin. This may just be a way for me to vent but if anyone takes the time to read this kudos to you, and if you leave me some tips of feedback, it is greatly appreciated. I don't even know if anyone will read this.



I guess it all started at the end of last summer. I had just been hired to coach soccer at my old high school/middle school and was really excited. I have played soccer since I was 5 and… Continue

Added by Drew on May 16, 2008 at 2:41am — 4 Comments

You are what you think!

Click here to watch Jack Canfield, creator of “Chicken Soup for the Soul,” discuss the power of thoughts and how you can get what you want in life just by thinking a certain way -- i.e., the law of attraction. And then please let me know what you think! ;-)

Added by rj, Co-founder on May 15, 2008 at 3:30pm — No Comments

My experience with AA thusfar...

My hair first started falling out the week of April 28th, 2008. I had my first doctor visit on May 2nd and received my first round of steroid injections. It is now May 15th and my hair just keeps falling out. I've got 10 bald spots now. At this point I really just wish it would all fall out so that I don't have to deal with these patches and wondering every day what's going to happen.



Numbers 3 & 6 were the first ones and have definitely grown. 5 is a tiny newbie.…

Continue

Added by Mandy on May 15, 2008 at 10:57am — No Comments

Help find the cure

Have you registered on the Alopecia Registry? http://www.mdanderson.org/departments/alopecia/

It will help MD Anderson with research on the exact causes for Alopecia. It is also possible that you will be asked to go to level 2 and actually partcipate in a research study. I was surprised when I was asked to participate in the research. I am now in that process and would appreciate your good thoughts and prayers for it to go smoothly. I must fill out paperwork, visit a dermatologist and get… Continue

Added by Kelly on May 14, 2008 at 8:00pm — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on May 14, 2008 at 6:30pm — No Comments

Things Alopecians Like #4

Compliments on your beautiful hair hi-lights when you're wearing a low maintenance wig. More posts

Added by Jill on May 13, 2008 at 11:00am — No Comments

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