It's incredible how many beautiful women just like me are on here! I'm always resisting participating in Alopecia themed things but this is really helping me. You don't realize how isolating this condition can be. Everyone struggles with confidence and self-esteem but with a visible condition like Alopecia it can be amplified and cause a big time distorted self image. In short I like understanding that I'm not the only "freak" and I mean that in the kindest way possible and am only speaking for… Continue
Added by RealCleopatra'sLegacy on April 30, 2011 at 11:30pm —
I am 15 and a sophomore in high school. I have alopecia areata and the past couple of months more and more of my hair has been coming out. Only my closest friends know about my hair, and i am very scared that in the coming months all of my hair may come out. What will people say? What will they think? Will my friends stay by my side? Will people talk bad about me? All of these things and more are passing through my head and it scared me to death. I used to have such thick and beautiful hair,… Continue
Added by Madison on April 29, 2011 at 11:00pm —
Why is it when others give advice about so-called treatments ie special diet/acupuncture/holistic/chinese herbs etc and I don't immediately say hey that's a great idea I'll try that today, they get that look or tone that says you poor closed minded woman you aren't open to any help so it's your own fault if your hair doesn't grow back! I've had this conversation so many times it's getting old. These days I just nod politely and move on. However, some people don't know when to back off. Even… Continue
Added by Pat on April 29, 2011 at 9:30pm —
So over the past year I've had a lot and ups and downs with my AA. To start I guess I should tell you I've had AA since i was 10, and 15 years later here I am! All through out middle school and high school I just had a really weird hairline in the front while the rest of my head was covered in thick brown hair. Towards the end of high school my eyebrows fell out and my hairline had receded 2+ inches from where is normally is. Over the past 9 yrs I have done topical injections, systemic… Continue
Added by Rachel on April 29, 2011 at 9:00pm —
from the last post about shaving my head I decided to try something out, I took shampoo and rubbed it directly on the head where I needed it to be shaved and it worked wonders!! why din't i think of this before? lol
However thank-you to all your replies and suggestions I apreciated them
Added by Lisa-Lynn Marini on April 29, 2011 at 6:00pm —
Well I went and picked up my new wigs a week ago and I love my longer one!! I have attached a picture of me in my new look holding my new nephew Zachary(he was born on 4/20) and my niece with us. She is 3 years old.
I love my new wig, I love how it fits my head so much better… Continue
Added by Julie G on April 29, 2011 at 11:51am —
I of course am completely bald on the back of my head and all though the sides so I find I i have to shave the top of my head, I hate using a razor with soap or shaing cream it burns,, so i even try using my hubby;s shaver, but find after that my head feels like its on fire. Does anyone have any better ideas on this matter?
Added by Lisa-Lynn Marini on April 29, 2011 at 10:11am —
Now that I know I will never get my hair back, I constantly finding myself obsessing with my skin, always adding lotion around the eyes so i dont get crow's feet, never used to wear much make-up before, now I find that I need the make-up EVERY DAY!!! so tis way I dont fel as ugly when i'm in my little facy turbans. beleve it or not it makes me feel pretty again, am I the only one woried about all that stuff, especially when i put lotion aound my eyes at least 3 times daily?
amd I going… Continue
Added by Lisa-Lynn Marini on April 28, 2011 at 9:00am —
So most of you know I went to get my thyroid tested (came back negative) but on March 31st while at work I spun in my chair to get up and ended up spinning, standing up, and going down to the floor. In the ER that night I was diagnosed with a lovely case of Vertigo. For those of you that don't know what it is, it is explains by wiki:
"is a type of dizziness, where there is a feeling of motion when one is stationary. The symptoms are due to a dysfunction of the vestibular system in… Continue
Added by Tamara on April 27, 2011 at 5:40pm —
I wanted put up a quick post to let you know I am finally able to get back on the website!! For some reason over a year ago I tried to login using the email I had always used and the website told me that email address did not exist. I figured it was something I did but then just didn't have the time and energy to invest in trying to figure it out (I have a 8 month old at home) But I was really bummed because I missed coming on here and talking with you all...now that my… Continue
Added by Nicole on April 27, 2011 at 5:00pm —
I have had alopecia for a while as many of you know lol, but I still cant bring myself to say ' this is how i am now' I mean i see a lot of ppl fulling embracing their baldness, and loving it and all that sort of thing , but I cant help but feel like I'm missing something, and to be honest its quite annoying when ppl are all like ' this is me, now i love being bald because i can switch up my hair
wig( but i do acknowledge that everyone is free… Continue
Added by Alexis on April 27, 2011 at 3:30pm —
Watching tonight the new singing show The Voice. A beautiful bald woman walks out on to the stage and rocks a song. The woman Frenchie Davis. Dont know if she has alopecia or just loves the look, but does it really matter???? Hell NO!! Bald and Fabulous rocking it out on tv !!!!!
Oh and the basis of this show as oppose to American Idol, they do blind auditions. Meaning the judges are not allowed to see the contestants until they decide they love their voices.
Added by Bald and Fabulous AKA Terri on April 26, 2011 at 10:02pm —
I was wondering if anyone has found an extremely realistic wig. I would really like to be able to pull my (wig) hair behind my ears and not have to worry about it looking unnatural. I play a lot of sports and need to be able to pull my hair back. Cost isn't an issue. I currently have a locks of love piece, but i have had it for a few years now and it is starting to fall apart. The only problem with the locks of love wig is that the hairline didn't look very convincing, and i always… Continue
Added by SutraHuh on April 26, 2011 at 10:00pm —
When I lost most of my hair it was March 2011 and I took the necessary precautions wearing scarves, hats, buffs, etc. I noticed I felt the cold a lot faster than when I had some hair on my head.
I'm finding that now that it is getting hotter outside, my head sweats! Man! And the sweat goes right to my ears. never realized hair kept that from happening.
On another note, I'm losing my eyebrows. I have pretty much very thick Groucho-Marx-like eyebrows. I notice that I don't… Continue
Added by Lili Añel (aka Eulalia) on April 26, 2011 at 10:00pm —
Hi...i've had AA, AT and AU for most of my life and have also always had many allergies, mainly to perfumes or fragrances in products. I've never really put the two together but as I got older and my Alopecia changed from stage to stage, my perfume sensitiviy also got stronger. I was just wondering if anyone else had experienced the same thing or if its just simply that I have an allergy to perfume.
Added by Trish on April 25, 2011 at 10:20am —
I had a wonderful day out yesterday, my sister finally got me to go for a drive with her and her husband, we drove through the country side, it was beautiful i can't remember the last time I ever let my house like that and it felt really good to get out.
I cane home I made us all dinner and we had a chat, my brother in law said to me, plz Lisa don;t feel you need to cover your head with anything just because I am here and my sister said the same thing, It was as if my heart pounded of joy… Continue
Added by Lisa-Lynn Marini on April 24, 2011 at 3:00pm —
I was reading the Jewish Chronicle the other day and there was an article about a man named: Philip Levine. Since going bald he decided to use his head as a canvas for art. I really like this idea! He has a couple of websites, so check them out:
Added by Vicsta on April 23, 2011 at 7:33am —
Recently, a Redditor wrote Valve Software Company to inquire about the bald guy in the Valve logo pictured here. The Redditor got this really cool response from Ray Ueno:
I worked with Gabe and team to develop the "guy in the logo" back when we first named the company, Valve (circa 1995/6), and… Continue
Added by rj, Co-founder on April 23, 2011 at 3:00am —
So the last time I blogged I was 3 months pregnant and my hair had started to fall out again. Well it decided to do that wonderful thing that alopecia areata does and grow back and give me hope. At one point it actually started to get really full and thick and i had no spots. Then my little pumpkin was born (Hailey Darlene Burley-Heslop Oct 31st, 2010 thats why we call her our pumpkin 8lbs 13oz she was a big pumpkin lol) and then i noticed the back of my hair line started to creep up and up and… Continue
Added by Danielle on April 21, 2011 at 11:00pm —
On my profile I've added some wig photos of myself and could really use some opinions as to which one looks better, I will not take offense to any comment but it does help to know . Thank-you all for taking this time to helo me out
have a great day:)
Added by Lisa-Lynn Marini on April 20, 2011 at 10:00am —