April 2011 Blog Posts (94)

Hi and where I am at

Hi everyone, I am Cynthia or Cindy for short. I love books, so it is no surprise I am a librarian^^;



I probably had Alopecia starting late last December or very early this January. I have had three appointments with the dermatologist so far. We did steroid shots the first two times. Not fun, and they haven't helped. I have probably lost 1/4 to 1/3 of my hair since January. I have recently started wearing scarves, headbands, and hats full time. This could easily change soon since my… Continue

Added by Cynthia Smith on April 5, 2011 at 4:38pm — 3 Comments

No matter what they say!

Don't look at me Every day is so wonderful Then suddenly It's hard to breathe Now and then, I get insecure From all the pain, I'm so ashamed I am beautiful no matter what they say Words can't bring me down I am beautiful in every single way Yes, words can't bring me down So don't you bring me down today!!



I have listend to this a few times now whenevr I felt like I had to cry from just looking at myself in the mirrior seing a bald me feeling vey ugly.

Once I heard this song las… Continue

Added by Lisa-Lynn Marini on April 5, 2011 at 7:59am — 2 Comments

When the hair finally grows back...?

When the hair finally grows back why does it take so long to actually grow in length. Is that part of the alopecia? Does it always grow out like baby hair and thicken and grow slowly. How did your new growth come in?
Thanks.

Added by Supportive Mom on April 4, 2011 at 5:00pm — 3 Comments

Uncomfy!!

I had a wonderful week-end with my neice Saturday and the next day zi hade my younger sister over for dinner which meant ,'wig time again" I noticed towards the ed of the evening I was getting severe headaches, pain from my wig in my forehead and I kept trying to adjust it. When y sister said to me" We are all family here why dont you jst take it off and continue to ave fun,we wo't judge you in anyway, you are who you are and I stil love you.

Those kind words nearly made me cry, however I… Continue

Added by Lisa-Lynn Marini on April 4, 2011 at 8:12am — 3 Comments

Here we go again

A few weeks ago, I commented that my hair was probably thicker than it had been in a year. Well, it's falling out all over the place--again! New spots, more spots. I have a steroid foam I could use on the spots, but I'm not sure if I'll use it. I don't really care...okay that's not entirely true. Not sure if I'm starting to accept it (AA), or if I just have a bit of an attitude today! :)

Added by Michelle on April 3, 2011 at 11:00pm — 2 Comments

Revlon Scorpio wig

I was wondering if anyone has the Revlon Scorpio wig and what are your thoughts. It has been named one of the best wigs of the year and I am considering buying it.

Thanks Wendy



target="_blank">http://www.bestwigoutlet.com/Wigs-Scorpio.html
and what are your thoughts.

Added by Wendy on April 3, 2011 at 10:18pm — 4 Comments

I finally found a miracle eyeliner!

Ever since I started wearing makeup, I've always had difficulties with my eyeliner and it has gotten worse since I was diagnosed with AU 4 years ago. I never realized that eyelashes catch some of your makeup and prevent it from oozing down your face! I've tried all kinds of different eyeliners and have even gotten it tattooed on. The tattoos were great when I first got it done, but they've faded to a dark grey and don't look all that great anymore so I'm back to drawing over them. Just about… Continue

Added by Kendal Rauh on April 3, 2011 at 10:19am — 3 Comments

I wish I had the balls!

I wish I could walking around with my wig off and feel good about myself. I see all these girls on here going out without anything on their head. I wish I had the balls to do that, I would feel like people are talking about me and I can't stand it when people look at me... Guys have it easy, they can pull off not having hair and walking around. Girls, not so much, people see a girl with no hair and they just look at us like we are not human. I really wish it didn't bother me that people look at… Continue

Added by Jessica on April 3, 2011 at 12:00am — 4 Comments

The best thing one could hear

I asked my partner if he loved me even though I was BALD?
The Response was Your are not bald but hair less. You are my hair less German... and I love you...

Added by terry koepsel on April 3, 2011 at 12:00am — 2 Comments

I love you my bald and beautiful sista!

This post is dedicated to my beautiful sister, Brenda.



I lost all of my hair. It took about 3 years, but the end came quickly. I don't know if it's universalis or totalis or whatever, I don't really care. It's all gone. But that's fine now.



It was when my sister started losing her hair that I felt sick inside all over again. My sister had THE hair. Beautiful, naturally curly, she is talented at creating styles and being complimented all the time on how awesome her hair… Continue

Added by Becky on April 2, 2011 at 10:24am — No Comments

Newly diagnosed and looking for experience

I am mom of 14 month old Anthony who, over the last 3 weeks, has lost all of his hair. We confirmed today what we suspected was alopecia areata, in his case totalis, and are doing blood work to confirm there are not any further issues. The doctor wants to treat him with steroids and this was initially alarming to me...giving a baby steroids (not that his petite 20 lb frame couldn't use some bulking). I asked about side effects and they didn't really have an answer, nor have I been able to find… Continue

Added by Heather Ramon on April 1, 2011 at 6:54pm — 15 Comments

Excited - I have to share

my baby sister had a baby 2 months ago and i've haven't spoken to my sister in almost 10 years til she had her baby.

Today i'm so excited I get to pick up my neice and babysitt her,for the evening.At least for a while i'll be able to forget about my baldness and have a great time.

Don't get me wrong here I have 3 children myself but pretty much grown, and i'm happy that I can walk around being bald. my children still show me the respect and it's as if im not going through anything to… Continue

Added by Lisa-Lynn Marini on April 1, 2011 at 2:35pm — 2 Comments

SOOOOOO embarassing

Last night I had a new neighbor over for dinner. We are both single and I thought it would be nice to get together. I have had AU for two years now, but I ALWAYS wear a wig. Dinner went well, and when he left, he gave me a hug and my wig caught on his sleeve and fell off.....I picked it up off the ground and put it back on, and made some joke about how I can go from bald to beautiful in 2 seconds flat...and quickly explained I had no hair due to AU.... I am still so embarassed....(I know it… Continue

Added by Linda on April 1, 2011 at 10:33am — 10 Comments

Eyebrow assist

I've now lost around 80% of my eyebrows. Joy.
I've been augmenting them - because they've been really pale and thin for a while - with a brown eye-liner pencil and it's been working well, but till now i've had enough hair to use as a shape guide for drawing on the brows.
I've heard about stensils and stuff, but I don't really understand how they work or where to get them. Can anyone help?? I know there are a few blogs and discussions up like this but am having trouble finding them :P

Added by Georgia Gardner on April 1, 2011 at 7:48am — 8 Comments

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