Featured Blog Posts – April 2009 Archive (71)

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My son kyler, who just turned 2 in december was diagnose with alopecia about a month and a half ago. I was giving him a haircut and I notice 2 very small spots. My doctor told me what it was and that…

My son kyler, who just turned 2 in december was diagnose with alopecia about a month and a half ago. I was giving him a haircut and I notice 2 very small spots. My doctor told me what it was and that's it! no other info.I felt helpless.Very soon and very fast he got more spots and quite large. Today he is about 1/2 hair missing. I have been looking more into this disease and looking to talk to other parents with small children going through the same as I. So feel free to tell me your… Continue

Added by Christine Messner on April 6, 2009 at 2:25pm — 9 Comments

Please keep me and my family in your prayers UPDATE 4/06/09

I may be offline for a few weeks -- my mother had a stroke yesterday and is critically ill but improving. Because she has to learn how to walk again she will be in the hospital for the next several weeks. Please keep me in mind in your thoughts and prayers during this difficult time.



Nothing like a little reality to shake me out of alopecian self-pity!



3/30/09 -- UPDATE ---- My mother was moved to a private room out of Neuro ICU earlier today, and will be on the neurology… Continue

Added by kastababy on April 6, 2009 at 7:15am — 13 Comments

Thanks for the Big Welcome

Thanks to everyone who has sent me a message of welcome to Alopecia World. I know I'm going to feel 'at home' here.



Now all I have to do is find a way to support my sons who seem to have been affected by my alopecia more than I have! My oldest is worried that I might become ill again as Lupus is ever present. He was quite young when my illness was at its worst and it was a traumatic experience for all of us.



My youngest (who wasn't even a twinkle in my husband's eye during… Continue

Added by Julie on April 5, 2009 at 11:50am — 2 Comments

Got wiggy with it...at least I tried some on.

So I went wig shopping (hear the "psycho movie" song in background). What an odd experience. I dealt with someone who wasn't doing this very long and went to a store that had very little in terms of selection, but it was okay. Here were the overall feelings.



1) I didn't bawl like I thought I was going to...instead, I just opened my mind to the idea and tried on different cuts, colours etc.



2) I laughed (never expected that!!)...the lady put an "old lady" wig on me since it… Continue

Added by Jennifer Krahn on April 5, 2009 at 10:19am — 5 Comments

calm waters

i'm in this spot where i think i'm not worried about alopecia and lupus or even getting pregnant, i have work which is going well, our finances are better, renovating a bit. its all happening.

a few niggling feelings like doctors appointments i have to make and things still to do.



yesterday i looked in the mirror and saw a spot on my face that looks like its lost pigmentation... i wonder if thats because of lupus. and i have to go see a fertility specialist. but the doctor… Continue

Added by Alison on April 5, 2009 at 7:36am — No Comments

My story so far....

I was diagnosed with alopecia when i was 20 years old and it was the worst feeling in the world. I watched my hair fall out in clumps and did not know why. I use to have such long thick beautiful hair that my mom was always jealous of. I was so broken up when my doctor told me it was just going to keep falling out. I tried for a long time to cover up the spots with makeup and everything i could think of. Finally it got to hard to cover it up and i had cut me hair as short as i could. I remeber… Continue

Added by Danielle on April 5, 2009 at 4:32am — 2 Comments

Coming to terms with it...

I've had Lupus (SLE) for about 20 years now and I've had hair loss before. I've never worried about it because I've always thought that my hair would grow back and it did. For my 40th year (8 years ago) I wanted to do something that would mark the beginning of my 40s so I started growing locks. It has been a long journey and just as my hair was starting to look as I would like it, in comes Alopecia Areata!



No problem, I thought. My hair will grow back it always does but this isn't… Continue

Added by Julie on April 4, 2009 at 3:30pm — 1 Comment

Having a bad week.

I just want to say that, out of the millions of pictures on here, you are all absolutely beautiful.



I had an extremely traumatizing experience a few days ago. A very dear friend of mine. A lady who, many years ago, used to babysit me and my sisters became ill. She has been in a care facility for a number of years but this was far worse. She was in pain, losing weight rapidly. She was approximately 5ft 8in and by the end weighed approximately 75 lbs. I had the horrible experience of… Continue

Added by Tenille Gee on April 3, 2009 at 8:54pm — 2 Comments

i'm tired of thinking about my hair (or lack thereof)

when i think about how much energy i have exhausted on this issue, it drives me insane. as much as i try to carry on with my normal life, it's always in the back of my mind. for example, every time i have an occasion to see a friend whom i haven't seen in a while, i can't help but dread having to tell them and going through the whole sordid story (i feel like it's too obvious not to address it.) it's like breaking up, feels cathartic to tell all of the details at first to anyone who will… Continue

Added by Paula on April 2, 2009 at 1:51pm — 5 Comments

A Roller Skating Story

We decided to visit my son and his family in Pennsylvania Lancaster.. There was a

big group of us going down there at least 20 people .. Well we all planed to go roller skating just to have a Lil fun know there is 25 of us going. So we go to the place we pay are way in and skating we went even my husband put skates on LoL.. Any way when l was skating l was having problems with my left skate so l went back to get a second pair at this time l see my husband and my sis talking to one of the… Continue

Added by Nitza on April 2, 2009 at 2:57am — 5 Comments

show and tell....

Well I showed my boyfriend my patches. It was hard. Really really hard. Sure I joked about it, but deep down I was scared.



Now that I've shown him? I am SO relieved!!!! It's like a huge weight has been lifted. :) He said it looked like there was regrowth in the one spot. But he is new to looking at them, so I asked the ex. (Yeah, we still live together, THAT is a cozy arrangement. LOL) He said no, it looks the same, but it hasn't grown any. However, the other has gotten larger since… Continue

Added by Michelle on April 1, 2009 at 1:00pm — 2 Comments

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