January 2013 Blog Posts (51)

Courage to Believe

I wanted to share a piece of my personal journey with Alopecia. When I need to work through things...I write. The process is healing.

Courage to Believe

Standing within a shadow of illusion

Not knowing my desir

A journey lacking fulfillent

A soul without the fire

Suddenly I realize what a waste of time

How miserable my world has been

Searching for reasons to understand

What haunts me deep within

Then I found the person within me…


Added by Emily on January 31, 2013 at 12:30pm — 2 Comments


When people stare I makes me so sad and stressed I learned to ignore it but when your a bald girl with patches all over your head it gets hard. I wish I had the alopecia where your hair doesn't grow.because I get so use to my hair I get happy and excited.not that many people stare.but then it grows then falls out again I always wonder why me?

Added by Mercedes Maria Butler on January 27, 2013 at 3:51pm — 10 Comments

Animals with alopecia

Walk like a man!
Goodness, how anyone can think we aren't like them is beyond me...http://i.imgur.com/fC6lzvx.jpg

Added by Holly on January 27, 2013 at 5:00am — No Comments

Animals with alopecia

Baby penguin!

Added by Holly on January 27, 2013 at 4:30am — No Comments

Animals with alopecia

Ok so this is cute. May be the first of a series.
A hedgehog with alopecia. Look ma, no spines!

Added by Holly on January 27, 2013 at 4:30am — No Comments

Australian fake eyebrows/lashes?

Hey guys just wondering if there is any magical clinic in Australia that can do fake eyebrows and maybe even lashes that look real and last?

Added by Walker on January 26, 2013 at 3:30am — 3 Comments

Is there a comfortable wig?

I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…


Added by april on January 26, 2013 at 12:00am — 7 Comments

Me and AU

I have lived with Alopecia Universalis since I was two years old. Without this disease, I probably would be a completely different person. I consider myself a little stronger, more compassionate, and less judgmental because of AU.

I am scared to show everyone who I really am though. I have hid underneath a wig for almost 13 years now. I'm not afraid to not have my hair on around my close friends and family, but I am very scared to walk out without it. I am trying to build up…


Added by Catherine on January 25, 2013 at 11:35pm — 6 Comments

Australia Day

Hi everyone in Australia it's Aussie Day time to eat and be merry and to celibrate being an Aussie.

Added by Annette on January 25, 2013 at 8:00pm — No Comments

Wheat Belly

So, I was reading the book, "Wheat Belly," and it said that there may be a connection with Alopecia, along with other autoimmune disorders that are connected to eating wheat. I have gone off of wheat, just to see if there is any truth to it. I will keep you posted!

Added by Jean on January 25, 2013 at 6:25pm — 9 Comments

Our version of events please post yours!

This is my wife's version of events

Hi my name is Ann-Marie, I am Katelyn’s Mum, a founder of BeBold in the United Kingdom.

Katelyn was first diagnosed with alopecia when she was only two years of age. At first her hair started to fall out in only small patches, but naturally concerned about her hair loss, we like so many others visited our local GP. We were very lucky to have a very supportive surgery and our Doctor quickly diagnosed Alopecia Areata. When I tried to find…


Added by The Be Bold Team on January 25, 2013 at 5:00pm — 1 Comment

It gets easier

well, i was told i had alopecia areata when i was in the 8th grade. i was always the one with the longest, prettiest hair and losing my hair was honestly the hardest thing i ever had to go through, which sounds pretty selfish. i am now a freshman in college and i rectlenty shaved my hair because i went through a really bad phase of my hair falling out. i couldn't be happier with how things are going and how supportive evrybody is. even though, we have this devestating disorder God has a plan…


Added by Rachel on January 24, 2013 at 11:00pm — No Comments

What doesn’t kill you makes you stronger

What Doesn’t Kill You Makes You Stronger

Teenage stress is very common in high school; every teen has something that worries him or her, from a relationship to a final exam. At this stage in one’s life, everything seems so complicated, but there are some people who are faced with even more complicated stressors in their lives. A devastating illness in a teenager’s life can alter their persona and sometimes it may force them to unwillingly see life in a different way. I can’t talk for…


Added by Jackie on January 23, 2013 at 8:00pm — No Comments

Only in winter

Hi People,

I have had AA for 20 yrs. It gets bad only in winter. Ive tried vitamin D, creams and rogaine.The fact is, I get it bad in winter only on my head. Im convinced that if i lived in a warm climate my problems would be minimal.

Do you have the same problem?

Peace to all

Added by iboytony on January 23, 2013 at 8:00pm — 1 Comment

It is okay to replace what's missing

When we can't see: glasses or contacts.

When we need a lift: bra.

When our teeth break or get strange: braces, caps, whitening, bridges.

When a heart fails: stent.

When arches drop: shoe inserts.

To cover nakedness: clothing.

To not be animals: toilets, deodorant, condoms, houses, sweet scents.

To improve color: make-up.

So...why stress over wearing anything new on a head? Seriously! You've already agreed to the inventions of humans, so why not one…


Added by Tallgirl on January 23, 2013 at 12:30pm — 6 Comments

Human hair wig supplier

Hello All. Can anyone please advise me where I can get a good glueless human hair wig? I am from Mauritius. So, I would like to have a reliable supplier nearest to me.

Added by LUV on January 23, 2013 at 11:47am — 1 Comment

Are corticosteroid injections really the best method?

I've had them for years since i was 10 I'm 18 now. Also had them on the scalp for the most part with little growth BUT it's growth. Until i had started losing parts of my eyebrows i had injections and only one has more growth. I'm starting to lose my beard (only have somewhat of a goatee now) and my dr says it is no use to save my beard but i want it! The main problem is the eyebrows, can anyone help me and tell me if i should continue the shots on them or is there something better? How can i… Continue

Added by Connor013 on January 23, 2013 at 9:14am — 15 Comments

Please help! Revita?

Has anyone heard of Revita hair growth and does anyone recommend it? My sister's hair stylist gave her a brochure for my mother (who has AU) about this shampoo made of plant stem sells and other stimulates that is designed specifically for those with follicular dysfunction. According to their brochure, it works but I just wanted to see if anyone else has had any success or disappointment before I try it!

Any advice is welcome! Thank you! :)

Added by Megan Bry on January 22, 2013 at 6:00pm — 1 Comment

Just a bit about myself

Just a bit about myself, I have had alopecia universalis since I was 16. That's almost 20 years ago as it was in 1995 that the alopecia struck. Stunned shocked dismayed - all theses words described me for the first 3 years. Then I decided wigs were going to be an accessory and things slowly got better. Not that that is going to be the answer for everyone, but ditching wigs-as-a-mandated part of the alopecian wardrobe saved my sanity I think. Oh i still buy and wear wigs when the mood…


Added by Laura Adams on January 22, 2013 at 7:00am — 2 Comments


Today my son in law turned up unexpected with a friend and because I only shaved my head 3 days ago I didn't run and hide I was proud to just stay as I was in all my bald glory. This is who I am and I have no shame about the way I look love me the way I am because I am still the same person. I thought I would never feel proud of being with out my golden main but you know what I feel ok if people see me like this now. And actually my beautiful son in law loves my hair this short I challenged…


Added by Annette on January 22, 2013 at 6:30am — 6 Comments

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