Lili Añel (aka Eulalia)'s Posts - Alopecia World2024-03-28T10:11:44ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnelhttps://storage.ning.com/topology/rest/1.0/file/get/2192252420?profile=RESIZE_48X48&width=48&height=48&crop=1%3A1https://alopeciaworld.com/profiles/blog/feed?user=2a8e915qeh3qj&xn_auth=noMakeup - contouring and baldnesstag:alopeciaworld.com,2016-05-24:2022678:BlogPost:13236992016-05-24T01:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>I am living with my alopecia areata, without wearing wigs since 2011. I have no issue being bald in the world. I am glad living free of the "when-will-I-lose-my-hair" nightmare. I am a musician and am photographed often. I see in my photos that I am washed out; one big beige ghost-like blob.</p>
<p>Does anyone out there have any tutorials or info on learning contouring with make up for those of us who don't wear wigs and live bald in the world? I am certain that the correct makeup will help…</p>
<p>I am living with my alopecia areata, without wearing wigs since 2011. I have no issue being bald in the world. I am glad living free of the "when-will-I-lose-my-hair" nightmare. I am a musician and am photographed often. I see in my photos that I am washed out; one big beige ghost-like blob.</p>
<p>Does anyone out there have any tutorials or info on learning contouring with make up for those of us who don't wear wigs and live bald in the world? I am certain that the correct makeup will help with with this. Anyone with recommendations and how-to's please drop me a line or respond to this blog. Thanks.</p>
<p>Lili</p>Answers regarding recent scalp issuestag:alopeciaworld.com,2013-07-03:2022678:BlogPost:10650752013-07-03T16:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>I have posted recently about my scalp issues, with my scalp swelling in random patterns, looking like a sunburn and feeling like my head was on fire.</p>
<p>I saw a new dermatologist and he sent me for a RAST test. This is a blood test that determines food allergies. It turns out I am allergic to wheat. Funny, when my doctor gave me the result he said the test determined I was "slightly allergic to wheat". My response was "how does one determine slightly"? Sort of like being a little bit…</p>
<p>I have posted recently about my scalp issues, with my scalp swelling in random patterns, looking like a sunburn and feeling like my head was on fire.</p>
<p>I saw a new dermatologist and he sent me for a RAST test. This is a blood test that determines food allergies. It turns out I am allergic to wheat. Funny, when my doctor gave me the result he said the test determined I was "slightly allergic to wheat". My response was "how does one determine slightly"? Sort of like being a little bit pregnant. I also told him I wasn't surprised. Given that all of you here that responded to my blog when I wrote about this, some of you mentioned wheat was a determinant in autoimmune inflammation. I stopped eating bread (for starters) before this test was ordered by the doctor. I a guessing that's why the test shows I am "slightly allergic". I know now this is a trigger. In addition to stopping bread and other wheat products, I began juicing, predominantly green drinks kale, collards, celery, cucumber, carrots, ginger, green apples and/or pineapple. It's helping. I feel a difference and more importantly I have NOT had a scalp-swelling-burning episode since I started juicing became non-wheat. Its difficult as it seems there is wheat in everything, but I'm going one step at a time. Thank you everyone for your support and advice. And remember "Bald is Beautiful". - Lili</p>Alopecia phase II-Scalp changestag:alopeciaworld.com,2013-06-01:2022678:BlogPost:10531452013-06-01T17:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>Back in January I wrote about being diagnosed with shingles on my head. I had a burning red patch on my scalp. It began at night, on my way home from a gig. I didn't feel it at first, but my husband noticed it saying to me "Lili your head is bright red". It burned. That was a Saturday. I went to my primary care physician. He said I had shingles. Gave me an antibiotic and a cream. It did nothing to help. 3 weeks later I saw my dermatologist. Since the condition persisted he thought I had…</p>
<p>Back in January I wrote about being diagnosed with shingles on my head. I had a burning red patch on my scalp. It began at night, on my way home from a gig. I didn't feel it at first, but my husband noticed it saying to me "Lili your head is bright red". It burned. That was a Saturday. I went to my primary care physician. He said I had shingles. Gave me an antibiotic and a cream. It did nothing to help. 3 weeks later I saw my dermatologist. Since the condition persisted he thought I had post-herpatic disorder, basically an extension of shingles. He gave me a different topical steroid. At this point its February. The condition subsides and goes away. Surprisingly, I wake up one morning to discover its back. By the time I'm able to get an appointment with my dermatologist, its April. In between that time, the flare up of redness, burning and itching usually goes away overnight. But it reappears randomly. I keep track on my calendar. I finally see my doctor in April, showing up a day or so after a flare up but not when its in full-swing. He took pictures of my head and said "I don't know what this is". He instructed me to tell the front receptionist to mark my file, that when I wake up again with this at its worst state that they are to "squeeze me in"; he wants to see my head when its at its worst. He gave me a script for the strongest topical steroid cream.</p>
<p>I use it. It works. I'm a happy camper. Fast forward to end of May. I wake up this week, and this is what I look like, one of the worst episodes. I initially awaken feel my head itch. By the time I get up and look in the mirror, its burning. I call the dermatologist, remind the receptionist what he said, about their "squeezing me in" so he can evaluate. Doesn't matter, as he is out of the office for 3 days. I get an appointment with my primary care physician for the next day (yesterday, Friday, 5/31). He is sending me to an allergist. He believes I never had shingles, which I suspected, however, he doesn't know what I have either. I want to know what this is so it can be treated.</p>
<p>If any of you have experienced this PLEASE let me know. I don't mind having lost my hair to alopecia. Its just hair. I've made peace with it all quite readily. I don't, however, like how this feels or looks. Again, anyone having similar experience who have sought treatment or know any information, please comment. For the record, most of my hair went end of February 2011. I shaved the bit that was left March 5, 2011. Below is what it looks like. One of the photos is blurry, but you can see the redness. Thank you.</p>
<p><a href="http://storage.ning.com/topology/rest/1.0/file/get/2220377135?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220377135?profile=original" width="400" class="align-left"/></a></p>
<p><a href="http://storage.ning.com/topology/rest/1.0/file/get/2220377620?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220377620?profile=original" width="400" class="align-full"/></a></p>
<p><a href="http://storage.ning.com/topology/rest/1.0/file/get/2220377721?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220377721?profile=original" width="400" class="align-full"/></a></p>Tonight Show w/Jay Leno makes insulting remarks towards alopeciatag:alopeciaworld.com,2013-05-04:2022678:BlogPost:10380772013-05-04T18:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. In this segment he shows a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents. The doll only had long hair around its head and none in the center.<br></br> <a href="http://storage.ning.com/topology/rest/1.0/file/get/2220377832?profile=original" target="_self"><img class="align-center" src="http://storage.ning.com/topology/rest/1.0/file/get/2220377832?profile=original" width="670"></img></a></p>
<p>He joked perhaps one could do a comb over ala Donald Trump; the usual yuks.…</p>
<p>Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. In this segment he shows a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents. The doll only had long hair around its head and none in the center.<br/> <a href="http://storage.ning.com/topology/rest/1.0/file/get/2220377832?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220377832?profile=original" width="670" class="align-center"/></a></p>
<p>He joked perhaps one could do a comb over ala Donald Trump; the usual yuks. Then he stated "Maybe its an alopecia doll I dont know". I found this incredibly insensitive and insulting. Believe me, I have a sense of humor and I have often made fun of myself and my bald head. Its difficult enough dealing with having alopecia, but more so for children. The alopecian community has worked hard at trying to get alopecia dolls created so that kids who have it have something that resembles them. Of course the audience laughed, and I'll bet 99% of them don't know what alopecia is. The sad part is that there are a lot of us, including myself, who at one point looked like that doll and I find no humor in that. That is the point in alopecia where we realize what's what and have to deal with it. In my case I accepted it and moved on. Others not so aware. I found his statement highly insensitive and totally not funny. You can see the clip here; <a href="http://www.nbc.com/the-tonight-show/video/99-cents-store-part-2/n36298/" target="_blank">Jay Leno 99 Cent Store bit</a></p>
<p>Alopecians I am sure make up a good deal of of Jay Leno's viewing audience. I think it a good idea that we write to NBC with this regard. I am writing and asking for a public apology.</p>Bald and burning scalp sensationtag:alopeciaworld.com,2013-02-02:2022678:BlogPost:10121272013-02-02T19:18:51.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>Help - anyone who has experienced this place respond.</p>
<p>It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…</p>
<p>Help - anyone who has experienced this place respond.</p>
<p>It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of age. Anyway the doctor said he didn't think I had shingles cause it didn't look like it but as a precaution treated me as if I had shingles. Gave me a topical ointment and medication to take in case it was shingles.</p>
<p>I shaved last night using a high end shaving lotion, Neutrogena Men's sensitive skin - it was excellent. I am careful to always change my blade after few uses to I don't cut my skin. I looked and felt great. This morning the burning sensation and sunburn look to the back of my head (and top part of my right ear) has returned. I am also having this now around my forehead near what used to be my hair line.</p>
<p>Has anyone ever experienced this? This reminds me of what I felt 9 months before most of my hair finally went. I went to my dermatologist who is an Alopecia specialist and he said I had severe seborrheic dermatitis. Back then I still had hair where the burning was which was exactly where it is now, back of my head on the sides near my ear on the right side. He advised that I would probably begin to lose most of my hair although he could not give me a timeline. 9 months later most of my hair was gone. He gave me medication topical, to use to eliminate the burning, etc.</p>
<p>I know I have to go see him, no doubt, but I was wondering if anyone has experienced this. This is AFTER the fact, I no longer have hair. I have very few patches of hair, so I shave. I like my bald head; I'm scared of this burning. Thanks.</p>An alopecian in the world: Opening my eyestag:alopeciaworld.com,2012-12-18:2022678:BlogPost:9991972012-12-18T03:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>I've been busy; been in the world as an alopecian; a woman with alopecia. A woman who was laid off August 2008 when the law firm I worked at closed their doors, due to their own greed, but that's another story.</p>
<p>I felt lucky. I felt lucky because I felt relieved; no more worries that my spots would show; I was a clean slate, a bald head. I felt comfortable. I was most worried about my audience. I'm a musician, a singer/songwriter. I have presented myself with hair pretty much my whole…</p>
<p>I've been busy; been in the world as an alopecian; a woman with alopecia. A woman who was laid off August 2008 when the law firm I worked at closed their doors, due to their own greed, but that's another story.</p>
<p>I felt lucky. I felt lucky because I felt relieved; no more worries that my spots would show; I was a clean slate, a bald head. I felt comfortable. I was most worried about my audience. I'm a musician, a singer/songwriter. I have presented myself with hair pretty much my whole career. Now I had none. My audience embraced me and all was good with the world, or so I thought.</p>
<p>It would be nice if I earned my wage with my music. Like many other musicians, sidemen and singer/songwriters, this is not the case. So we have day jobs to compensate, to pay our rents, to keep our instruments up to snuff, to pay to promote ourselves, etc. I have had a couple of job opportunities including long term temp opportunities. On the recommendation of a few alopecian sisters, I was advised to wear a wig and in time let the right people know about my alopecia, immediate supervisors, etc., and then go wigless.</p>
<p>I've come to find corporate America does not take kindly to bald headed females. Despite explaining my alopecia, things in every instance changed when I no longer wore a wig. Most recently I had a temporary assignment that began in October and was to go until February. The last week in November I came in without my wig. It was uncomfortable, extremely uncomfortable. Mind you the wig I chose was short and commensurate with my bone structure. Everybody thought it was my own hair. I had explained to my boss about my alopecia, etc., level of uncomfortability. She didn't seem to care. The following week, quite ironically my assignment got "cut short". I was told the project I was working on was "going in a different direction". The entire time, the supervisor would not look me in the eye. I'm convinced this is because I stopped wearing a wig.</p>
<p>While I am in need of money, like everyone else in the world, I also need to feel comfortable, feel myself. Perhaps I need to buy a more expensive wig that might feel better, I don't know. I like my bald head. I like not worrying about my spots any longer. I like the way I look. When I wear a wig, I feel like I'm covering up. Despite this, I've played the game, to no avail.</p>
<p>The world on some levels is very ugly. People are not accepting of anyone that is different from them. Interestingly, I am bi-racial, half Black (yes, I say "Black"), half Cuban, born an American. In the Black community no one bats an eyelash at my bald head. It is often a "style". No one asks if I have cancer. When I tell my family and friends they are often surprised why its so big a deal that I am bald in my everyday. My response usually is its because I look different.</p>
<p>So I am once again job-less, but I have decided I'm not wearing a wig to any more interviews. I need to be accepted as me. If I appear with a wig, I will have to stay that way. I want to be myself and continue to be myself, without hair. Don't know if anyone here has had similar experiences; I don't think I'm alone. I do know I don't want to hide, be, appear as someone I'm not. - Lili<br/> <a href="http://storage.ning.com/topology/rest/1.0/file/get/2220376167?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2220376167?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
Recent performance at a private house concert "Candlelight Concerts for Epilepsy Awareness"</p>An alopecian looking for work - An updatetag:alopeciaworld.com,2012-02-13:2022678:BlogPost:8891672012-02-13T02:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>It's been 3 years and 6 months. Unemployment came and went. I had to file for bankruptcy, no money in means no money to go out; no choice in the matter. Difficult to maintain a home with one income where it needs two. I had to give my car back. I managed. I survived because I'm married and my husband works. We cut back as far as possible, even moved into a lesser rent apartment. We were lucky the complex we live in worked with us. While my husband was good with everything we had our moments.…</p>
<p>It's been 3 years and 6 months. Unemployment came and went. I had to file for bankruptcy, no money in means no money to go out; no choice in the matter. Difficult to maintain a home with one income where it needs two. I had to give my car back. I managed. I survived because I'm married and my husband works. We cut back as far as possible, even moved into a lesser rent apartment. We were lucky the complex we live in worked with us. While my husband was good with everything we had our moments. My not having any income was trying. At one point I thought we might be headed for divorce. Let's top it off with my losing my hair.</p>
<p>Losing my hair made job hunting more difficult as I am comfortable with my baldness, but I realize corporate America has issues with my alopecia, so I have taken to wearing a wig to interviews. I recently did not get hired for a job that my recruiter was positive I would get. The only reason I believe I didn't get it was my baldness. Well, bottom line, I need an income, so I'll do what I have to do.</p>
<p>Having said this I'm glad to announce I am once again employed. I will work in IT where I've worked. I will wear my wig until my probationary period is up and then tell my immediate supervisor about my condition. I suspect they will already know, given employers now Google prospective employees and I have to have a medical exam by their doctors.</p>
<p>This economy is difficult. For all of you out there who have been laid off, don't give up hope.</p>Anniversary-Almost one whole year without hair!tag:alopeciaworld.com,2012-02-04:2022678:BlogPost:8859282012-02-04T21:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>Its February 2012. At the end of February 2011 I realized after seeing a photo of myself, that my alopecia was beyond repair; not enough hair on my head to "cover" the spots as I had been doing the past 18 years. I went to my hairdresser, who was instrumental in fixing what hair I had left throughout the years to shave off what was left of my hair.</p>
<p>That happened on March 5th. Its almost a whole year. I've grown a great deal. I have had many realizations, some good, some horrible.…</p>
<p>Its February 2012. At the end of February 2011 I realized after seeing a photo of myself, that my alopecia was beyond repair; not enough hair on my head to "cover" the spots as I had been doing the past 18 years. I went to my hairdresser, who was instrumental in fixing what hair I had left throughout the years to shave off what was left of my hair.</p>
<p>That happened on March 5th. Its almost a whole year. I've grown a great deal. I have had many realizations, some good, some horrible. Mostly, I realize the one main thing, that I have to love myself, just as I am. I didn't think I did; I didn't think I had that kind of strength. Despite all the adversities life has thrown at me, I am thrilled to realize, I like me, I love me. I don't think I would be able to handle having alopecia, losing my hair if I did not.</p>
<p>For the most part, I have not had too many issues. Yeah, I've been stared at, I've had obnoxious children who reflect and parrot their parent's stupidities; but I come from the "sticks-and-stones may break my bones but names will never hurt me" era. I'm lucky. I can't say I've been "lucky" in other aspects of my life, but I'm fortunate to be lucky here. I've had strangers call me "beautiful". I had one guy on the streets of Philadelphia say "Yo Sis, looking good; way better than the others with their horse-hair weaves looking all phony; looking smooth, sister, looking smooth". That was a real shot in the arm. From one extreme to the other.</p>
<p>I've lost most of my eyebrows, they're real short. I went to a well known cosmetics store and was shown how to paint in my eyebrows, using a kit with a template. Its amazing. They look real. My eyebrows went real fast; incredible.</p>
<p>I never wanted to wear wigs. I feel extremely comfortable bald. But winter approached. I never realized how cold I would get without hair on my head. As well, I was working "temp" and most office buildings at different times of the day get real cool. Well, they felt cool to me with no hair. I bought a wig. It was human hair. I found a style/color that looked like it could be me. Mind you, I am bi-racial, there's no way on God's green earth I had straight hair, but it looks good. I noticed that on the days that I wore my wig, more people held the door open for me; more people smiled, acknowledged me. When I chose to go bald, people looked past me, as if I wasn't even there. I found that interesting.</p>
<p>The most difficult thing has been interviewing for work. Yes, I am a musician, but lucky is the musician who earns a livable wage. I was laid off from my day job in 2008. I interviewed for one job that did not pay well. At this point in my life, unfortunately a pay-job is better than no job. The new trend, given our economy, is that jobs are paying less than they used to. Thinking that I was not going to be properly compensated, I broke my rule and told the interviewers about my alopecia. The thing was, I thought it was bad enough to not be properly compensated and insult to injury to have to hide myself subsequently. They thought the wig I was wearing was my real hair. They said they didn't care about my alopecia. Funny I don't consider them "accepting" I consider that they were lucky to find a candidate willing to take a job for that low a salary. I'm in the running; I know they've been checking my references.</p>
<p>For the most part, I've been interviewing with a wig and my plan, hoping I get a job, is to wear a wig til I pass my probation period, and then advise my immediate supervisors of my condition. By then, summer will be approaching and I can be cool and comfortable.</p>
<p>I've also found that many of the people I've dealt with in the business of music assumed I shaved my head for sport, to reinvent myself, as a "schtick". I find that hysterical. Why, oh why, would I shave my head if I had a healthy head of hair? as if that could remotely accelerate my career. The world is full of ignorance, dare I say stupidity.</p>
<p>I will say I had fun trying wigs on and may purchase wigs for a "look". THAT I'll do deliberately. Its kind of fun cause everyone that knows me knows I go bald, so if I do this, it will be like wearing a new clothing style. Its like Halloween whenever I want!</p>
<p>In this past year I have felt more comfortable than I have ever felt in my life. 18 years was a long time hiding spots, praying for no breeze, nervous my spots were showing. All these spots contribute to insecurity and I am glad to be rid of those feelings. I am amazed at those who readily accepted me.</p>
<p>I saw a young girl with her mother at the bank one day. I could tell the little girl had alopecia, I don't know something said to me she did not have cancer. I suppose it unfair of me to assume. I wanted to speak with her, perhaps tell her about the Children's Alopecia Project; but they left as they were a few people ahead of me on line. I then did my banking and proceeded for last minute shopping - it was the day before Thanksgiving. I was with my twin sister, Barbara. I told her about the little girl I'd seen. We went the supermarket and there they were. I approached the girls' mother and introduced myself. I said "Hi, I noticed you and your daughter in the bank a little while ago, does she have alopecia?" and she said "Yes, she does". I then removed the cap I was wearing and said "so do I..." The mother had such a look of relief. I then turned to speak to the girl and she looked up at me with her eyes real big. She pointed at me and said "Mom, that's the lady, that's the lady from the Benefit, she was on tv, she was on tv..." She had seen me on the NBC 10! Show when I was promoting the Musicians for Children's Alopecia Project Benefit. We talked for a bit. She told me she hopes to attend Alopeciapalooza this summer. She said they couldn't come to the benefit, school had just started and there was much going on. The girl's name is Gabriella. She told me she wrote songs too. She was beautiful. We took a photo together:</p>
<p><a href="http://storage.ning.com/topology/rest/1.0/file/get/2220376372?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220376372?profile=original" class="align-full" width="478"/></a></p>
<p>I am going to begin recording a new CD and one of the songs I'm doing talks about my losing my hair. I invited Gabriella to sing on the chorus. I am actually going to have a chorus of alopecian children sing on the chorus; Jeff Woytovich of CAP is helping me with this. Gabby was thrilled.</p>
<p>I saw a friend recently I had not seen in 30 years. He knew of my alopecia. He gave me a warm, friendly greeting. Then he said, "take that off, let me see you..." I removed my wig and he said, "you look beautiful".</p>
<p>That's what its all about.</p>
<p>I will continue to blog my further adventures as a recent Alopecian out in the world. Feel good my alopecian sisters and brothers; love yourselves so that others may love you. Its a beautiful thing!</p>
<p>Lili</p>Out in the world as an alopecian; the job interview and further stepstag:alopeciaworld.com,2011-11-20:2022678:BlogPost:8520562011-11-20T02:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
<p>While I am a musician (Singer/Songwriter), I don't exist off the air I breathe. It would be nice. When I was signed to a label in the mid-90s I toured, made very good money. Long story short, my contract with my label was not renewed. It meant "start over". Back to a day job. I burned the candle at both ends, working to support myself, pursuing my musical endeavors, writing performing.</p>
<p>Like millions of other Americans I was laid off in 2008. I work as a temp whenever afforded the…</p>
<p>While I am a musician (Singer/Songwriter), I don't exist off the air I breathe. It would be nice. When I was signed to a label in the mid-90s I toured, made very good money. Long story short, my contract with my label was not renewed. It meant "start over". Back to a day job. I burned the candle at both ends, working to support myself, pursuing my musical endeavors, writing performing.</p>
<p>Like millions of other Americans I was laid off in 2008. I work as a temp whenever afforded the opportunity which is seldom, but I do what I can. I survive because I am married and my husband works. We live on a shoestring, but we live. We've done everything, filed for bankruptcy, moved to a smaller cheaper apartment, I had to give back my car. Making it work.</p>
<p>I embraced my alopecia, my bald head, when all my hair pretty much went this past March 2011. I had no problem being out in the world bald. For the most part, I was accepted. Dealt with the usual stupidity of some people, but not the end of the world. I am beginning to realize there is a good chance I was passed over for employment because of my bald head.</p>
<p>Given the current economy, employers can, and do discriminate. In my case, its pretty hefty. I'm female, a Black-Cuban, I'm middle-aged and I'm bald. I can't do much about my age or ethnicity. I recently lost out on a job where I'd been told "you are the #1 candidate". No reason was given except that someone else was chosen. I cried for 2 days. Mostly, because I figured it was about my bald head.</p>
<p>I'd been counseled to advise prospective employers that I don't have cancer. Their first thought is that I may be out sick a lot. I wait until I am well into the interview to mention it. So far, all interviewers make light of it "oh I didn't think anything of it, thanks for advising". I know its a huge pile of shit when they say this. I'm sure its the FIRST thing they noticed, my baldness. Nonetheless, I cover myself. I am still jobless.</p>
<p>My Alopecian sister-mentor "Crowned Regal" (some of you may know her) gave me good advice. She said wear the wig until you get the job. When you know you HAVE the job tell the immediate people that count, like your supervisor. After this its not an issue (well, it shouldn't be).</p>
<p>I had bought a wig prior to shaving the little bit of hair I had left on my head. It looked great to me, then. This is because it was better than the alternative. After I removed what little hair I had that wig looked like a costume to me. I'm guessing now that I have embraced my alopecian self and bald head, picking a different wig may feel/look better to me than what I bought when I still had some hair. I thinks its psychological.</p>
<p>I would like to have a wig made that will lay right on my head, but I don't have the money. My friend recommended to me the places where to go to get a wig that is affordable. I've seen her wigs, they're fantastic. So, off I go next week. I'll wear a wig to my interviews and after I get a job; sometimes to the job. Not my preference, but I have to eat, pay rent and take care of myself. Its part of my circumstance. Yeah, I can dig in my heals and so "no, they have to accept me just as I am" but they won't be accepting like they haven't been. We're living in difficult economic times and corporate America is worse and more prejudicial than its ever been because THEY CAN BE. It is doubtful to me that there was a real reason why I was not hired for this position that wasn't related to my baldness. I was told I was "it" by the recruiter. They were completely surprised at my not being hired as well. For the record I am extremely eloquent and well-spoken. It is what it is.</p>
<p>Rolling with the punches with my alopecian-self.</p>
<p>Happy Thanksgiving everyone! Be bold, be brave, be bald, be yourself,(when you can).</p>
<p>Lili</p>Losing my eyebrowstag:alopeciaworld.com,2011-09-26:2022678:BlogPost:8213442011-09-26T18:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I lost most of my hair end of February beginning of March of this year, 2011. In the past month I have begun to lose my eyebrows. I am losing them at break-neck speed. Its incredible. When I go out,when I have a gig (I'm a musician) I have to beef them up, pencil/draw in.<br></br>
<br></br>
I'm finding it incredible how fast they're going. Anyone out there have any info on if they grow back? I didn't think I'd lose them because they stayed intact. All part of the disease. I've learned to pencil in well…
I lost most of my hair end of February beginning of March of this year, 2011. In the past month I have begun to lose my eyebrows. I am losing them at break-neck speed. Its incredible. When I go out,when I have a gig (I'm a musician) I have to beef them up, pencil/draw in.<br/>
<br/>
I'm finding it incredible how fast they're going. Anyone out there have any info on if they grow back? I didn't think I'd lose them because they stayed intact. All part of the disease. I've learned to pencil in well enough, I'll just continue in that fashion. Depending on what I'm wearing I either go black or dark brown. A lighter brown with some red in it would be cool too. Any recommendations by way of products please share.<br/>
<br/>
I attach here a photo from the finale at the Musicians For Children's Alopecia Project. We had a GREAT night. There is also a video, I attached the link to it on my page, so check it out there. I had two great newspaper pieces, attaching links here as well.<br/>
<br/>
Thanks Alopecia World for helping me to continue strong while dealing with my hair loss and representing on behalf of children who have this. As I have often said and will continue to say, I'm grown, I can handle this; children don't have that "fight" yet. <br/>
<br/>
Keep your beautiful bald heads up!!!<br/>
<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2077866436?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2077866436?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
<a href="http://www.courierpostonline.com/article/20110905/LIVING03/309050003/BALD-BRAVE?odyssey=mod" target="_blank">http://www.courierpostonline.com/article/20110905/LIVING03/309050003/BALD-BRAVE?odyssey=mod</a><br/>
<br/>
<a href="http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html">http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html</a>Spreading Awareness-Musicians for Children's Alopecia Project Benefit Tonighttag:alopeciaworld.com,2011-09-17:2022678:BlogPost:8118172011-09-17T04:53:21.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I was told this link didn't work, perhaps it will work now:<br />
<a href="http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html">http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html</a>
I was told this link didn't work, perhaps it will work now:<br />
<a href="http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html">http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html</a>WCAU NBC 10! Show - Speaking About Alopecia Awareness and Upcoming Event!tag:alopeciaworld.com,2011-09-10:2022678:BlogPost:8042762011-09-10T02:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.<br/>
<br/>
Click <a href="http://www.nbcphiladelphia.com/shows/10-show/Alopecia_Project_Philadelphia-129266408.html" target="_blank">HERE</a> to see the video!<br />
<br />
Thank you!<br />
<br />
Lili
Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.<br/>
<br/>
Click <a href="http://www.nbcphiladelphia.com/shows/10-show/Alopecia_Project_Philadelphia-129266408.html" target="_blank">HERE</a> to see the video!<br />
<br />
Thank you!<br />
<br />
LiliSpreading Awareness One Step At A Timetag:alopeciaworld.com,2011-09-05:2022678:BlogPost:7992462011-09-05T16:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.<br></br>
<br></br>
I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.<br></br>
<br></br>
I'm very excited they did such a great job on the piece. As well, the Honorable Mayor…
I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.<br/>
<br/>
I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.<br/>
<br/>
I'm very excited they did such a great job on the piece. As well, the Honorable Mayor Michael A. Nutter of Philadelphia (where I live) proclaimed September 16, 2011 the date of the Benefit "Alopecia Awareness Day in Philadelphia".<br/>
<br/>
The word is getting out there, one step at a time, but its getting out there. I'm glad to have had some success in contributing to this. Miles to go my friends, miles to go.<br/>
<br/>
Lili<br/>
Read Courier Post Article: <a href="http://www.courierpostonline.com/article/20110905/LIVING03/309050003/BALD-BRAVE?odyssey=mod|newswell|text|FRONTPAGE|p" target="_blank">http://www.courierpostonline.com/article/20110905/LIVING03/309050003/BALD-BRAVE?odyssey=mod|newswell|text|FRONTPAGE|p</a>Children with Alopeciatag:alopeciaworld.com,2011-08-07:2022678:BlogPost:7564522011-08-07T16:49:54.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
This segment on the Colorado news, says it all. Yes, having alopecia at Any point in life is extremely difficult. But children are just starting out in their lives. I am grateful for having alopecia in my adult life; I was already "me" and secure, thankfully. How much more difficult it is for children. This is why I organized my event "Musicians for Children's Alopecia Project Benefit" to be held at World Cafe Live in Philadelphia, 9/16/2011, 7p-11p. An excellent night of music, awareness which…
This segment on the Colorado news, says it all. Yes, having alopecia at Any point in life is extremely difficult. But children are just starting out in their lives. I am grateful for having alopecia in my adult life; I was already "me" and secure, thankfully. How much more difficult it is for children. This is why I organized my event "Musicians for Children's Alopecia Project Benefit" to be held at World Cafe Live in Philadelphia, 9/16/2011, 7p-11p. An excellent night of music, awareness which will benefit children with Alopecia via the Children's Alopecia Project.<br />
<br />
Please take a moment and view this news segment: <a href="http://youtu.be/7I5njORmi7E" target="_blank">http://youtu.be/7I5njORmi7E</a>"Teach Your Children Well; An Alopecian In The World, Stilltag:alopeciaworld.com,2011-07-23:2022678:BlogPost:7328812011-07-23T19:33:37.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.<br />
<br />
This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.<br />
<br />
A table next to us, a large family with about 4 children, 3 girls, 1 boy,…
I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.<br />
<br />
This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.<br />
<br />
A table next to us, a large family with about 4 children, 3 girls, 1 boy, mother, father and perhaps an aunt. The smallest child, about 6 years old yells out <strong>"Look Daddy"</strong>, while pointing at me, bald-headed me.<br />
<br />
I anticipated a "that's not nice, you should not point, apologize" or an "I'm sorry" from the parents. I got neither. Being the bigger person I smiled and said to her "I'll bet you've never seen a bald headed lady before..." The mother says "oh, her grandfather's bald..." and my response was "her grandfather's supposed to be bald, he's an old man".<br />
<br />
This child acted this way because her parents act this way; I don't have a doubt in my mind.<br />
<br />
I was taught when I was a child that pointing at some thing or some one was "rude" and that I was never to do it. I have become comfortable and accustomed to being bald, I have forgotten that I am hair-less on my head. Walking around the ship, many a time I wondered "why is everyone staring at me?" Oh yeah, I'm bald, I'm not supposed to be bald. One tires of smiling, of being the "bigger person". I reached a point that I'd stare back and they'd stop. I'm 6 ft. tall; with my heels, I'm about 6'2". They'd stop staring, alright.<br />
<br />
On the beach in Bermuda a woman walks up to me, a total stranger, and she asks <strong>"when was your last chemo treatment?"</strong>. I responded "excuse me?" as those were words I am not used to hearing. She repeated her question. I responded "No, I don't have a cancer". This is not what I responded, but I have a suspicion my original blog was deleted because I posted what I <strong><em>did</em></strong> answer. She asked me what that was and I took the opportunity to spread awareness. I think it presumptuous of people assuming I might have cancer, but I also understand that they <strong>DON'T KNOW</strong> what Alopecia is and they've never heard of it.<br />
<br />
I own my Alopecia and take responsibility for letting people know. Hopefully the next time they see a baldheaded woman, they won't assume the worst. Alopecia is definitely NOT worse than cancer.<br />
<br />
Before leaving on my trip a young woman I know, a musician, called me hysterical crying. She said she'd not told anyone. She found a dime-sized bald spot on her head. She is 21. She said "I don't deserve this". I explained to her none of us deserve it, but there was a way to handle it all. I assured her the first thing she needed to do was see a dermatologist, who would run blood tests and check her thyroid, check her for Lupus other diseases which cause hairloss. She said I "calmed her down". She said she was grateful that I could help her by imparting information. I gave her my dermatologist's number. She went and saw him. She has a mild case of Alopecia; he found 3 additional spots. I don't know if she will lose all her hair; perhaps it will take her years, as in my case, it took me 18 years to lose my hair. Perhaps she won't lose any more of it . I've never heard of a "mild case of alopecia"; my understanding is you have it or you don't. Sort of like being pregnant. I am glad that I could calm her and give her information. She has some tools now to move forward.<br />
<br />
I continue in the world, an Alopecian. It is sometimes not easy, especially when some snot-nosed kid with no manners, who reflects her parents, does something so humiliating - and in front of family, some who are just getting used to the fact that I've lost my hair, that I have not seen in 24 years.<br />
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Bottom line; it is, what it is. I'm handling it. Some instances easier than others.<br />
<br />
For my Alopecian sisters and brothers, continue in the world; in the famous words of Monty Rock, III: "<strong>dig yourself</strong>."<br />
<br />
Lili<br />
"This Above All Else; To Thine Own Self Be True" - W. ShakesphereWalking down the street in Philadelphia!tag:alopeciaworld.com,2011-06-18:2022678:BlogPost:6822492011-06-18T00:18:22.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
So, I am working at a Temp assignment while I look for a permanent job. I was on my way to an interview and was a little nervous, hoping that my baldness won't have a negative impact, that I get the job.<br />
<br />
as I walk down the street, this man comes up along side me and says "looking good sis, looking good; I wish more women showed what God gave them and go natural like you; I'm tired of all these women with their horse-hair wigs and weaves; they ought to just wear what God gave them. Looking good…
So, I am working at a Temp assignment while I look for a permanent job. I was on my way to an interview and was a little nervous, hoping that my baldness won't have a negative impact, that I get the job.<br />
<br />
as I walk down the street, this man comes up along side me and says "looking good sis, looking good; I wish more women showed what God gave them and go natural like you; I'm tired of all these women with their horse-hair wigs and weaves; they ought to just wear what God gave them. Looking good sis, looking good".<br />
<br />
I had such a good laugh and I thanked him profusely. It was the shot in the arm I needed going to my interview.<br />
<br />
The interview went great and there was no mention of my baldness. Mind you, part of the job involves being a relief receptionist.<br />
<br />
Time will tell if I get the job. If I don't I cant help but think my bald head had something to do with it.<br />
<br />
It is what it is. In the meantime it felt GREAT getting that kind of feedback from a stranger.<br />
<br />
I loved it.<br />
<br />
Lili<br />
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220377347?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220377347?profile=original" width="640" class="align-full"/></a>The world can be a strange placetag:alopeciaworld.com,2011-06-01:2022678:BlogPost:6632562011-06-01T01:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
My sister visited for Memorial Day Weekend. Its been very hot and one evening we decided on going out for ice cream.<br></br>
<br></br>
My sister, my husband and I got in the car and drove to a local ice cream place. We ate our respective ice creams at one of the tables outside of the establishment. I was out without a hat, scarf; it was very hot. I often forget that I no longer have hair. I feel comfortable just being out, in the world, bald.<br></br>
<br></br>
As we proceeded to get back in the car, I hear a…
My sister visited for Memorial Day Weekend. Its been very hot and one evening we decided on going out for ice cream.<br/>
<br/>
My sister, my husband and I got in the car and drove to a local ice cream place. We ate our respective ice creams at one of the tables outside of the establishment. I was out without a hat, scarf; it was very hot. I often forget that I no longer have hair. I feel comfortable just being out, in the world, bald.<br/>
<br/>
As we proceeded to get back in the car, I hear a kids voice yelling "Mom, Mom, look, look she's bald...." I turned around and responded "yeah, Mom, look, look, I'm bald". All they could do was stare.<br/>
<br/>
I usually handle this well; I usually just smile and wave. But this time I was thoroughly pissed. When I looked at the "Mom", she looked like she weighed 800 pounds, sitting in the car, behind the wheel, never having gotten out, her huge double ice cream sundae taken to her. One would think "people in glass houses shouldn't throw stones". Someone who looks like she does I would think would have taught her kids not to single anyone out; I'll bet she gets pointed at, no doubt.<br/>
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My husband and sister told me to ignore ignorance; we drove away. I got over it quickly.<br/>
<br/>
Yes, the world can be a strange place. <br/>
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Onward and upward.<br/>
<br/>
Lili aka EulaliaCinderella momenttag:alopeciaworld.com,2011-05-23:2022678:BlogPost:6513672011-05-23T22:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I had a job interview today with an employment agency. Mind you, I'd responded to an ad for a "Receptionist/Secretary Law Firm". Right up my alley. When I walked in I was shown to a desk where I was then given an insurmountable amount of paperwork to fill out. You would have thought I had bought a house. I removed my overcoat, my cap, exposing my Royal Baldness. The receptionist smiled. The others kept walking past where I was I guess to get a "sneak peak" at the tall bald headed one. No…
I had a job interview today with an employment agency. Mind you, I'd responded to an ad for a "Receptionist/Secretary Law Firm". Right up my alley. When I walked in I was shown to a desk where I was then given an insurmountable amount of paperwork to fill out. You would have thought I had bought a house. I removed my overcoat, my cap, exposing my Royal Baldness. The receptionist smiled. The others kept walking past where I was I guess to get a "sneak peak" at the tall bald headed one. No biggie. I took some software tests-scored high. And after being there 2 hours finally sat down to interview. The interviewer never batted an eye about my baldness, didn't act weird. However when I kept asking about the Receptionist/Secretary job she'd double talk out of it. I reminded her how I came to emailing them - I thought they were the actual law firm. Long story short, I don't know if she talked her way out of it because she didn't think me "receptionist" looking type or the job posted was a "bait' which is what they do these days. I am convinced employment agencies need to fulfill some sort of quota in order to earn money, get tax kickbacks, whatever. I don't see how they stay in business when there's no work to be had.<br/>
<br/>
I got the usual "call in as often as you like, if there's something we'll let you know". Hell, I could have kept the $4 total it got me to get there, and been in the comfort of home instead of out in this dreary weather. I leave and go to the bus stop to await my bus.<br/>
<br/>
While waiting for the bus to come home an older woman came up to me and said "May I Pay You A Compliment?" and I said "of course, I don't get enough of them". Then she said "you have beautiful hair". Then I told her "well, what's left of it, I'm bald"...then she said "Sorry, I meant your head is beautiful, you look so beautiful" .This from a perfect stranger.<br/>
<br/>
Felt like Cinderella.<br/>
<br/>
To my Alopecian sister-Cinderellas and brother-CinderFellas, let your light shine, feel free and be happy. If you're settled with this in your head, in your heart, it reflects back to you and people won't be so weirded out. I'm convinced that it reflects. Not to say there aren't a**holes out there that will drive us to fury, but for the most part, it works out. I want and hope for you all to have such a moment as I have had today.<br/>
<br/>
Lili (aka Eulalia)<br/>
"This Above All Else, To Thine Own Self Be True".The TRUE test!tag:alopeciaworld.com,2011-05-20:2022678:BlogPost:6479542011-05-20T20:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
So, I've been out of work going on 3 years. August 20th will be 3 years since my layoff to be exact. I have had a time of it trying to find a day-job. While I am a musician, a performing singer/songwriter, music right now does not pay the bills, is not a true "wage earner". When I was signed to a label in the mid-90s I worked as a full-time musician for about 2 and a half years and made an excellent wage, was able to sustain myself 100%. When the label dropped me it was "start over", worked…
So, I've been out of work going on 3 years. August 20th will be 3 years since my layoff to be exact. I have had a time of it trying to find a day-job. While I am a musician, a performing singer/songwriter, music right now does not pay the bills, is not a true "wage earner". When I was signed to a label in the mid-90s I worked as a full-time musician for about 2 and a half years and made an excellent wage, was able to sustain myself 100%. When the label dropped me it was "start over", worked temp til I got a permanent job so that I could have health insurance - you all know the drill. I burned the candle at both ends, a day-job to sustain myself and worked on my music the rest of the time, writing, performing earning whatever I got on any given night. Since my layoff, I don't work any less on my music than I did when I had a day-job; and clubs don't pay any more than they did. I am married and fortunately my husband works. He has covered me on his health insurance although these days that takes a HUGE chunk from the salary. <br/>
<br/>
I have an interview with an employment agency Monday. I am NOT wearing a wig. After taking what was left of my hair down and putting on the wig I bought in case I 'needed' to wear one, I hate the way it looks. It looks like a costume, not real. I was ready to handle my alopecia, I suppose so I was immediately comfortable being bald. I don't feel I 'need' to wear a wig. In thinking of my interview next week I suppose the 'need' to wear a wig would be to have the interviewer be comfortable with me. Why should "she" be made comfortable, I'm the one without hair.<br/>
<br/>
So I've come up with some guidelines. If asked if I would wear a wig for an interview with a prospective employer, my answer will be <strong><em>only</em></strong> if the salary being offered is in excess of $50,000 per year. In which case after my first paycheck I can get a human hair wig made. My understanding from some of my alopecian friends is that if you have a wig made to your specifications, head size and shape with human hair it will look better than your standard $49.99 off the rack which is what I have. I should put it up on eBay, I'm probably never going to wear it; it <strong>really</strong> looks fake. A custom wig, if need be would look more real.<br/>
<br/>
I have a suspicion, so my gut tells me, that I may never get into the whole wig wearing thing. Perhaps it may cost me future employment. I haven't lived my life this long to "play dead" and wear a wig because it makes an employer feel better. I do need the salary, but I don't think I can do it. We'll see.<br/>
<br/>
I plan on blogging again about my experience; God only KNOWS what's going to happen. All I can say is I anticipate laughing a lot. I have not gone through being without work for so long to let not having hair on my head throw me. Yeah I can put on my fake-looking wig and STILL not get a job and feel uncomfortable which may affect my interview, testing, etc. <br/>
<br/>
I have to be me in the truest form so I can do my best. I'll keep you all posted.<br/>
<br/>
Here's a photo from my most recent performance in Bethlehem, PA at the ArtsQuest MusikFest Cafe:<br/><a href="http://storage.ning.com/topology/rest/1.0/file/get/2220378097?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2220378097?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
<br/>
Royally Bald,<br/>
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Lili (aka Eulalia)Head acne, stinging and the continued process out in the world as an alopeciantag:alopeciaworld.com,2011-05-10:2022678:BlogPost:6346452011-05-10T00:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
So I wonder if any of you have experienced this, I've been getting what seems like acne near my forehead and around the top of my head. I'm thinking since I don't have hair nothing to absorb skin oil I'm getting these bumps. Any recommendations as to what I can use?<br></br>
<br></br>
I also have been feeling tingling. I've been bald now since early March; is this part of the process? My eyebrows are also thinning. Any recommendations as to what I should be on the lookout for, do, etc., is much…
So I wonder if any of you have experienced this, I've been getting what seems like acne near my forehead and around the top of my head. I'm thinking since I don't have hair nothing to absorb skin oil I'm getting these bumps. Any recommendations as to what I can use?<br/>
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I also have been feeling tingling. I've been bald now since early March; is this part of the process? My eyebrows are also thinning. Any recommendations as to what I should be on the lookout for, do, etc., is much appreciated.<br/>
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On another note, I was doing a gig and the backstage manager phoned to tell me that the dressing room was equipped with everything and that I could "....do my hair....". I figured she'd not seen my new promo photo or looked at my website, where I'm completely bald. I said to her "thank you, I won't be getting my hair done, I have no hair..." Then she said "oh I'm sorry, that's right......" and continued tap dancing so to speak. I laughed.<br/>
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Having a good time with this. I am happy to be acclimating.<br/>
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I wish for you all self acceptance and much love.<br/>
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LiliThe heat, and my eyebrows are fadingtag:alopeciaworld.com,2011-04-27:2022678:BlogPost:6178352011-04-27T02:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
When I lost most of my hair it was March 2011 and I took the necessary precautions wearing scarves, hats, buffs, etc. I noticed I felt the cold a lot faster than when I had some hair on my head.<br></br>
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I'm finding that now that it is getting hotter outside, my head sweats! Man! And the sweat goes right to my ears. never realized hair kept that from happening.<br></br>
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On another note, I'm losing my eyebrows. I have pretty much very thick Groucho-Marx-like eyebrows. I notice that I don't…
When I lost most of my hair it was March 2011 and I took the necessary precautions wearing scarves, hats, buffs, etc. I noticed I felt the cold a lot faster than when I had some hair on my head.<br/>
<br/>
I'm finding that now that it is getting hotter outside, my head sweats! Man! And the sweat goes right to my ears. never realized hair kept that from happening.<br/>
<br/>
On another note, I'm losing my eyebrows. I have pretty much very thick Groucho-Marx-like eyebrows. I notice that I don't have to tweeze my eyebrows much anymore. Hair doesn't grow where it shouldn't. And my eyebrows are getting thinner.<br/>
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I'd appreciate any recommendations respecting good eyebrow pencils and silhouettes or templates I can use and where to get them. Just preparing myself. Better to be prepared.<br/>
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Onward and upward everybody! Heads up! Towards the Sky! Positivity!<br/>
<br/>
Lili<br/>
This above all else, to thyne own self be true.My first "Gentleman"!tag:alopeciaworld.com,2011-04-18:2022678:BlogPost:6109582011-04-18T20:47:52.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
So I go out to dinner with my husband last night, after returning from a visit with my sister in New York. We go to our usual diner. I was wearing a cap which is like a conductors cap in that its short around my head, not like a baseball cap that covers you all the way.<br />
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The waitress that usually waits on us came up from my side and said "Good evening gentlemen", and I turned around and looked at her. I was wearing lipstick and I said "well, if I take my hat off you'll get to see what kind of…
So I go out to dinner with my husband last night, after returning from a visit with my sister in New York. We go to our usual diner. I was wearing a cap which is like a conductors cap in that its short around my head, not like a baseball cap that covers you all the way.<br />
<br />
The waitress that usually waits on us came up from my side and said "Good evening gentlemen", and I turned around and looked at her. I was wearing lipstick and I said "well, if I take my hat off you'll get to see what kind of "gentleman" I am". She got all apologetic. She kept rubbing my forearm saying "oh, I'm so sorry...". I just laughed.<br />
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I'm finding this all hilarious and I'm having a good time with it.<br />
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I was on the bus on my way to New York last Friday. A man got on and sat across from me. Again, he could see I was bald under the cap. He was staring holes into me, but when my eyes would meet his, he'd quickly look away. We did that cat-and-mouse dance for a hot minute. Finally, the next time he stared at me I caught his gaze and smiled. He didn't know what to do with himself. Looked like his head wanted to explode.<br />
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I'm having fun with this; yes indeed.<br />
<br />
Lili<br />
"This above all else; to thine own self be true..."Out in the world with my bald headtag:alopeciaworld.com,2011-03-26:2022678:BlogPost:5941042011-03-26T23:11:29.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
My husband and I went to Target for some household essentials. I happened to meet him over in the men's section where he was trying on pants. I saw a few caps that were very unisex looking, thought I might try them on and pick one or two up for the summer. Funky looking little caps, right up my alley. I was wearing a Buff. Of course, in order to try the cap I needed to remove my buff. I walked over to the full length mirror about 5 feet from where my husband was. I removed my buff put on cap…
My husband and I went to Target for some household essentials. I happened to meet him over in the men's section where he was trying on pants. I saw a few caps that were very unisex looking, thought I might try them on and pick one or two up for the summer. Funky looking little caps, right up my alley. I was wearing a Buff. Of course, in order to try the cap I needed to remove my buff. I walked over to the full length mirror about 5 feet from where my husband was. I removed my buff put on cap #1. Looked great. I yelled over to my husband "how's it look?" His response was "very hip, you should buy it". While I removed cap #1 to try cap #2, I saw a young woman in the mirror in the background with an aghast look on her face, like she'd just seen an alien. As if I should not have shown my head at all. I thought she was going to pass out. <br/>
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I broke out in hysterical laughter. Not a lot of difference between a bald female and a bald male. One is accepted in society, no questions asked, the other isn't. How stupid.<br/>
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I enjoyed EVERY MINUTE OF IT.<br/>
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The only reason my head was covered was because it was cold outside today. Come summer, this alopecian will rock my Royal Baldness. <br/>
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Love yourselves; Dig your "selves".<br/>
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Lili<br />
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P.S.: Purchased 3 caps!Coming out bald!tag:alopeciaworld.com,2011-03-13:2022678:BlogPost:5808802011-03-13T21:24:44.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I had my "coming out" for lack of a better term last night. One week ago yesterday I had what was left of my hair buzzed off. Alopecia claimed most of the hair on my head.<br></br>
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I am a singer/songwriter. I had a gig yesterday at Philadelphia's premiere listening room, The Tin Angel. I opened for Vance Gilbert. I've played the Tin many, many times, but never without hair. While I've been walking around bald for one week, this was the first time a large amount of people who both were fans…
I had my "coming out" for lack of a better term last night. One week ago yesterday I had what was left of my hair buzzed off. Alopecia claimed most of the hair on my head.<br/>
<br/>
I am a singer/songwriter. I had a gig yesterday at Philadelphia's premiere listening room, The Tin Angel. I opened for Vance Gilbert. I've played the Tin many, many times, but never without hair. While I've been walking around bald for one week, this was the first time a large amount of people who both were fans and knew me and who didn't know me at all would see me, totally without hair on my head.<br/>
<br/>
A friend Marie Gabrielle, who is also a performer gave me a great suggestion. I’d told her part of me wanted to say something about my being bald, part of me didn’t. She advised I didn’t have to explain anything, but in an effort to get away from cancer questions, she said I should wait til after I’ve done about 2 songs, thank the crowd, ask if everyone was having a good time and then say “hey, nobody’s said anything about my new look”. I thought this to be a great idea.<br/>
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I did just like my friend Marie said and the crowd hooted, hollered; one guy yelled “hubba-hubba”, another yelled in Spanish “muy bonita” (tr. "very pretty" which was shocking). I felt like a million bucks. My energy was very high as well. After about the 3rd song, my bassist leaned over and said to me “there’s something magical tonight; I think its your head…”.<br/>
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Two friends I had told I was going to shave my head brought me gifts – one crocheted me a Kufi (traditional African cap) and it looks AMAZING (thank you Liz) the other brought me an incredible scarf (thank you Cindy). Only one person, who I didn't know asked me if I was ill, and she asked in a round-about way. She asked “did you have a choice in your being bald”. My response was “No”. Then she said, “that’s too bad when you don’t have a choice”. Then I said to her, oh, I’m not sick or anything, I have alopecia, a condition where your hair falls out. I had no choice but to look better because continuing to look like I did with the hair I had left was awful. I feel great”. She smiled. I smiled back.<br/>
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I feel free. I feel out. The clubs’ manager in the beginning of the night noticed I was wearing a buff and came into the dressing room and said “that looks interesting”. Then I pulled it off. She then said “wow, if my head was the same shape as yours, I’d shave it”. She asked if I was ill and I told her no, just Alopecia. She asked me what Alopecia was.<br/>
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Its incredible to me how very few people know about alopecia areata. It is more prevalent than we realize. Unreal. I don’t mind educating and making people aware. I’m sure I’ll have my moments. I think the transition is in one’s self; if you’re confident and feel good it transcends the fear and the unknown. I think this is what freaks people out most. If they only bothered to take a moment and educate themselves dealing with this, along with other physical ailments and issues humans have would not be so heartbreaking. I consider myself lucky that I feel good with all this. <br/>
It was windy today. For the first time in years, I enjoyed the wind, the breeze, and I didn’t worry about my hair shifting, the spots showing. Yes!<br/>
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Here are some photos from last night's show:<br/>
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116850590?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116850590?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br />
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116850131?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116850131?profile=RESIZE_1024x1024" width="750" class="align-left"/></a><br/>
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220374590?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2220374590?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br />
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220375110?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2220375110?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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I am fortunate on many different levels. That my music transcends my baldness; that the fans new and old accepted me the way I am. <br/>
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Onward and upward.<br/>
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Lili (aka Eulalia)Done...bald...transitioned...spot-less...liberated!tag:alopeciaworld.com,2011-03-07:2022678:BlogPost:5745242011-03-07T02:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I will forever remember Saturday, March 5, 2011, the day I buzzed off what appeared to look like a light, scattered bird's nest on my head. It was amazing. I returned to my hometown, NYC, to my hairdresser of 19 years, Skipper Edwards. I initially went to Skipper because he was my sister's hairdresser; he was good with hair of women of color. Being bi-racial my hair was kinky, although it could be blown out. He proceeded, throughout the years to cut, style my hair in an appropriate way to hide…
I will forever remember Saturday, March 5, 2011, the day I buzzed off what appeared to look like a light, scattered bird's nest on my head. It was amazing. I returned to my hometown, NYC, to my hairdresser of 19 years, Skipper Edwards. I initially went to Skipper because he was my sister's hairdresser; he was good with hair of women of color. Being bi-racial my hair was kinky, although it could be blown out. He proceeded, throughout the years to cut, style my hair in an appropriate way to hide my spots. He also recommended my dying my hair a lighter color as well, to incorporate the spots. Two weeks ago I phoned him and sent him photos (included in my photos on my profile page) of how bad the spots were that I could no longer cover them. He agreed that it was time. He also agreed, as my long-time hairdresser and friend, to do the honors of cutting down and buzzing my head. My wonderful twin sister Barbara memorialized this event by taking photos:<br/>
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Below, what my hair looked like when wet. Spots were ridiculous. <br/>
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116848085?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116848085?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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The First Cut:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116847125?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116847125?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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Getting Liberated:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116849408?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116849408?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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All Smiles:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116848468?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116848468?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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My hairdresser and friend, Skipper and me:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220376555?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2220376555?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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My wonderful twin sister Barbara and me:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116850458?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2116850458?profile=RESIZE_1024x1024" width="750" class="align-full"/></a><br/>
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When I finally saw myself bald I felt released, free. No more worrying about my spots when the wind blows. I love the shape of my head. My cheekbones - I look like my Mom when she was bald from chemotherapy. I remember telling her "Ma you have a great shaped head; I suppose mine is the same shape"; I was right. Most of all Skipper and my sister said I looked beautiful.<br/>
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When I returned home today to Philadelphia, I was very pleasantly surprised; my husband told me I looked more beautiful than before and thought that my head was sexy. My life already has taken a turn for the better. I am so happy and excited to move forward with this; no more worries, no more comb-overs. I purchased two Buffs-they're AWESOME. Keep my head warm and are funky, along with some hats.<br/>
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Last week I was on a local television show on NBC for the third time-I am a musician, singer/songwriter. The past two times I was on the show I wore hats because I feared what the cameras might show. I'm glad to have pulled it off, but I look forward to going on with my Royal Baldness. Not resting on this, I am putting together a music benefit in Philadelphia to benefit children with alopecia who would like to attend the annual camp at the NAAF Conference but cannot afford to go so that they can. All systems go; I've gotten great responses with people on board; time to shine the light, inform, educate and help others.<br/>
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Thank you Alopecia World and all of the members for letting me stand on your backs and holding me up when I was so scared to take this first step. I know it is a difficult road ahead, but with all of you, I know I will prevail. <br/>
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Onward and Upward.<br/>
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Lili (aka Eulalia - you may wonder why I sign my middle name but use my birth name on my profile; I've never used that name and never owned it; I'm "owning" it now, like I'm owning my alopecia. Time to remove the training wheels and ride the bike).Transitiontag:alopeciaworld.com,2011-02-27:2022678:BlogPost:5683762011-02-27T22:15:44.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I am excited for it to be one week from today. I'll have been "bald" for a full 24-hours by then. Its funny that its been two weeks or so since I noticed my spots got so bad that its time for me to take down what's left of my hair. I decided to go back to my hometown, New York City to my hairdresser of over twenty years to buzz my hair off. It may seem like I'm making a big deal or ritual of all this, but, it is a big deal. I was diagnosed with alopecia areata 18 years ago. Its been slow going.…
I am excited for it to be one week from today. I'll have been "bald" for a full 24-hours by then. Its funny that its been two weeks or so since I noticed my spots got so bad that its time for me to take down what's left of my hair. I decided to go back to my hometown, New York City to my hairdresser of over twenty years to buzz my hair off. It may seem like I'm making a big deal or ritual of all this, but, it is a big deal. I was diagnosed with alopecia areata 18 years ago. Its been slow going. Spots appear, they grow back, another spot appears and its been this way since, all the while the spots got bigger. As I mentioned in previous blogs, I'm a natural brunette bordering on black colored hair and I took to dying my hair blonde; it helped the spots to blend better. They finally stopped blending. It also seemed like within the span of the past two weeks, more hair has fallen out, broken off. Perhaps the follicles know, and feel comfortable enough finally letting go. Perhaps this is a feeble attempt on my part to understand or make sense of this alopecia areata, this "autioimmune disease" that no doctor can explain where it came from, why it happens and no one can cure. Fortunately, its not something that makes us "sick" like cancer, although the depression one can develop as a result can be as crippling and almost take your life away if you let it. It was difficult years ago seeing myself lose my hair. I will guess since it has taken so long to fall out, I had time to live my life, feel comfortable in my own skin, love myself enough to accept this. No doubt, while I am handling this, I anticipate some sort of "melt-down" which is probably part of this transition. I guess there will be a mourning to realize I won't have my own hair anymore. A new phase; I welcome it.<br/>
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I have been telling the few people that are friends and colleagues that I will look different the next time they see me. I am a musician (singer/songwriter), my schedule is open in this next week and I don't have another gig until two weeks from now. I am happy to say that most people I've told that I will be bald say that it doesn't matter, that its still me and that I'll probably look awesome. I hope they're right and I appreciate their positivity. <br/>
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Here is a photo of me as a kid. This photo was taken before my Mom was ready to straighten my hair. She would straighten my hair with a lye based solution. I'll bet this has contributed to my condition, although I'm not sure. I have a twin sister, her hair would get straightened too, and she does not have alopecia areata:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220374594?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220374594?profile=original" width="678" class="align-center"/></a><br/>
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Weird to see such thick, long hair and now have clumps. This next photo was me last year, on stage at the World Cafe Live in Philadelphia, still looking ok, hiding my spots:<br/>
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220375784?profile=original" target="_self"><img width="750" src="http://storage.ning.com/topology/rest/1.0/file/get/2220375784?profile=RESIZE_1024x1024" width="750" class="align-center"/></a><br/>
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The below photo was from 2008; you can't even tell I had major spots; mostly on the top of my head. Being 6 feet tall, most folks don't see the very top of my head; I was lucky. I made a point of never "bowing" after performances so no one could see:<br/>
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<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220376023?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220376023?profile=original" width="453" class="align-center"/></a><br/>
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This is where my hair was two weeks ago, and its gotten worse since:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2116844845?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2116844845?profile=original" width="640" class="align-center"/></a><br/>
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It may seem weird that I'm showing all of this, but I think its part of the "process" that will hopefully help me move forward. Next week I will post my Royal Baldness. I will feel my feelings and I will look for support here and with those I'm lucky enough to get it from. I am glad for Alopecia World; would not have managed these past two weeks without it.<br/>
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Onward and upward.My first wigtag:alopeciaworld.com,2011-02-23:2022678:BlogPost:5650432011-02-23T19:30:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
Well, in anticipation of getting what's left of my hair "buzzed" I ordered two wigs. Both synthetic, one monofilament. I tried to match the color I'd been wearing for a few years now.<br></br>
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I didn't think I'd like it and prepared myself for this. I'm in shock that I actually <em>like</em> the wig(s). Its been a long time that I felt a full head of hair on my head. I may return the shorter hair wig cause I like this one so much. May just get a second one in a different color, same style as…
Well, in anticipation of getting what's left of my hair "buzzed" I ordered two wigs. Both synthetic, one monofilament. I tried to match the color I'd been wearing for a few years now.<br/>
<br/>
I didn't think I'd like it and prepared myself for this. I'm in shock that I actually <em>like</em> the wig(s). Its been a long time that I felt a full head of hair on my head. I may return the shorter hair wig cause I like this one so much. May just get a second one in a different color, same style as back-up.<br/>
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Here it is:<br/>
<a href="http://storage.ning.com/topology/rest/1.0/file/get/2220374693?profile=original" target="_self"><img src="http://storage.ning.com/topology/rest/1.0/file/get/2220374693?profile=original" width="640" class="align-center"/></a><br/>
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Funny, about 6 years ago, my hair looked like this. I'd dyed it Blonde to help blend the spots. While this wig is probably fuller than what I had on my head at the time, it sure does look close. I'm psyched to have so many options, wigs, scarves, hats, and my royal baldness. Will post a photo when the hair comes down. Onward and upward.Acceptancetag:alopeciaworld.com,2011-02-18:2022678:BlogPost:5626692011-02-18T18:22:44.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
Acceptance is the biggest step. It would be easier if we did not need the acceptance of those we love. My husband is one of the people I fear will not accept my baldness. Next week what's left of my hair will be taken own - I can't wait. I ordered a wig in advance to see if even <em>like</em> wearing wigs. Mostly I believe I'll be rocking my bald head with some funky scarves or hats when I feel like it.<br />
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My husband replies: "as long as you're ok with it, its ok" but never answers me when I ask…
Acceptance is the biggest step. It would be easier if we did not need the acceptance of those we love. My husband is one of the people I fear will not accept my baldness. Next week what's left of my hair will be taken own - I can't wait. I ordered a wig in advance to see if even <em>like</em> wearing wigs. Mostly I believe I'll be rocking my bald head with some funky scarves or hats when I feel like it.<br />
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My husband replies: "as long as you're ok with it, its ok" but never answers me when I ask him how he will feel and if he will still love me. Bottom line, this is what I am really asking. My feeling is that if the lack of hair is the basis for a lack of attraction or love, there wasn't much there to begin with. Time will tell, but I am being bold enough to move forward. We can't help how others will feel about us. Worse case scenario, my husband may dump me; but parents? children? how do we handle this? If I stay confident and feel good I will prevail. None of this is easy by any stretch, but the work I do will make me stronger.<br />
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I wish I could wave a magic wand and make everyone on Alopecia World along with those who are too afraid to face this problem feel good enough about themselves to move forward and do what works best, bald, scarves, wigs, tattoos, etc. But it starts inside of oneself. Yes, I too am terrified, I will have to deal with be stared at, laughed at, asked if i have cancer, etc. But for me this will be easier than hiding. I've been hiding my head for so long, its ridiculous.<br />
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The first step, accept yourself, embrace what you have - in our case, bald heads, the rest will take care of itself.The time has cometag:alopeciaworld.com,2011-02-15:2022678:BlogPost:5602562011-02-15T20:50:21.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I have had alopecia areata since after the birth of my son some 20 years ago. I had the usual treatments, Rogaine before it was over-the-counter; the shots to my scalp. All worked for a short amount of time. I am a dark-brunette, bordering on "black" haired woman. I have taken to having my hair dyed blonde (single process, no bleaching) as you notice the spots less with lighter hair, it all blends. But its not working that well anymore.<br></br>
<br></br>
I am a musician and in the public eye. I saw…
I have had alopecia areata since after the birth of my son some 20 years ago. I had the usual treatments, Rogaine before it was over-the-counter; the shots to my scalp. All worked for a short amount of time. I am a dark-brunette, bordering on "black" haired woman. I have taken to having my hair dyed blonde (single process, no bleaching) as you notice the spots less with lighter hair, it all blends. But its not working that well anymore.<br/>
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I am a musician and in the public eye. I saw photos of myself from a gig I had a week ago, there was no getting around the spots that I can no longer "cover". I became enraged and sad at the same time. With this condition, one hopes that it "...won't happen to me, it will grow back...". On top of everything, this week I woke up and noticed I barely had any hair in the back of my head.<br/>
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Its important with this condition to have people around you that support you that will tell you the truth. I took photos of my head in various positions which show how bad my spots have become. God graced me with thick hair; the little bit of hair left I have used to attempt covering the spots; it no longer works.<br/>
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After taking my photos I sent them to my twin sister, who, by the way, does NOT have alopecia areata and we're identical, one minute apart. My sister was honest, she called me and wrote back "it's time". <br/>
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I have made an appointment with my hairdresser from NYC, where I used to live (I live in Philadelphia). He knows the shape of my head, he knows of my alopecia. He will cut my hair all the way down and see how I look. I suspect the spots have become so large, in which case I want him to buzz my head. I give him that honor; he's been my hairdresser/friend 20+ years.<br/>
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I am looking forward to this liberation. The past 3 years of my life have been difficult, having been laid off from my day-job. While I pursue my art, my heart's desire, music, I still have to pay my rent, eat, sustain my life. Its been very difficult not being able to find work. Unemployment is exhausted. I have $0 income, except for what little I may make at gigs which is not much at all.<br/>
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I am going to first handle not having the bit of hair that I have, accept myself THEN deal with looking for a wig. I may not like wigs; I may not like how it feels. Then again, I may get Wendy Williams "wiggy" and have a blast with it. I won't know til I get past the first step, my head, my baldness. All I know is the time has come for me to confront this.<br/>
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My husband thinks I won't be able to find a job moreso without hair. I disagree. Yes, some people will say horrible things or think I have cancer. But I believe my feeling good and not constantly worrying what I may look like in any given moment, while I attempt to smile and move forward, will open my doors for me. He also believes it will negatively impact my music career. I doubt that it will, but if it does, I have to take care of this situation, and it will mean I've gone as far as I can go with it. For my remainder of time on earth, I want to breathe easier. <br/>
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I am always seeking a glass reflection when I walk down the street and there's a breeze; I feel sheer panic, worried the "spots" will show. This summer I went to a pool with my sister, and I was so hot, but concerned about getting in the water and wetting my head. You could really see what little hair I have when my head is wet. I am so tired of living this way. It takes a lot of energy and effort to continue living this way. I think that my husband won't like my baldness and that's something he will have to deal with and that I will deal with. Perhaps he won't be attracted to me anymore. Well, that means that he doesn't see the real "me" and I probably don't need him. Yes, this is a very strong statement, but it lends credence to the conviction I am feeling about myself. Bottom line: its just hair. I'm not "sick", I am very alive, healthy and have much to offer the world; I'm still "me". <br/>
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I am grateful for Alopecia World. I am grateful to my friend Crowned Regal who first told me about this site (she also has alopecia). I wish for all of us to feel good and move forward. I need a great deal of information and hope to find it via this site.<br/>
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I will post a new photo March 5 or thereabouts.<br/>
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With much gratitude and light.<br/>
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Eulalia Lili Anel<br/>
"This above all else, to thine own self be true."Teach Your Children Well; An Alopecian in the World, Still.tag:alopeciaworld.com,1999-11-30:2022678:BlogPost:7334461999-11-30T17:00:00.000ZLili Añel (aka Eulalia)https://alopeciaworld.com/profile/EulaliaAnel
I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.<br></br>
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This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.<br></br>
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A table next to us, a large family with about 4…
I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.<br/>
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This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.<br/>
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A table next to us, a large family with about 4 children, 3 girls, 1 boy, mother, father and perhaps an aunt. The smallest child, about 6 years old yells out <strong>"Look Daddy"</strong>, while pointing at me, bald-headed me.<br/>
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I anticipated a "that's not nice, you should not point, apologize" or an "I'm sorry" from the parents. I got neither. Being the bigger person I smiled and said to her "I'll bet you've never seen a bald headed lady before..." The mother says "oh, her grandfather's bald..." and my response was "her grandfather's supposed to be bald, he's an old man".<br/>
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This child acted this way because her parents act this way; I don't have a doubt in my mind.<br/>
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I was taught when I was a child that pointing at some thing or some one was "rude" and that I was never to do it. I have become comfortable and accustomed to being bald, I have forgotten that I am hair-less on my head. Walking around the ship, many a time I wondered "why is everyone staring at me?" Oh yeah, I'm bald, I'm not supposed to be bald. One tires of smiling, of being the "bigger person". I reached a point that I'd stare back and they'd stop. I'm 6 ft. tall; with my heels, I'm about 6'2". They'd stop staring, alright.<br/>
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On the beach in Bermuda a woman walks up to me, a total stranger, and she asks <strong>"when was your last chemo treatment?"</strong>. I responded "excuse me?" as those were words I am not used to hearing. She repeated her q