rob
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Latest Activity

Joja101 and rob are now friends
Mar 31
rob replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Aren't you likely to pass autoimmune diseases to your children (not just alopecia)? I have chosen not to have children personally."
Mar 15
rob replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"They say 80% of people are going to get the coronovirus because of the way it spreads. It's impossible to avoid. "
Mar 15
rob updated their profile
Jan 5
rob replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I have access to pure ruxolitinib phosphate and tofacitinib citrate powder. Purity verified. I made a combo topical of 2% rux and 2% tofa for myself. I am considering making 10mg capsules of each compound and helping out some people if there is…"
Jan 5
rob replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Topical creams are ideal for a small area like the eyebrow or a vitiligo patch on your face so you don't have to shut down your whole immune system. Taking these drugs orally just masks the symptoms too. It doesn't cure it. Shutting down…"
Jan 4
rob and NYGuy are now friends
Dec 18, 2019
rob replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ruxo is insanely expensive. What I did was import the raw powder along with tofa, verify that they were real and combine them into a topical cream which I made myself. It could be put into capsules of course."
Dec 17, 2019
rob replied to Anna's discussion For those of us on ruxolitinib (for whom Xeljanz did not work)
"Maybe I shouldn't have opened my mouth. I keep forgetting that normal people don't self medicate. Sibutramine worked well for me but it's a prescription drug and I believe it's banned so you would have to buy it from a sketchy…"
Dec 9, 2019
rob replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Those of you who find tofacitnib ineffective on its own could consider combining it with ruxolitinib."
Dec 9, 2019
rob replied to Anna's discussion For those of us on ruxolitinib (for whom Xeljanz did not work)
"If you are putting on weight it's because it's making you hungry and you are consuming more calories. Gaining weight usually increases LDL. You may want to look into appetite suppressors or change your diet. "
Dec 8, 2019
rob replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm betting you are overthinking it. Going from 15mg to 20mg wouldn't make you lose more hair. We don't even know what trigger the breakouts of these conditions in the first place. Could be a million things."
Nov 8, 2019
rob and nb3689 are now friends
Nov 7, 2019
rob replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think you are reading too much into the laws and regulations :) Getting stuff through the customs is easier than you think. In the worst case they get seized and destroyed."
Nov 7, 2019
rob replied to Sj0909986's discussion Treatments coming up
"Have you thought about self medicating? As for blood tests it should be easy in the UK."
Oct 29, 2019
rob is now a member of Alopecia World
Oct 20, 2019

Profile Information

Relationship Status:
Single
About Me:
I've got vitiligo and AA
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 5:00am on May 21, 2020, Adudé Fafa Akue said…

Hello,

How is everything with you, my name is Adudé Fafa Akue, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on:(adudeakuea@gmail.com) for the full details.

Have a nice day

Adudé Fafa Akue.

 
 
 

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