maremo
  • Female
  • Eugene, OR
  • United States
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  • CarolJ

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Latest Activity

Anne Williams commented on maremo's blog post Considering shaving my head
"I shaved my head last year and don't wear wigs. I live in southern Arizona and just don't need all that heat on my noggin so I wear hats and/or scarves. This is mostly to protect my head from sunburn. I felt free when I finally shaved.…"
Jul 4, 2018
maremo replied to DianeM's discussion Decision to Shave in the group Frontal Fibrosing Alopecia
"ATB, you are an inspiration!"
Apr 27, 2018
maremo joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Apr 27, 2018
Marty commented on maremo's blog post Considering shaving my head
"Good morning! I shaved my head for the first time 8 years ago and found it to be very freeing.  I don't shave to the skin but with an electric clipper on the closest setting (using no guides that come with it). I maintain it that way every…"
Apr 7, 2018
CarolJ and maremo are now friends
Mar 18, 2018
maremo posted a blog post

Considering shaving my head

Greetings, I have Frontal Fibrosing Alopecia. It is an insidious disease. I am on meds, but I want to stop. I have so much anxiety about my hair. Watching the slow progression of my hair loss and wondering when the next flare will occur and how much it will take causes me to despair.   I have started to wear my hair up. I want to wear this with pride. I feel like shaving my head will rid me of some of the anxiety of waiting for it to go. Tell me about your experience of shaving your head. I…See More
Mar 8, 2018
maremo liked Christinarose's photo
Mar 8, 2018

Profile Information

Relationship Status:
It's Complicated
About Me:
I was diagnosed yesterday, 7/24/2017, with FFA. Feeling rather despondent.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Maremo's Blog

Considering shaving my head

Posted on March 8, 2018 at 1:31am 2 Comments

Greetings, I have Frontal Fibrosing Alopecia. It is an insidious disease. I am on meds, but I want to stop. I have so much anxiety about my hair. Watching the slow progression of my hair loss and wondering when the next flare will occur and how much it will take causes me to despair.   I have started to wear my hair up. I want to wear this with pride. I feel like shaving my head will rid me of some of the anxiety of waiting for it to go. Tell me about your experience of shaving your head. I…

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