"Hi Bon, I message you my number, is at bottom of my messages and going to again (right after this). I get a lot goin on and with doctors and hope the injections work for you. I seemed to have dermatologists chase my spots and areasmissibg hair. In…"
"Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails…"
I am sorry for typo with my first message to you and how may have missed some of mine/delay. I have messaged you my number and been seeing if there are any scheduled upcoming WA meets without luck yet. Please call or text me. As I am…"
"Hi Bon Thanks and sorry delay and you didn’t see my msgs on Seattle group page. I am sending you a private message with my number, on this site you can once people accept friend request. Or least that’s my experience and…"
"Good Morning Lea, this is Bon still not sure how this site works. I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it. I REALLY want to connect with the Seattle group…"
"Yes, I would attend. Just been diagnosed with Lichen Planopaliris. Tough to hear. I live in Everett and don't care for driving long distances but I will. I've tried to get responses on this site to no avail. Perhaps…"
"PSS Bon and all who are interested :
NAAF has meets and local leaders for support and lists of people in WA. NAAF.org June S. email@example.com
also checkout AlopeciaSupportGroup.org for upcoming meets /events.
If I hear of any will share too."
Thank you ! I’m sorry about diagnosis I don’t know that one and shall research. I haven’t had an official term for what I have, since I got disillusioned with the dermatologist - it was super expensive and they didn’t…"
Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls? I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'. Be well, Bon
Good Morning Lea, this is Bon still not sure how this site works. I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it. I REALLY want to connect with the Seattle group but am not getting a response from the contact. Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line. They are Jon Renau....around $300 with tax? If you have any suggestions re: Thank you for friending me, Bon
Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you for your help.
There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson 503.804.5315. I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.
And thanks for wanting to read my book! Let me know how you like it.
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