I received an email a few days ago saying that you posted on this site but I can't find anything recent. Did you? May I ask the nature of your post as I am
interested. I did post that I joined the Scarring Alopecia Holistic…"
"Hi Bon, I am sorry missed this and didn’t have lots of time when I (finally ) connected on phone...hair stylists(/for others reference too): a) EchoCollierWho worked @ WilliamC. I’ve heard and seen is awesome !…"
"Hello know is is a older post, but thought I'd list few resources for anyone in need:
NAMI National Associal Mental Illiness is good org, that chapter locally and even support groups. They may have good referrals. Also know if ever feel really…"
"I'd say wear shortest possible wig / less hair to worry about. Also I used headbands, have used tape and one time with sweat came off and my friend just look at me with his mouth open. :/ but I just tried to laugh it off. Now I often wear…"
"I like liquid liner and have friend who's shared using tanning lotion helps make eyes color stay. She had tattooed but he colors faded and said the self tanner gives a nice dark brown color, that stays. She paints it on the brows."
"Hi Jeffrey and Bon,
Thanks, am sorry dealy. With all going on I have to save my limited data for work and can't do video group meet.
However, maybe you could set up. Also NAAF is going to have their annual conference online end June instead of…"
"Hi Lea, how are you? In May of 2020 might be possible most likely via Zoom or other online medium. I am still very interested and curious about my type of Alopecia....any type of Alopecia. I want to be supported and supportive.…"
"Bravo dollhead, glad you faced your fear and all is okay!! I know the feeling and also haven't gone completely without in public more than few minutes after NAAF conference. Wish you a great rest of your week and high five. Take good care and…"
Hi Lea, I'm sorry I've been so dangned busy.....yesterday my naturopath gave me my first LAI injection....the LDN seems to have slowed the shedding of what I have left of hair, but left upper eyelash, outer edge of right eyebrow and nails are being affected that latter 3 in last 2 weeks! Anyway, where do I find your number to get in touch through texts or calls? I have 3 new sites I'm learning to navigate and just created a FB account, which I wanted to avoid, but they all use it. Please advise and THANK YOU for being there, you've no idea how much it means. I am not freaking out over this but I do want to do everything I can to arrest the 'issue'. Be well, Bon
Good Morning Lea, this is Bon still not sure how this site works. I have been so busy learning about my 'condition' that I haven't been able to spend enough time perusing it. I REALLY want to connect with the Seattle group but am not getting a response from the contact. Not sure why. Eventually I would like to start a group North of Seattle from say....Millcreek to Standwood or Arlington. I am in the process of learning about alternative treatments (naturopath) is trying LDN and LDA very interesting possibilities! Faux hair of course, nothing new to me as I was a hairdresser and have loved faux hair since then. I have 9 wigs of various colors and styles, fun. Problem is as I lose hair my scalp is so tender! Am looking to have them retrofitted with silicon around hair line. They are Jon Renau....around $300 with tax? If you have any suggestions re: Thank you for friending me, Bon
Hi Lea, that you for your reply. It is my 7 year old granddaughter who has been recently diagnosed My daughter has several questions and wanted to attend a event while she is here. You see they live in Dubai, she comes once a year to stay with me for a few weeks.They will be here next month for only 16 days. I want to give them all the help and support that I can, but thats hard when they live so far away. So I have been doing my own research , reading post and learning so much from kind people like you and others in this group. She has ask me if I can find a Allergist in our area, Tacoma/Seattle. She has taken my granddaughter to two Derm doctors already there, but wants her to get checked out here in the states. Do you know of any? Also thank you for telling me about the up-coming meet up, but they dont arrive till August 9th . Thank you for your help.
There are a number of groups in Portland. On Alopecia World, there are two you can join: Active Alopecians in Portland, and Pacific Northwest Alopecians. NAAF lists this support group here in Portland: Denise Clopton/Brooke Ferguson 503.804.5315. I can't find the contact information on the group I have met with in the past! Sorry, I will try to find it for you.
And thanks for wanting to read my book! Let me know how you like it.
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