"I have also been recovering my burnt hair after straightening for a long time. First, I picked up a hairstyle on burgundy hair https://lovehairstyles.com/burgundy-hair-shades/ Then I cut off the ends of my hair. And improved their…"
Alopecia World
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ken123
- Female
- Oceanside, CA
- United States
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ken123's Discussions
When Will XELJANZ Be Approved?!
Started this discussion. Last reply by ken123 Sep 8, 2020. 2 Replies 0 Likes
Hey! Does anyone have any idea when Xeljanz will be FDA approved for Alopecia Areata? Thx in advance! Continue
Regrew Hair Twice Within Three and a Half Years
Started this discussion. Last reply by ofra Oct 8, 2020. 5 Replies 0 Likes
Hey everyone! Just thought I would make this post to document not only for myself but for others out there looking for anyone else going through something similar to what they are going through. I…Continue
Cute Swimming Caps?
Started this discussion. Last reply by Anita Apr 30, 2019. 2 Replies 0 Likes
hey guys! Any suggestions on cute things to wear on your head while swimming or at the beach? Thanks!Continue
Hair Cycle Question!
Started this discussion. Last reply by ken123 Sep 12, 2018. 2 Replies 0 Likes
Hey Everyone!I have a quick question that has been bothering me for the last few days so I thought I would ask it here since I can't seem to find the answer anywhere else.So I'm aware of the…Continue
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Latest Activity
"very difficult to restore hair"
"Hi ken123. I also have AA. I saw your comments about xeljanz. I was prescribed xeljanz a few years ago through the pfeizer assistance program, they sent me the prescription for free for a year. I stopped taking it in summer of 2018 because we got…"
"I will definitely do this. I actually have been speaking to them about the patient financial program (Xelsource). They approved me for the co-pay card!"
"That is a very good question. You could call Phiezer and ask them, They have a 1-800 number and maybe ask to speak to someone there that works with Xeljanz. I would be very interested myself.
Stay safe"
"Thank you for your advice. You have shown very good work. How do you like these haircuts? What do you think?"
WHEN WILL XELJANZ BE FDA APPROVED?
Hey! Does anyone have any idea when Xeljanz will be FDA approved for Alopecia Areata? Thx in advance! See More
"Try Xeljanz, it really works!"
"Good day to you, I am really happy to hear that you had success in regrowing your hair. Very good experience that I might want to come back to when I feel demotivated or down. Perhaps now you might be interested in some new haircuts here that will…"
Regrew Hair Twice Within Three and a Half Years
Hey everyone! Just thought I would make this post to document not only for myself but for others out there looking for anyone else going through something similar to what they are going through. I got diagnosed with AA when I was 21. Within 4 months, I lost all my hair. 10 months later, all my hair grew back and I had a cute little pixie cut! 4 months later my hair began falling out again and within 4 months, I lost all my hair again. Within 4 months, I was rocking a pixie cut again! 7 months…See More
Models with Alopecia
This community is for models and aspiring models with alopecia to share their insights, tips, and even projects. Photographers and other creatives are also welcome here.SAFETY FIRST:If someone approaches you on this group or out of this group to model for them, please do your due diligence. Make sure that you look at their official website and portfolio and that they indeed do professional work. It should not look like something you could do with a cell phone. Also consider bringing a…See More
"Hi, I wore a ball cap on the beach (Under Armour), the rest of the time i wore a bandana. I went fishing on a boat in Punta Cana last week and wore a swim hat from Nammu Hats in Canada. I worked awesome. See…"
"I really love my giant sun hats, but they're not so practical, especially on windy beaches. The brim of ball caps can get in the way depending on how your're laying and I always feel like I'll get an awkward tan where the little hole…"
Cute Swimming Caps?
hey guys! Any suggestions on cute things to wear on your head while swimming or at the beach? Thanks!See More
Profile Information
- Relationship Status:
- In a Relationship
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (1 comment)
- At 12:32pm on September 23, 2020,
Karaholly said…
Hi ken123. I also have AA. I saw your comments about xeljanz. I was prescribed xeljanz a few years ago through the pfeizer assistance program, they sent me the prescription for free for a year. I stopped taking it in summer of 2018 because we got pregnant and continued to save the bottles they sent. I am still breastfeeding so i still cannot take the medicine and am planning to get pregnant and breastfeed again... so i don't see when i will be able to take this medication. Anyways I have 7 bottles that were prescribed to me and i'm looking to just give them to someone. They say they expired in 2019, but honestly i doubt they're actually expired. If you want them I'm not looking to charge anything, i just want to give them to someone who will actually use them. I know it sounds weird a stranger offering prescriptions lol but if you want them they're yours. I am in Newport beach, i see you're not too far away in oceanside. I'd be happy to mail them for you. let me know either way. thanks!
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