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desperatedanyell
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JAK inhibitors trial
Started this discussion. Last reply by kimk Apr 18, 2018. 2 Replies 0 Likes
HiHaven't been on here for a while as the UK trial was stopped due to lack of funding and so I was too upset to get back in touch. Can you tell me if you are able to get topical JAK inhibitors in…Continue
Any luck with JAK inhibitors anyone?
Started this discussion. Last reply by Patricia Oct 31, 2016. 6 Replies 1 Like
Hi.I am in the UK and my dermatologist has told me that JAK inhibitors have been very effective in the US. He is going to put me forward for a trial in January. I would like to know if any of you…Continue
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Latest Activity
"Good question. I never seem to get any replies so thank you for noticing. I am really struggling here for some help as no treatment in the UK"
"The flu vaccine definitely caused my horrendous attack 4 years ago. Just wish I had done my research first"
"Hi I had the Pfizer vaccine 5 weeks ago. I am female aged 66 with AU I was promised 3 clinical trials over the last 4 years but they all got put on hold and then COVID came along and so I am not on any medication. I haven’t had any side…"
"I have no issues so far. My main concern is acquiring an additional autoimmune immune condition. I am currently 8 days in from the vaccine so my immune system hasn’t been given time to kick in properly yet so I’m keeping my fingers…"
"Had it this morning, arm is aching and headache but that is all so far. Had a good chat to GP but, although they don’t expect any problems regarding autoimmune but they don’t really know as the trials were healthy adults. I will see how…"
"I am having the vaccine tomorrow Sunday 17th January I have done so much research and frankly have got nowhere with it. I am concerned about the vaccine as I have AU but I am so anxious I will catch Covid so trying to weigh it all up is…"
Profile Information
- Relationship Status:
- Married
- About Me:
- I am 62 but have had Alopecia on and off since the age of 27. Lately it has taken a turn for the worse and fall out has accelerated
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (1 comment)
- At 5:59am on October 4, 2018,
Patrick said…
Hi
I found out that the Tofacitinib is available on the NHS to treat Arthritis so wondering if it’s available for Alopecia would you know?
I am from the UK also.
Patrick
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