deb
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  • Hanover, NH
  • United States
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My little boy who is seven years old has developed Alopecia totalis. It has been devastating for our whole family. It seems so unfair! Now, everyone who sees him thinks he's gravely ill. How do I deal with this and how do I help him?
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (6 comments)

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At 6:52pm on April 22, 2012, LeslieAnn Butler said…

Hello and welcome, Deb!
I'm sorry your family is having such a difficult time. Let me know if I can help.
Leslie Ann

At 12:05pm on April 8, 2012, Cindy said…

Hi Deb, did you get the email with the info. Let me know if you have any questions or would like to join us. Our next meeting will be on May 5th at Newton Wellsely Hospital in Newton Mass. (located off RT 128)

At 1:17pm on April 3, 2012, Cindy said…

I sent you an email to you inbox with the info. Cindy

At 9:48am on April 3, 2012, BTB (John) said…
How you coupon is it making any sense yet?
At 1:25pm on April 2, 2012, Cindy said…

HI Deb

Welcome to AW. This is a great place for support. I also run a support group in Mass through the Childrens Alopecia Project if you are interested in joining us for a meeting. We have a date next Sat April 14th to go to Kidsports in Stoughton Mass. If you are interested please contact me for the info. There will be a few boys your sons age there and new families. Visit www.chidrensalopeciaproject.org. They are great!
Cindy

At 2:13am on April 2, 2012, BTB (John) said…

I watched my wife go through it an it hurts, i made mistakes was too attentive not attentive it was an emotional roller coaster. We never had the web and were blind but this site and others has helped us in so many ways. Stay Frosty

 
 
 

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