"Hi there! So much love to you and your son. I just released a children's book about alopecia for ages 4-9 that I have created to help start conversations and spread awareness about alopecia especially in the classroom. You can read the…"
i am a 30-something mom to two beautiful boys (my oldest was just diagnosed with Alopecia - he's 6 years old). i have a wonderful husband who makes me feel beautiful everyday.
in the Spring of 1996, i went home for the summer after my college exams were over. my mom noticed that my hair looked thin. i was diagnosed with Alopecia in June of that year. by August, i was completely bald. i had just turned 22 years old.
while my hair was falling out and for the first year i was bald, i thought my life was over. my favourite part of myself had always been my long, blond hair. when it fell out, i didn't know how i could continue without it.
my parents took me to many places to try wigs on, and none of them made me feel better. i had the delusion that i could find something that made me look exactly as i did with my own hair. i soon realized that it was an exercise in futility, and was crushed. i spent so many hours crying in my room, wondering how i could face the world ever again.
i had an idea one day, and asked my incredibly talented mother to crochet me a "skull cap". what she came up with is what i still wear out in public. i've never worn a wig...i just wasn't comfortable with it, and felt more at ease if my baldness wasn't hidden
i made the tough decision to go back to school in September after losing all of my hair. it was one of the hardest things i've ever done, but probably one of the best. i knew if i didn't do it then, i was never going to go back.
i met my husband at college a year later, and the rest is history.
i've come to terms with the fact that i will most likely be bald for the rest of my life. i've tried a few treatments like DPCP, but Alopecia Universalis has a low rate of successful regrowth.
Hi Cate- I met a lady who does very professional work using special pigments for eyebrows- don't go for the Tatoos! She is in Oakville and area and works with cosmetic surgeons etc. She has worked with many women with Alopeica doing eyebrows and eyelashes!
Her name is Ann-Marie at www.finessepermananentmakup.com
Hi, I'm Santi, I'm new here and I have alopecia universalis since I was 3. I never had the chance to contact with other people like me and I would be very interested to share esperiences and stories with other members of this comunity, cause I think that helps a lot, so if you'd like to I'd be glad to chat with you or mail you anytime you wish. I'm just looking for friendship, cause I care about the stories and the people. That goes for everyone who reads this post too.
Hope to know from you very soon :) S.
I had my eyebrows tattoed a long time ago and I just wasn't happy with them. They didn't look natural (being an artist, that's important to me!) and they faded pretty quickly. I now use "Beau-Ti-Full" temporary "tattoo" brows. They are very natural looking and I just love them. You can find them on the naaf.org Marketplace.
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