Valerie Tirro
  • Female
  • Palmyra, NJ
  • United States
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Valerie Tirro's Friends

  • Marianne Horvath
  • Frank Pratt
  • soniamarry
  • Devin
  • Pat Latina
  • Peggy Knight
  • Sandra Dubose-Gibson
  • LeslieAnn Butler
  • Beth

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Profile Information

Relationship Status:
In a Relationship
About Me:
I am 34 and have had Alopecia for almost 4 years now. Started out as patches and drastically changed! I cry alot and do not feel good about myself knowing there is nothing I can do. But I somehow find the strength to move forward. It is so hard. I have lost all my hair including eyebrows, eyelashes, body hair, etc. I do have treatments done...the light box, but have been doing it for over a year now and is $40 every time I go. Can't afford it....who can? It does help and have had very little regrowth.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (9 comments)

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At 11:59pm on November 11, 2010, Devin said…
Hi Valerie,
Thanks for the friend add. I hope things are going well for you.
At 12:04pm on November 8, 2010, soniamarry said…
awesome pic!
At 12:04pm on November 5, 2010, Peggy Knight said…
Thank You! I love your hairpiece as well. I am wearing the new alternative to a vacuum and I love it! It's called the Gripper and its the best piece that I have worn in 50 years!
At 11:27am on October 15, 2010, soniamarry said…
It looks fabulous on you. I think you are definitely wearing it well! :)
At 6:41pm on October 14, 2010, soniamarry said…
nice new pic!!! :)
At 11:31pm on September 7, 2010, Sandra Dubose-Gibson said…
Thank you Valerie. I appreciate the love. Many blessings to you and yours :)
At 3:38pm on September 6, 2010, alletsallets said…
Welcome to Alopecia World, Valerie! :) Glad you found us!

I've found this site to be extremely helpful and full of compassionate people. If you ever need to chat, feel free to message me, okay? :)

God bless!
At 12:45pm on September 3, 2010, LeslieAnn Butler said…
Valerie, I'm sorry you are having a hard time! I know how hard it is. I've had alopecia for 30 years. I want to reassure you that it DOES get better. I don't have much problems with emotions any more. I did have one experience recently with a man who I dated a couple of times and then told him -- and it was as if I had told him I had the plague! A glassy look came into his eyes and he never talked to me again. I wasn't hurt so much as surprised -- I didn't expect that!

As to swimming, there are wigs you can wear while in the water. I would recommend a synthetic. Amy Gibson makes a "swim wig" so you might check that out.

And I think you will like my book -- there are a lot of stories from other women: inspirational, sad, funny -- the whole gamut. You will not feel alone. Let me know!

Hugs!
At 8:20pm on September 1, 2010, LeslieAnn Butler said…
Hello and welcome, Valerie!
How are you doing? I have universalis, too.
LeslieAnn
 
 
 

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