TurboK
  • Pound, WI
  • United States
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TurboK's Discussions

Thymosin Alpha 1 was a complete failure for me

Started Mar 3 0 Replies

I had gotten on a steady routine and was getting the Thymosin Alpha 1 shots twice a week as recommended by the manufacturer. Things looked promising, because I ended up developing peach fuzz on my…Continue

Thymosin Alpha 1 Update

Started Feb 13 0 Replies

Well, I have finally gotten into a rhythm and have been going to my immunologists office twice a week to get the Thymosin Alpha 1 shots. I had to set up a schedule and go in to get them done, because…Continue

Thymosin Alpha 1

Started this discussion. Last reply by TurboK Jan 23. 5 Replies

I have suffered with AU for far too long and I have kicked too many General Practitioners to count to the curb, because they refuse to help  They all insisted that I learn to enjoy having AU. None of…Continue

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Latest Activity

wendy commented on TurboK's blog post Why do I fight for a cure?
"Great to read other people  experiences from the AA family. I have been fighting with my hair for over 10 years now, it is now the worst it has ever been. I fight for a cure, to help all of us get through our day to day activities. Most days we…"
Jul 12
Patricia commented on TurboK's blog post Why do I fight for a cure?
"Buy Tofacitinib There have been 80% recovery.. It is cheap from india and has been tested and is the real thing. Don't suffer like that its heart braking to read. There are a lot of people on this site with excellent results from this…"
Apr 30
Maurice commented on TurboK's blog post Why do I fight for a cure?
"There is lots of pain associated with this post. You are not hideous. You simply don't accept yourself, understandably so. But it is up to us to deal with those feelings, that's why I don't hide behind a wig. That's why I go out…"
Apr 14
DaveW commented on TurboK's blog post Why do I fight for a cure?
"It’s been 50 years now for me with AU.  I know people more readily expose their evil side to us.  There are some advantages in that way, though it took along time for me to see them."
Mar 25
Carma Harper commented on TurboK's blog post Why do I fight for a cure?
"I lost all my hair 3years ago and it was devastating to me. I do understand your frustration!! I have tried several kinds of treatments and nothing has worked so I have learned to get thru it with cute wigs and cute scarves. My family has been great…"
Mar 22
dreamscometrue commented on TurboK's blog post Why do I fight for a cure?
"@Lola, I have been losing my hair for 39 years, now Im AU.  I still havent lost hope as I've seen some who have fully recovered with many different kinds of treatments.  If you choose to not hold your breath, you have lost hope. …"
Mar 21
Lola commented on TurboK's blog post Why do I fight for a cure?
"I have been losing  my hair over last 15 years, now I can't go out without a wig. I have hair on half of my head. My hairline starts way behind my ears and I'm all forehead.  I have no eyebrows.  I would like a cure but…"
Mar 21
Leanna commented on TurboK's blog post Why do I fight for a cure?
"I want to thank you for sharing your story. It meant a lot to know that I am not alone. I’ve had alopecia for over 20yrs., at first I was able to hide but as the years passed I eventually lost all of my hair. It’s hard dealing with the…"
Mar 19
Renee commented on TurboK's blog post Why do I fight for a cure?
"I have been AU over 30 years now as I was age 12 when it happened.  I know it can be very difficult.  I think we all respond differently to it and maybe go through different phases too.  I was thinking that you would be a great…"
Mar 18
dreamscometrue commented on TurboK's blog post Why do I fight for a cure?
"I fight because I want the part of myself back that my kids never knew.  I fight because inclusion and diversity are just labels that dont work.  I fight because future generations may not learn compassion from this generation.  I…"
Mar 18
losing_it commented on TurboK's blog post Why do I fight for a cure?
"I have had this disease for over 30 years, what I would advise you to do is to stop seeing it as "hideous", there are far more terrible diseases out there, it is awful for sure but it is definitely not the end of the world...unless you let…"
Mar 18
2above commented on TurboK's blog post Why do I fight for a cure?
"I fight because it is not just hair. It is ny heritage. It is a disease my body is attacking itself. I am tired of being told accept it. It is a disorder abd deserves as much attention to it as any other."
Mar 18
Frequenttraveler commented on TurboK's blog post Why do I fight for a cure?
"@TurboK I feel your pain, for some time now I have felt bad going to doctors and complaining about an autoimmune condition that is not life threatening like many of the others but at times it's certainly felt life-ruining. Have you tried any of…"
Mar 18
Frequenttraveler liked TurboK's blog post Why do I fight for a cure?
Mar 18
swifteddie commented on TurboK's blog post Why do I fight for a cure?
"I am bald as a basketball. I lost my hair and raised my personality! For some reason God wanted me hairless. The end result was an attitude and cost savings, I won on both sides. "
Mar 18
Gabe commented on TurboK's blog post Why do I fight for a cure?
"I too have struggled with my identity with alopecia. It wasn't until recently that I realized how often I would pass by a mirror and try my hardest to avoid looking at my head and thinning eyebrows. It took painful experiences with deep…"
Mar 17

Profile Information

Relationship Status:
Single
About Me:
It has been about 13 years since I went AU. I suffered from bouts of AA, but the shots worked, and it would go away for about 5 years. The last time, nothing worked, and I lost all my hair in a matter of 3 weeks. Shortly after going AU, I developed Psoriasis, which I have on my head as well as on other parts of my body, so I have never been without anything kind of wig or cap. I have never seen myself in the mirror without something on my head, because just the thought of it gives me a gag reflex.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

TurboK's Blog

Why do I fight for a cure?

Posted on March 7, 2020 at 12:35am 15 Comments

I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.

I fight…

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