"Thank you all for sharing. I am 63 and diagnosed with FFA on 11/5. I was supposed see my derm for a small loss at my right temple but it was postponed due to the start of Covid. The rescheduled date was them cancelled in April so finally had my…"
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Susan
- Female
- Grand Rapids, MI
- United States
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"Hi Susan and Bon! I have been hiding in my house having just lost what was left of my hair about a month ago. I'm devastated with this but am not giving up! I've had the injections for the past 3 years which seemed to be working until I…"
"Actually realized Bon is 100% Correct Candida & alopecia"
"Susan you are 100% correct link between Candida and Alopecia. I been in healthcare for over 25 years and many healthcare professionals will tell you different....please share your Candida control protocol and my family and I will be starting 1 ASAp."
"Hi Bon,
Thank you for sharing a little of your history and a lot of helpful and supportive info.
you Definitely have Not bored me! So far you have been the only one that has responded,
I guess I don’t know yet how to maneuver…"
"Hi Susan, my hair started falling out in 2017 4 months after a near fatal routine surgery. I've lost way more hair since this pic. I finally got a biopsy and am diagnosed with Lichen Planoparlis a rare form of scarring alopecia. So the doc who…"
B81C547C-0B9F-40F5-9C45-BEC4D14E8A35
"This wig? Looks incredible, where did you get it? I have been recently diagnosed with FFA, and have no idea where to start looking.
susan"
"I was recently diagnosed with FFA., one week before “Stay At Home” orders went into effect. I was giving a topical, oral oxide , given a 6 week follow-up appointment , and told to find a support group.
I guess I…"
Frontal Fibrosing Alopecia
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
New person needs help, advice, support!
I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.And then 1 week later , corona virus happened !so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also canceled.So I am at home now for eight weeks unable to go out and investigate hairpieces , wigs, meds, etc.Recently, I read on someone’s…See More
Profile Information
- Relationship Status:
- Married
- About Me:
- Retired teacher, that was given some scary and heartbreaking news today about having Frontal Fibrosing Alopecia
- Do you have alopecia?
- Other type of alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Susan's Blog
New person needs help, advice, support!
Posted on April 25, 2020 at 10:00am 6 Comments 2 Likes
I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.
And then 1 week later , corona virus happened !
so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also…
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