Sj0909986
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  • Surrye
  • United Kingdom
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  • y yules

Sj0909986's Discussions

Stem cell educator trial

Started Nov 30, 2019 0 Replies

Is anyone taking part in this trial on here? Looks really interesting.Continue

Treatments coming up

Started this discussion. Last reply by y yules Nov 24, 2019. 26 Replies

Hi all28 year old male in the UK with half a beard half a head of hair and eyebrows lashes starting to disappear.I have been following the jak trials intently but all seems to go quiet.Does anyone…Continue

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Latest Activity

Sj0909986 posted discussions
Dec 3, 2019
Sj0909986 replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"How is everyone getting on with CTP543? "
Dec 1, 2019
y yules replied to Sj0909986's discussion Treatments coming up
"Thank you, just pm’d you"
Nov 24, 2019
Sj0909986 replied to Sj0909986's discussion Treatments coming up
"I have accepted y yules"
Nov 23, 2019
Sj0909986 replied to Sj0909986's discussion Treatments coming up
"If I can get stable results on drug I would ditch the m/p but in the meantime it looks terrible if you don't buzz it every day."
Nov 23, 2019
Sj0909986 and y yules are now friends
Nov 23, 2019
y yules replied to Sj0909986's discussion Treatments coming up
"Hi Sj0909986 i sent you friend request just wanted to check something with you on that trial many thanks in advance"
Nov 23, 2019
Nor75 replied to Sj0909986's discussion Treatments coming up
"Why continue shaving and doing m/p when you get a medication growing back your hair? "
Nov 22, 2019
Sj0909986 replied to Sj0909986's discussion Treatments coming up
"So I have been in contact with the hospital hosting the trial. They sent an information pack which says you must not have micropigmentation during the study. But I have already had it done. I hope this won't affect my ability to take part. Also…"
Nov 21, 2019
Nor75 replied to Sj0909986's discussion Treatments coming up
"She is correct with JAKs. I would ask her why she prefers the Baricintib trial over the trial for PF06651600."
Nov 15, 2019
Rdd9108 replied to Sj0909986's discussion Treatments coming up
"So my last derm put me on cyclosporine at what I'm finding is a high dose and didnt do a single blood test. Who knows how much damage to my immune system it did. My new dermatologist told me cyclosporine is terrible to use and that JAK…"
Nov 14, 2019
Nor75 replied to Sj0909986's discussion Treatments coming up
"It is important to check what the deal is: in the PF trial you get altogether up to three years medication and treatment. I do not believe you get that in the Baricitinib trial. So in PF you get the med until it is likely hitting the market. You…"
Nov 12, 2019
chris_s replied to Sj0909986's discussion Treatments coming up
"Do they actually need you to do the Bloodwork at the clinic that is running the trial? Maybe they could do the testing closer to you and send the results to the doctors running a trial"
Nov 11, 2019
Rdd9108 replied to Sj0909986's discussion Treatments coming up
"So question the PF trial is 2 hours away. I dont think it would be worth it to travel back and forth every month for blood work. With that being said the only close trial is baricitinib but I hear there are more sides with it. So should stay local…"
Nov 11, 2019
Nor75 replied to Sj0909986's discussion Treatments coming up
"Your welcome. Suggest you inform people in the Netherlands about this opportunity. We can all contribute to bring the medication through the trial and on the market. It is pivotal for us and particularly for our young family members and relatives…"
Nov 5, 2019
Nijhoff replied to Sj0909986's discussion Treatments coming up
"Nor75. Thank you for your information."
Nov 5, 2019

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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