Sj0909986
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Treatments coming up

Started this discussion. Last reply by Nor75 yesterday. 18 Replies

Hi all28 year old male in the UK with half a beard half a head of hair and eyebrows lashes starting to disappear.I have been following the jak trials intently but all seems to go quiet.Does anyone…Continue

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Nor75 replied to Sj0909986's discussion Treatments coming up
"It is important to check what the deal is: in the PF trial you get altogether up to three years medication and treatment. I do not believe you get that in the Baricitinib trial. So in PF you get the med until it is likely hitting the market. You…"
yesterday
chris_s replied to Sj0909986's discussion Treatments coming up
"Do they actually need you to do the Bloodwork at the clinic that is running the trial? Maybe they could do the testing closer to you and send the results to the doctors running a trial"
yesterday
Rdd9108 replied to Sj0909986's discussion Treatments coming up
"So question the PF trial is 2 hours away. I dont think it would be worth it to travel back and forth every month for blood work. With that being said the only close trial is baricitinib but I hear there are more sides with it. So should stay local…"
yesterday
Nor75 replied to Sj0909986's discussion Treatments coming up
"Your welcome. Suggest you inform people in the Netherlands about this opportunity. We can all contribute to bring the medication through the trial and on the market. It is pivotal for us and particularly for our young family members and relatives…"
Nov 5
Nijhoff replied to Sj0909986's discussion Treatments coming up
"Nor75. Thank you for your information."
Nov 5
Sj0909986 replied to Sj0909986's discussion Treatments coming up
"I have emailed the hospital hosting the trial with no response. Will keep trying and keep you guys updated."
Nov 4
Nor75 replied to Sj0909986's discussion Treatments coming up
"The clinic is called Fachklinik Bad Bentheim. They speak Dutch and are close to the German/Dutch border. They will start the trial in November. Contact them directly and they will revert. The derm in charge is Dr Tsianakas. FACHKLINIK BAD…"
Nov 4
Nor75 replied to Sj0909986's discussion Treatments coming up
"It is PF06651600, a newly developed inhibitor of JAK3 only. Highly selective and safer and more efficient than Xeljanz. It is the clinical breakthrough according to FDA."
Nov 4
Nijhoff replied to Sj0909986's discussion Treatments coming up
"Nor 75. In which clinic in Germany are you in contact with? I live in the Netherlands and like to participate in a trial of Pfizer in Germany. I have emailed Pfizer but they are not responding."
Nov 4
magmck replied to Sj0909986's discussion Treatments coming up
"Nor 75. Whst is the drug if it’s not Xeljanz ? "
Nov 3
Nor75 replied to Sj0909986's discussion Treatments coming up
"You need to contact the clinic directly. It is Brighton and Sussex University Hospitals.In each EU/EEA member states which is participating Pfizer’s assigned clinics are recruiting some 30 subjects per member state, so it will limited. Right…"
Nov 1
Sj0909986 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That's a normal crown. Amazing result "
Nov 1
Sj0909986 replied to Sj0909986's discussion Treatments coming up
"I have emailed them and signed up for the trial to which their response was that they are not recruiting in my area which it says they are. Anyway I'll keep an eye on it. "
Nov 1
Nor75 replied to Sj0909986's discussion Treatments coming up
"micropigmentation is not an exclusion. They give altogether three years free access to the new med plus free medical follow up. And it is not Xeljanz but a better and safer medication."
Oct 31
chris_s replied to Sj0909986's discussion Treatments coming up
"it doesn't list micropigmentation as a criteria for ineligibility. it's worth a try!"
Oct 30
Sj0909986 replied to Sj0909986's discussion Treatments coming up
"Thanks for the information Nor75. I don't think I would be accepted into a trial as I have had micropigmentation procedure.  Just hoping that something gets approved soon so we can limit this stress from our lives. "
Oct 30

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At 11:28am on November 6, 2019, Godwin said…

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