Having been bald on and off for many years(since I was 8) I finally decided to shave the last of my hair off and face the world shiney headed.
It took more guts than I ever thought I had as being seen bald was the worst possible thing I could think of at the time, it scared me, people hadnt been kind and I was terrified.. and now I work as an Alt/Art model using the fact I am bald to gain me work.
weird how things turn out.
There are still the odd days where I look in the mirror and want to cry, but thankfully they are few and far between.
The thoughtless comments still occasionally hit home but you would never tell.
Being told I am brave is the hardest to deal with, I'm not brave, I don't have a choice in this, so I have HAD to face up to it and for the most part now I am happy this way.
My kids are proud that their mum is bald, theyve grown up with it so to them its normal.
I just wish that sort of acceptance could be universal.
my mum was diagnosed with alopecia last year, and unfortunately she dealt with it quite badly. As a result when it came to doing my dissertation at uni, I thought looking into the affects hair loss has in women would be an interesting eye opening topic to research. I however need to carry out some interviews with women in the UK suffering from alopecia, so if you would be willing to take part let me know, if not no problem.
I agree with evrything you say. I wouldn't consider myself brave at all. If you had met me as a child you would never believe I could do anything that was in any way 'different' from other people. I do not like being different so I guess that is why I wore a wig from age 25 to 40. However life does change you and as I reached 40 a new slow growing inner confidence grew. By then my colleagues only knew me wearing a wig so to go back to school (teaching) without was completely embarrising. In fact I dreamt about it every night for 6 weeks during the summer holidays that year. I arranged to arrive late for the Ist staff meeting that every one was attending - walked in and announced I had decided to come back without my wig on, sat down and promptly burst into tears! The Ist time anyone had ever seen me upset in 10 years of working there! Everyone was bril! They said I looked great and thought it made no difference as they all knew me for who I was. The next day I I met all the children and once again the same response - they were more interested in meeting their new friends anyway. Since then I have never looked back. I rearly hear any negative comments. The only hurtful ones are when children see me sometimes they say to their parents 'Look mum that lady looks like a man' - or 'that lady has no hair'. Anyone who talks to me always admires me! Maybe some day we will meet up. I hope so.
I too have embraced my sleek look and yet just as you explained..there are days..or moments...something happens when it somehow creeps back in...feelings of sadness.Yet.. I continue to stand tall...proud and know it's me who is in control of my feelings and my life.No other can ever walk in my shoes, except for those who have lived with Alopecia.
Nice to meet you
Hi, I'm Santi, I'm new here and I have alopecia universalis since I was 3. I never had the chance to contact with other people like me and I would be very interested to share esperiences and stories with other members of this comunity, cause I think that helps a lot, so if you'd like to I'd be glad to chat with you or mail you anytime you wish. I'm just looking for friendship, cause I care about the stories and the people. That goes for everyone who reads this post too.
Hope to know from you very soon :) S.
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