Shannon
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It's Complicated
About Me:
Alright so .... I think a bunch of us know eachother but for those of you that don't ... i am Shannon I am 23 from Franklin,TN it is about 20 mins from Nashville. I am a full time student at Middle Tennessee State University. My friends are my world, i couldn't make it through anything without them, especially haveing alopecia. Iam pretty comfortable with Alopecia,though we all have out down moments!!!. besides that i am pretty much like a firecracker!!! i love to smile, dance and laugh!!! iam pretty hyper most of the time. At the conferences you can usually find me boucing around somewhere!!! Anyway ... here is my story...

MY STORy: When I was 3 my mom found a bald spot on top of my head. The Dr. said it would grow back and it did. When i was 7 I lost 75% of my hair on our move from New York to PA. Then lost almost all of it when I was 10 and moved here to TN. Some grew back but i always had patches till about high school. Probably for the past 6 years I have been Alopecia Universalis, which means I have no hair on my entire body. I have very few eyebrows but luckly my eyelashes grew back but are currently falling out again! I have to say it is the hardest stage of the disease. Having no eyebrows nor eyelashes makes you look somewhat like an alien! You have no expression to your face, what-so-ever. I guess all I can say is thank god for eyebrow pencils and fake eyelashes!!! Though it doesn't make the concept easier. Yeah, I don't have to wash my hair every morning, but playing arts and crafts on your eyes and etch-a-sketch on your face isn't the most fun in the world! (As most of you know)
Your Website (Leave blank if you don't have one):
http://www.myspace.com/tinkerbell0115

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Links for Locks Tips

Posted on April 29, 2008 at 10:14am 2 Comments

Hey guys ... my mom and I hosted a links for locks tournament afew years ago. I want to have another one this year but pretty much am going to have to put it together alone. Does anyone that has hosted a tournament have any tips or idea to give me :) Or maybe letters that you sent possible sponsors and stuff???? anything would be greatly appreciated!!!! Thanks guys!!!!

SHannon O'Neill

Comment Wall (39 comments)

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At 11:32am on April 7, 2011, Rebecca Hibbs said…
Hey Shannon!!!

I havent seen you in forever. I live in Nashville and Im holding a Charity of the Night at Sounds Game on May 31st for NAAF. Can you come?? Email me at rebeccahibbs@gmail.com. Hope to hear from you soon : )

Becky Hibbs
At 6:14am on September 13, 2009, Tracy and Amanda said…
Hi Shannon,
How are you?
Tracy
At 5:50am on December 21, 2008, Roger said…
Merry Christmas And A Happy New Year.

Roger.
At 5:17am on December 11, 2008, NannC said…
Hey Girl!!!!! What is UP!!!!! Haven't seen you in SOOO long!
At 1:34pm on September 23, 2008, Kayla said…
Hey when is your event?? I just logged on for the first time in weeks and read your response! I am terrible!
I am hoping to host my own event in the spring, probably a 5k... So I would love to see how your event works and learn a little from it!
At 7:11pm on September 10, 2008, Jennifer said…
so i logged in today and saw your face in the nu tech ad and just had to hello. how is the tournament planning going? Hope all is well miss ya
At 11:04pm on September 2, 2008, Amy Bard said…
Shannon-got your message and yes I'm not far from Nashville about 2 hours. I would like to come for the tournament but that is actually the day after my son's b'day and we plan to have a party that weekend. Let me know what you would need for a sponsor and maybe I could do that. If you have any other events in the future pls. let me know. Maybe next time I'm in Nashville we could meet up. There really is no one here in my community that I know with Alopecia. I would love to meet other people. Hope things go well with the tournament and like I said let me know if there is something I can do without being there that day. Take care and have a good week.
At 11:13pm on August 28, 2008, Kayla said…
Hey Shannon! It was so great to meet you in June, I'm already looking forward to celebrating my birthday at the conference this year. How have you been??
I would love to come out to Nashville!! I've never been!!
At 1:09pm on August 16, 2008, Karen said…
Hi Shannon! I appreciate the invitation but I have a wedding to attend that weekend. I hope it all goes well.
At 11:28am on August 14, 2008, Lindsey said…
Hey, Shannon. Thanks so much for your invitation - wish I could come. My kids have me running all over that weekend. I admire you all so much - out there doing something great like that! Keep up the good work and best of luck.
 
 
 

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