Saraloujay
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  • Liverpool
  • United Kingdom
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  • RideOrDie
  • NicoleT
  • magmck
  • singh
  • bibby

Saraloujay's Discussions

Inspiration to start my journey on JAKS!

Started this discussion. Last reply by magmck Sep 20, 2019. 18 Replies

What a wonderful inspiration your story is NicoleT.. having suffered from AA for nearly 2 years now and gone through the usual topical treatments, steroid tablets and now methotrexate to no avail, I…Continue

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Latest Activity

Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Paul. . No NiBA don't require a prescription which is what prompted many UK/Europe based folk to switch to them from Beacon.. if you email Niba they provide you with a cost/ carrier charges to Australia will be different to my charge to UK…"
Sep 23, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Bibby.. I think we may have switched to Niba JAKNAT around about the same time.. initially I did have a shedding period but this could've have been down to the stress if thinking I was running out of JAKs when couldn't get them from…"
Sep 22, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hey Bibby.. have you started in your JAKNAT as of yet?.. I think i am definitely reacting to a change if brand.. have shed approx 30-40% of my regrowth so fingers crossed its just a temp blip!.. was on 10mg of Tofacitinib but have gone back up to…"
Aug 15, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi.. I simply transfered via international bank payment.. was £360 for 12months supply from NIBA.  Can't order from Beacon anymore as they need proof of prescription which many UK folks don't have for AA/AU/AT 😔"
Aug 15, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi.. I simply transfered via international bank payment.. was £360 for 12months supply from NIBA.  Can't order from Beacon anymore as they need proof of prescription which many UK folks don't have for AA/AU/AT 😔"
Aug 15, 2023
Saraloujay and RideOrDie are now friends
Aug 15, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Bibby and all on this thread.. my NIBA order arrived in approx 2 weeks in total.. which was brilliant as I know that Parcelforce has had real trouble with some NIBA orders according to the community in the UKJaks Facebook group.."
Aug 10, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Starshine - Yes I got quite a lot of good advice from that JAK for Alopecia UK based on your recommendation - so many thanks for that!  The sales rep from NIBA (Gunjan) sent a pic of the JAKNAT boxes so this enabled me to come levels of…"
Jul 25, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Ah OK .. was just thinking you were saying you were short of JAKS so depending on what updates we both get from EMS/ tracking, was thinking I could ship some across if you are going to long without them.. think i have about 2 months supply…"
Jul 25, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Bibby.. yes had the same experience with EMS, anywhere between 1-3 weeks coming through customs (Dakhar/Coventry UK).. yes daunting switching brands but did my research on levels of Tofacitinib Citrate so as long as this is as they say.. are you…"
Jul 24, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Bibby, I have also just placed my 1st order via Niba having previously used Beacon.. ordering JAKNAT instead of TOFACITINIB .. hoping that delivery to UK via EMS us still smooth.. thanks to all on here for pointing me in the right direction.. Sara"
Jul 23, 2023
Saraloujay replied to NicoleT's discussion Xeljanz from India
"Hi Shawn's..  yes quite important to find a supportive doctor as having been on Tofacitinib for nearly 2 years now for my AA, it's my doctor who talked me through potential side effects and monitors my cholesterol, liver function…"
Mar 23, 2022
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara Lou.  Best of luck.  I don’t know if the trials are common knowledge yet.  I think Pfizer are trialling in 3 centres throughout the U.K.   I’m waiting on my GP to refer me to dermatologist and keen to get…"
Sep 20, 2019
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sarah.  Yes. I’ve started taking them and my GP has agreed to monitor my bloods fingers  crossed for us both :-) "
Sep 20, 2019
Saraloujay replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Margaret, I will definitely keep an eye out for them.. in the meantime though I think we should all move forward with our own journeys. Although I have lost all hair on my head and just noticed a patch on my eyebrow, I am determined to forge…"
Sep 13, 2019
Saraloujay liked Frida Rupert's profile
Sep 11, 2019

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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