Saraloujay
  • Female
  • Liverpool
  • United Kingdom
Share
  • Blog Posts
  • Discussions (4)
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

Saraloujay's Friends

  • NicoleT
  • magmck
  • bibby

Saraloujay's Discussions

Inspiration to start my journey on JAKS!

Started this discussion. Last reply by magmck Jun 26. 8 Replies

What a wonderful inspiration your story is NicoleT.. having suffered from AA for nearly 2 years now and gone through the usual topical treatments, steroid tablets and now methotrexate to no avail, I…Continue

Gifts Received

Gift

Saraloujay has not received any gifts yet

Give a Gift

 

Saraloujay's Page

Latest Activity

magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sarah  i would be interested in that! However spite health care as far as I know if a private set up and not NHS and may not see this as being part of their remit. However I’m interested to hear what they think :-) "
Jun 26
Saraloujay replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"So if there are no UK trials then why not try to get a small (but perfectly formed) sample of us supported by a UK dermatologist who specialises in AA/AU.. I have found a doc who practices out of west Yorkshire so I have sent him an email to see if…"
Jun 24
Saraloujay is now friends with magmck and bibby
Jun 24
Saraloujay replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi magmk great to know we are all at the same stage - I am about to visit my Dermatologist at Broad Green Hospital (Dr Cohen) to see if he will look to support me (& others maybe..) with this treatment - he has been looking for UK trials but…"
Jun 24
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara.  I think you, Libby and I are at the same stage.  I’ve ordered from Beacon and. Once I receive the Tofacitinib I will contact my GP to ask if he will monitor my blood.  I would also like to discuss with him whether he…"
Jun 23
bibby replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara, 10 boxes of xeljanz beacon pharmacy arrived in my office in Northern Ireland today. I am Dublin based resident myself working in Northern Ireland. I’ve yet to meet find GP or dermatologist support. I’m due a complete routine…"
Jun 21
Saraloujay replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Bibby, I'm in Southport, near Liverpool/ Manchester in the Northwest. Great to hear that you too are starting on this journey and spookily enough one of the things my GP suggested was to try to find a dermatologist in the UK that would…"
Jun 21
bibby replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Due to receive my beacon supplied batch tomorrow at my Uk address. 300 pills. Going to ease in an take 1 pill per day for the first 2 weeks and slowly increase. Its great to have a forum to share experience and support our journey to hopeful…"
Jun 20
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Saraloujay.  Im waiting on Tofacitinib from Beacon and once i receive them will contact My GP to ask if he will monitor my bloods.   It woukd be good for me to tell him there are other people who’s doctors are doing f the same.…"
Jun 20
Saraloujay posted a discussion

Inspiration to start my journey on JAKS!

What a wonderful inspiration your story is NicoleT.. having suffered from AA for nearly 2 years now and gone through the usual topical treatments, steroid tablets and now methotrexate to no avail, I am currently searching for JAKS inhibitors trials in the UK. Our National Health Service, which I cant praise enough, just isn't swift enough to respond to new treatments.. like a huge cruise liner it takes too much time to turn!.. So I have decided to self-fund and look to purchase the drugs you…See More
Jun 18
NicoleT and Saraloujay are now friends
May 7
Saraloujay is now a member of Alopecia World
Jun 15, 2018

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall

You need to be a member of Alopecia World to add comments!

Join Alopecia World

  • No comments yet!
 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2019   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service