Sarahmiller90
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  • Greenville, MI
  • United States
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Very new with Alopecia areata incognita (diffuse alopecia areata)

Started this discussion. Last reply by essaychief Jun 8. 7 Replies

Hello all. I'm very new to this all. I was hoping someone else here would be able to talk with me about what I have. I have alopecea areata incognita (diffuse alopecia areata). I was just diagnosed a…Continue

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Sarahmiller90 left a comment for Apple_eve
"Sorry, meant to there I was THERE when my father passed, plus 3 weeks prior. I wasnt three when he passed lol. Stupid auto correct. He passed 2 years ago."
Aug 27
Sarahmiller90 left a comment for Apple_eve
"Mine is the same. My hair is 50% off what it used to be. I had More no hair than the average person honestly. Thick, curly, afro like hair lol there was no taming it. Now its thinned out on ther sides of my head, and just under the crown on the top…"
Aug 27
Apple_eve left a comment for Sarahmiller90
"Thanks so much for replying! I absolutely understand - have have 2 little ones too as well as working. It’s a hard juggle!  Like I said, I’ve been diagnosed with diffuse alopecia areata. I’ve had 2 lots of biopsies taken (from…"
Aug 25
Sarahmiller90 left a comment for Apple_eve
"Hey sorry. I still view from time to time. I work 40 hours a week so I've been busy, plus 2 kids lol. I'm still going through the same thing. I don't mind talking. So what's up?"
Aug 24
Apple_eve left a comment for Sarahmiller90
"Hi Sarah, Really hoping you still access this site and will see this. My hair loss sounds to be the same as yours - I’ve been diagnosed with diffuse AA. I was hoping you wouldn’t mind chatting about it? I’m finding it really…"
Aug 24
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"Hey Sarah, are you still on this page?"
Aug 11
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Aug 11
essaychief replied to Sarahmiller90's discussion Very new with Alopecia areata incognita (diffuse alopecia areata)
"I am a practicing naturapat and I ofter do many researches, I post them on essaychief.com So in one of my researches I found that people who have children and families are usually more happy than those without any families. So, what I am trying…"
Jun 8
hellopeesha replied to Sarahmiller90's discussion Very new with Alopecia areata incognita (diffuse alopecia areata)
"Hey Sarah. Thanks for sharing your story - you've taught me something new - I've never heard about the incognita part before. I'm going to check it out. So let me give you an idea of mine - it confuses me a lot, because it's not…"
May 12

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Relationship Status:
Married
About Me:
I am a mother of 2 beautiful boys and married to an amazing man ^_^ I'm the youngest of 5. I'm a stay at home mom but I'm also a certified vet assistant.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 5:17am on August 25, 2019, Apple_eve said…

Thanks so much for replying! I absolutely understand - have have 2 little ones too as well as working. It’s a hard juggle! 

Like I said, I’ve been diagnosed with diffuse alopecia areata. I’ve had 2 lots of biopsies taken (from 3 sites each time) because I have burning along with the hair loss. My hair started falling out a year ago and hasn’t stopped but I’m also not bald yet, just very thin areas. Everything I’ve read online says diffuse AA starts suddenly (which it did for me) but also quickly progresses to total baldness then starts to regrow almost immediately. Mine hasn’t done that so I’m questioning whether the diagnosis is right (especially when adding in the constant burning sensation). Does this sound like anything you’ve experienced?

Thanks!

Laura x

At 3:37am on August 24, 2019, Apple_eve said…

Hi Sarah, Really hoping you still access this site and will see this. My hair loss sounds to be the same as yours - I’ve been diagnosed with diffuse AA. I was hoping you wouldn’t mind chatting about it? I’m finding it really difficult to find anyone that has the same pattern and is open to chatting about it.

Hope you’re doing well now and you’ve had regrowth!

thanks,

Laura 

 
 
 

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