Sad_Rapunzel
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  • New York
  • Ukraine
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Latest Activity

Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have never herard about these options.  Steroids are way to harmful. Most scary thing of all these hormonal/steroids injections/pills for me personally is unpredictable reaction of body weight. I know cases when women just suddenly become a…"
6 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for sharing...  What supplements do you take?  I actually cried a little while read your comment.  It is so hard, and so unfair. I have so many health issues, and on top of that - this awful hair loss, which, I don't…"
11 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for your reply  I'm visiting my family in Ukraine now, and will be back in New York in the end of March...  How did she help you? Were you prescribed with Tofacitinib? "
11 hours ago
Sad_Rapunzel replied to Cocopuffz17's discussion AA for 3-4 years, Partial AU for 1-2 years. I have 100% regrowth on my scalp(not 100% pigment yet), rest of my body regrowth is coming along.
"yep  this diet gave me amenorrhea and started my hair loss!"
13 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I understand, I just want to be sure.  You see, in Ukraine and Russia they don't even know about this medicine. We have forum like this and it's full of people who's been stuggling for decades, and all they have is Minoxidil.…"
14 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I wish I'd have these kind o doctors... It seems to me that they all just treat you by some routine medicine and don't want to think out of the box...  I can't look in the mirror, and I have read every study and research I could…"
14 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Woow! don't be so agressive. I have a lot of bad health issues aside of hair loss as well.  I just asking because it seems like nobody who take that medicine sees any other doctor except Dr.King.  Also, DOES ANYBODY HAVE SIDE…"
14 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Well, in your case (after giving birth) your hair would grow back anyway. it's very common thing for post prenatal. So you would be good even without expensive pill."
14 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"start to assuming all these posts are just an ad for Dr King.... :("
23 hours ago
Sad_Rapunzel replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"wooow what doctor gives you free pill?  Please please please give references! :)"
yesterday
Sad_Rapunzel replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Do you, by any chance, have his email?"
Sunday
Sad_Rapunzel replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"OMG! I can't believe it... I just left New York with really only one thought - I don't have any sense to fight anymore. I am really want to end it all.  I've seen two dermatologists in New York, Catherine Ding and Dr.Bruder, who…"
Friday
NicoleT and Sad_Rapunzel are now friends
Friday
Sad_Rapunzel replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"This is unbelievable!!! Could you please give me contacts of your doctor?  I will travel anywhere just to be treated by such a specialist! Because everybody I've met prescribed me only Minoxidil and I can't do it...  Thsi is…"
Friday
Sad_Rapunzel is now a member of Alopecia World
Friday

Profile Information

Relationship Status:
Single
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 9:39am on March 16, 2019, Ahuva said…

Good day,
My name is Ahuva,I picked interest on you after going through your short profile and deemed it necessary to write you immediately.I have something very important to discuss with you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on (ahuvab005@gmail.com) for more details.
Have a nice day.

 
 
 

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