• Female
  • Albany, NY
  • United States

RobynCS's Friends

  • R0BB
  • Wendy
  • Larry Barbee
  • Mary Felitte
  • Bruno Manuel Rocha
  • Aaron
  • Christy Ingram
  • Jeff E.
  • Marisa
  • Kimberly O'Donnell
  • Jen
  • Gail
  • Ms. S
  • Eric W.
  • Caley Vangelis

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RobynCS's Page

Profile Information

Relationship Status:
About Me:
I'm a single mom of two high school children. I've had alopecia for 8 yrs and now it's just about AT. Went to the NAAF conference in Indy. Next best thing to living in Italy...

I found a good acupunturist too this past year. He really helped me emotionally and I went to him for herbs (chinese, ha) for about 8 mo. Now, Im tired of taking 20 capsules a day and spending so much out of pocket cash on pills. As for the derm doc, after 8 yrs of monthly injections, then 4 mo. of oral medrol two different periods, i really maxed out my steriod use. I stay on the fosamax and work hard to keep up my bone density. Must say there are no 'physical' aches or pains with alopecia.

Back to my wig permanently until I'm brave enough to bear all. Must say I'm grateful for it and all my friends here.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (35 comments)

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At 6:18am on August 29, 2018, Brent Cairns said…

Thank you Robin for sharing all your thoughts on this post.

My name is Brent Cairns, from Auckland New Zealand (I have alopecia also)

The purpose of this post is to ask you if you could please supply me with some info for my studies. I'm definitely not selling anything. I am not buying anything and I don't work for a Wig company whatsoever nor everhave.

Q1: What are the problems, if any, that you have experienced or currently experience with wearing Wigs?
Q2: What are that you believe are the problems that you've have/ had experience(d) from Wig suppliers/ retailers?
Q3: What support do or did you receive from these Wig suppliers/ retailers, if at all?

Thank you so much in advance!

At 11:18pm on July 29, 2011, margaret staib said…
Helllo my friend! How are you :)
At 2:27pm on May 22, 2011, BTB (John) said…
Hi awesome story single mom and AA now that's a real tough gig thanks for supporting Pat and does Jeffery know everyone on AA world I am going to the States in Oct on a road trip with a mate our 4th and will definitely be meeting Jeffery in San Francisco he is a really cool guy. John
At 7:52pm on April 26, 2011, R0BB said…
Hey Robynowitz,
Hows it going ?
At 7:59am on April 26, 2011, margaret staib said…
Hi Robin, sorry we were away! :) Call me so we can touch base. My husband is a HUGE dead fan and still goes to DSO shows, phil shows and when the dead comes to town sees them too. We will be in lake champlain on that date but, maybe we can set something else up! xo 631-680-0148
At 1:01pm on April 14, 2011, R0BB said…
Hi Robyn - Thanks for the add !!
Keep smiling :)
At 8:29pm on April 10, 2011, margaret staib said…
Hello my friend! Wanted to say hi and I was thinking of you! Hope all is well! Golf soon? xo
At 8:16am on December 20, 2010, margaret staib said…

LOVE your profile pic. You look BEAUTIFUL!!! :)

At 12:45pm on October 25, 2010, margaret staib said…
Hello Miss Robyn!!! How are my love?
At 8:10pm on September 28, 2010, Pat said…
Hi Robyn, thanks for your comment on my profile page...yes I agree my hb is a good looking guy and yes he's always been very supportive to me. I love him so much. So far I have no side effects on the prednisone but I suppose it's early days yet. I'm hoping to taper off to a low dose over the next few weeks. What dose did you get down to?


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