Robin
  • Female
  • Livermore, CA
  • United States
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Robin's Discussions

Dealing with the Autoimmune Aspect with Diet

Started this discussion. Last reply by Robin Nov 25, 2015. 11 Replies

Hi I am new to Alopecia World. I have Hashimotos and frontal fibrosing alopecia. So that is now two autoimmune conditions. They say if you have one you will have more. I don't really want more and…Continue

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Latest Activity

diana replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Thanks Donna.  I watch the Today show everyday but didn't hear anything about it.  i have to leave for work by 8:30 and it was probably on after that.  i will check it out online."
Friday
Donna replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Today Show today (8/9/18) had a story on CBD oil. Today’s Health segment. They basically said this is something we’re going to be seeing a lot more of.   Did t say anything negative."
Aug 9
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"that is great....we are on a big experiment but there is not much else available....good luck and stay in touch! I will write down the formula that you sent....I just got another product and will compare it.......hard to translate into what you…"
Aug 7
Diart replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Thanks for the encouragement! Today I met with a woman who owns a cannabis shop in town. She also has medical knowledge and came highly recommended. She listened to me and recommended a whole plant CBD tincture. It is alcohol based and I can use it…"
Aug 7
diana replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"I hope so Diart... thank you.  ... We also want to see something improve that gives us hope and incentive to keep going but it all takes time.  I'm getting close to retirement...maybe will take early retirement to deal with this…"
Aug 7
Diart replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Thanks Diana! I'm going to try internal treatment also. I'm retired so I don't have to be somewhere in the morning. I feel for your morning routine...you can do it!!"
Aug 6
Diart replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Thanks for the support Robin. I try to put as little as possible on but fine straight and now thinner hair doesn't hide anything. I'll be the trial for how well once a day use works!"
Aug 6
diana replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi Diart.... I feel the same, i haven't purchased it yet as i would want to use it daily/twice a day but feel with the oiliness i would need an extra 2 hrs in the a.m. to wash and do my hair along with coloring the scalp areas that need…"
Aug 6
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"I have totally dry curly hair that I have to wet and use a very mild shampoo every day with conditioner so that is not a problem with me...maybe you are applying more than you need to? Keep it up it took some time to get the most effect. Good luck."
Aug 6
Diart replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"I have been using CBD oil the past month on my hairline and a little further back. I only use it at night because it is oily and my hair is very fine. It feels like inflammation is less however I"m not sure that washing my hair every morning is…"
Aug 6
Nancy liked Robin's discussion Regarding my successful trial with cannabis oil tincures!
Aug 2
2Dachshunds liked Robin's discussion Regarding my successful trial with cannabis oil tincures!
Jul 30
Plf replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi dragon&fox, yes indeed the FFA journey is horrid, if you don't mind me asking, why did you cease taking finesteride?  I have chosen not to medicate as it all appears to be a bit hit and miss.  I hope your specialist has some…"
Jul 28
Dragon&Fox replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi Robin, I am interested in the outcome of this experiment you have embarked on.  This is very brave of you.  I am not willing to "try" anything other than what is preventing my hair from falling out any more than it has thus…"
Jul 28
Robin left a comment for Bloomingdalekid
"You sent a message wondering others used Botox, I have never used it.....we are all so individual and have out own triggers........I figure it is inflammation and lowering inflammation is the best we can do.....I have been using a canabis tincture…"
Jul 28
Minter replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"I think I have settled on Charlottes Web as the company for the CBD oil, they seem to have one of the highest strengths and is a reputable company- will take another look around google again before I order though just to be sure! "
Jul 26

Profile Information

Relationship Status:
Married
About Me:
I have frontal fibrossing alopecia. I am concerned to keep my hair but also that I now have two autoimmune diseases and do not want more! So, at this time I am committed to diet changes and treating the overall inflammation in my body for my general health.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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