Robin
  • Female
  • Livermore, CA
  • United States
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  • Sharon E

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Dealing with the Autoimmune Aspect with Diet

Started this discussion. Last reply by Robin Nov 25, 2015. 11 Replies

Hi I am new to Alopecia World. I have Hashimotos and frontal fibrosing alopecia. So that is now two autoimmune conditions. They say if you have one you will have more. I don't really want more and…Continue

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Latest Activity

Loveste replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"I have never used tinctures. Is it good? I prefer another kind of products. I usually use CBD Hemp Bombs oil and I am also fully satisfied with it. I am convinced that it is an oil that helps to treat a wide range of medical conditions. Check it out…"
8 hours ago
Robin left a comment for Sharon E
"Sharon, you live in Shingle Springs? I live in Livermore and Murphys. Lets talk a bit more about our FFA experience. I was diagnosed by a dermatologist through Palo Alto Medical Foundation in Fremont. That was 5 years ago. At first he tried the…"
14 hours ago
Robin and Sharon E are now friends
14 hours ago
Hans755 replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi Robin, I found out that marijuana could work to treat the underlying causes of hair loss or at least slow the progression of the condition. As it activates the CB1 receptors in the nervous system, marijuana could reduce the stress that…"
Thursday
Kay liked Robin's discussion Regarding my successful trial with cannabis oil tincures!
Oct 11
ChelleF liked Robin's discussion Regarding my successful trial with cannabis oil tincures!
Oct 11
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"yes FFA causes redness and inflamed appearance also black tiny spots where the hair follicle is or was..."
Oct 8
Kathleen replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Thanks for your reply! I will use it on the front areas and see how it goes. BTW did you have redness from the FFA? My dermatologist still hasn't confirmed that I have it, but the lichen planopilaris was confirmed with a scalp biopsy. I…"
Oct 8
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Well, that is how I feel as well...I use it in the morning and evening and about 1/2 a dropper or a bit more on my hairline and then rub it in. And yes, I am still happy with the results and am continuing. Good luck and please post your results and…"
Oct 8
Kathleen replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Robin, I am new to this site and have been reading your posts on cbd oil. I have both lichen planopilaris and it looks like frontal fibrosing alopecia as well. Lucky me! My husband just bought some cbd oil over the weekend. Are you still happy with…"
Oct 8
pauliegirl liked Robin's discussion Regarding my successful trial with cannabis oil tincures!
Oct 5
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"just stopped the clobetasol and got started......"
Oct 4
Dianna replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Thank you Robin so much for the specifics. This is so helpful! Did you slowly go off the clobetasol or how did you switch over to the cannabis?"
Oct 4
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi, it took a while to see the improvement.....It wasn't until 4 months until I felt confident that it was easing some of the inflammation......the only fill in was with hair that had very recently I lost....I dont think I have lost any more…"
Oct 4
Anonymous replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi Robin, I have used the CBD hemp oil 250 mg. for 3 months, morning and night, and am cautiously optimistic. I see a little improvement. I would love for my light, scraggy sides to fill in. I have gone to wigs, and maybe not using products on my…"
Oct 4
Robin replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hi Dianna, I have never used that product. Guess you are asking Diart about her experience.....I have had to switch product once and will have to again because the availability is not consistant but still working to get a high CBDA product....it is…"
Oct 4

Profile Information

Relationship Status:
Married
About Me:
I have frontal fibrossing alopecia. I am concerned to keep my hair but also that I now have two autoimmune diseases and do not want more! So, at this time I am committed to diet changes and treating the overall inflammation in my body for my general health.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 11:45am on October 2, 2018, Dianna said…

Hi Robin,

Thank you so much for all of your posts. I do not have a dermatologist who will work with me. It is pretty much lots of steroids or nothing. I am slowly going to stop using the steroid over the next month. Can you describe how you are using the tincture specifically and how much? I am going to try and find it up here in Washington. I tried 100% Cannabis oil last night but it was very hard to apply because it is so viscous. 

Blessings~

Dianna

At 12:07pm on September 26, 2018, Eli said…

Hi all,

The FFA started 5 years ago in my eyebrows.

In 2015 I noticed it on my sides. Still shedding (not much thank God).

So far I am applying rogaine (for men) once a day. No meds for me.

I would love to know more about CDB oil treatment.

thanks :)

 
 
 

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