Rdd9108
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Latest Activity

Rdd9108 replied to Cocopuffz17's discussion AA for 3-4 years, Partial AU for 1-2 years. I have 100% regrowth on my scalp(not 100% pigment yet), rest of my body regrowth is coming along.
"Well interestingly enough I am starting to go into remission after losing 99% of my hair in the matter of weeks last year. Things I believe is contributing to it is my change in diet. I'm doing keto and eating healthy fats and grass fed meats.…"
Aug 4, 2020
Rdd9108 replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I'm hoping they start the study nearby sometime soon. With covid 19 they paused the study because the Cleveland Clinic had to focus on other areas. Weirdly enough I'm starting to get hair back on my face (to the point that I'll have…"
Jul 7, 2020
Rdd9108 replied to nexoo's discussion pf-06651600
Feb 22, 2020
Rdd9108 replied to nexoo's discussion pf-06651600
"How's the trial going. From the evidence I've seen is you start noticing some results by week 8. Any side effects?"
Feb 20, 2020
Rdd9108 replied to deehayes13's discussion CTP-543 trial--anyone start it yet?
"Once the semi local trial starts up for the open study they said they would call me to enroll. I lost 90% of my hair in a few months so im hoping this can grow it back"
Feb 14, 2020
Rdd9108 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm assuming this is a medicine you have to be on forever or else you start to lose your hair again. Has anyone had any success getting off it and keeping their hair?"
Nov 19, 2019
Rdd9108 replied to Sj0909986's discussion Treatments coming up
"So my last derm put me on cyclosporine at what I'm finding is a high dose and didnt do a single blood test. Who knows how much damage to my immune system it did. My new dermatologist told me cyclosporine is terrible to use and that JAK…"
Nov 14, 2019
Rdd9108 replied to Sj0909986's discussion Treatments coming up
"So question the PF trial is 2 hours away. I dont think it would be worth it to travel back and forth every month for blood work. With that being said the only close trial is baricitinib but I hear there are more sides with it. So should stay local…"
Nov 11, 2019
Rdd9108 is now a member of Alopecia World
Nov 10, 2019

Profile Information

Relationship Status:
Single
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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