Rascalx2
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  • Atlantic Highlands, NJ
  • United States
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Rascalx2's Discussions

Does this ever become easier?

Started this discussion. Last reply by Bonnie Piper May 6, 2017. 23 Replies

Im just having such bad couple days, Ill do good for days then become overwhelmed that I will look this way for the rest of my life. I just want to not care what I look like! I feel so vain that Im…Continue

Fake eyebrows and hopelessness

Started this discussion. Last reply by Zimrie Apr 14, 2018. 58 Replies

I have AU since January 2016. Was looking into the false/fake eyebrows, anybody have input on positive/negative aspects of them? I feel that it really alters appearance w/ out eyebrows. So…Continue

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Latest Activity

Rascalx2 replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hey Tamara, i was suggested to take allegra , i never did, curious for more defails.. did you always take xceljanz and allegra together? I take 20 mgs of xeljanz but never has been as thick as before loss.. did you take xeljanz then add the allegra…"
Jan 6
Rascalx2 replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"No kidding gut issues ? What do you suggest? Everyone talks of diet ... what exactly do find works ?"
Jan 3
Rascalx2 replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"The person who posted stopping xeljanz, already tried upping the dose to 20 mgs"
Jan 3
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I was happy to be getting hair back, it comes back quick when it starts coming in, i worked so hard and stayed patient, i was not gonna shave off the little i had, i was just happy i didnt look like a chemo patient having no brows or eyelashes, i…"
Jan 1
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I  saw a quote today that was great for us, “dont overthink, it will kill your happiness”"
Dec 11, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Newjack, dude you are just letting paranoia get to you, get on on with your life, we’ve all been there , worry when hair IS falling out. Be grateful you have the growth you have"
Dec 11, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I know if i go off meds i will lose it all, my derm told me that as well, "
Nov 20, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had a flu shot few weeks ago and have had major shedding on xeljanz, it does not seem to be getting worse, but some major spots in back about 3 inches wide, i have about 5 spots. This is how it started when i went AU, but it never stopped coming…"
Nov 14, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had flu shot 2 weeks ago, i have spots all over back of my head, few weeks back i decreased dose of xeljanz, so i dont know if its from flu shot or decrease in dose. i went to derm other day who gave shots in spots to stimulate growth, also may be…"
Nov 1, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Dude think you are a little paranoid, cant even see what you’re talking about, you have 100% growth"
Oct 31, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I was au , started seeing fuzz at around 1-2 months, never has come back as thick as it was before i lost it, im a male , i was quite happy just to get eyebrows back and felt anything else was a plus. It comes back pure white then changes darker..…"
Sep 21, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had no response until 20 mgs for 2-3 months, took 10 mgs a day for year ., nothing until 20 mgs a day, you are probably a responder.,, i know it feels hopeless., i thought ,”im the guy who will be a non responder , probably wont work for…"
Sep 21, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My MD told me to get a shingles vaccine, because of the suppressed immune system, he told me if i get vaccinated, i need to be off xeljanz for 2-3 weeks, i am hesitant because i know i will shed it all off if im off it for that long. I have…"
Sep 1, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I decreased dose for xeljanz from 20 mgs to 15 mgs because of the concern few months ago due to risk of pulmonary embolism, i went down slow and have not had any adverse effects, no shedding, no changes, actually feel better , i would love to…"
Aug 22, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sorry for your hiccup with xeljanz, i was told to take shingles vaccination but i would have to stop xeljanz, so i have not opted to take that step yet, it is so hard when faced w getting the suggestion of stopping xeljanz, i worry alot of liver…"
Aug 21, 2019
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Would love to know the main issue, wouldnt we all...maybe i had too many twinkees as a kid and it changed my body chemistry, sounds far fetched ..but does it?"
Jul 28, 2019

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Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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