Rascalx2
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  • Atlantic Highlands, NJ
  • United States
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Rascalx2's Discussions

Does this ever become easier?

Started this discussion. Last reply by Bonnie Piper May 6, 2017. 23 Replies

Im just having such bad couple days, Ill do good for days then become overwhelmed that I will look this way for the rest of my life. I just want to not care what I look like! I feel so vain that Im…Continue

Fake eyebrows and hopelessness

Started this discussion. Last reply by Zimrie Apr 14, 2018. 58 Replies

I have AU since January 2016. Was looking into the false/fake eyebrows, anybody have input on positive/negative aspects of them? I feel that it really alters appearance w/ out eyebrows. So…Continue

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Latest Activity

Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I decreased dose for xeljanz from 20 mgs to 15 mgs because of the concern few months ago due to risk of pulmonary embolism, i went down slow and have not had any adverse effects, no shedding, no changes, actually feel better , i would love to…"
yesterday
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sorry for your hiccup with xeljanz, i was told to take shingles vaccination but i would have to stop xeljanz, so i have not opted to take that step yet, it is so hard when faced w getting the suggestion of stopping xeljanz, i worry alot of liver…"
yesterday
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Would love to know the main issue, wouldnt we all...maybe i had too many twinkees as a kid and it changed my body chemistry, sounds far fetched ..but does it?"
Jul 28
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My hair came back completely white when it started coming back, over time it has darkened...but i dont care if its white , gray or brown its hair!  I have shedding that happens here and there and when it starts to fill in its pure white, kinda…"
Jul 23
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Happy for you ! It sfarts slow and your so aware of any single hair,  there is such a feeling of hope and joy w the growth... keep us posted"
Jul 15
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had nothing until i went to 20 mgs, and a shot of steroids, this was something that showed results, im now on 15 mgs a day and still ok, i had some shedding when i initially decresased. Down to 15 but not shedding, after some time on 15 im going…"
Jul 4
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carlie, i have same story"
Jul 1
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So im thinking to get a shingles vaccination which is recomended beingnon xeljanz, but md said after shot i need to be iff xeljanz for around 2 weeks.. anyone have this experince with time witout xeljanz?"
Jun 25
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"As long as i have eyebrows and facial hair i can deal w bald head. Sometimes i think how to get xeljanz mg just right so head is smooth but keep brows and facials hair. For me the most difficult was the feeling of losing my identity, the no hair on…"
Jun 13
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"i feel that im hiding the fact that i have bald spots and thinning hair, it kind if feels like its a combover, you can see my scalp through top of head.. i am so grateful to have the hair i have and certainly the eyebrows and facial hair. My…"
Jun 7
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had a lot if adjustments when i first started taking it, i didnt have atomach issues, but i had bad cough  for awhile, it went away, "
Jun 7
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"the eosinophils were elevated from 9 being normal to 15... by the way Ive never had issue w allergies my whole life but Now i have lot if symptoms of allergies , asthma. Sometimes weezing, On another note I have decresases xeljanz from 20 to 15 mgs…"
Jun 7
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Anyone have elevated eosinophils  w blood work? Its used as a marker for some things , was wondering anyone do some research w it to understand the numbers"
Jun 4
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Great to see i remebr the feeling of hope and joy i had when there was some hair coming in ...when you have nothing being AU , you notice 1 hair. All the best . Another month it will be too much to count"
May 24
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"i would talk to MD and definately stop taking it if you are going to get pregnant, and be off it before attempting , you will probably lose your hair but the joy in your life that comes w a child does not compare, look at it as your giving…"
May 16
Rascalx2 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Been on it for 2 years, already have kids, had kids before hair loss, ive said this before on here , its still never has gotten thick as it used to be, can pretty much see scalp, spots in the back.. im just taking it to keep what i have and have…"
May 16

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Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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