Plf
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  • Victoria
  • Australia
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Plf replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"Hi Liz, don't know if I'm allowed to comment as not on the question you asked.. you are to be congratulated for not letting this thing dominate your life, I'm glad you have moved on ..I too have chosen not to medicate, what will be…"
Apr 12
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hola all, still following the thread hoping for a miricle..I applaud how you all manage to support each other and often inject some well needed humour into your posts... seriously one has to..I was just wondering if anyone's specialist had…"
Feb 17
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Jayne, . thanks for your input, fantastic you have some improvement, it is so good to hear a positive story on this site. I have one query, did you have redness around the hair follicles when you had the loss..??"
Sep 29, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Wow Jules, you have encapsulated it all..so true, my daughter says why do you keep getting emails re FFA when you have decided not to go down the drug treatment regimen..and it's probably true, why do I need to be reminded..I am still holding.…"
Sep 25, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hola all, thanks for all the tips, will check out eye products tomorrow, seriously if they had a nurse clinic, the nurse would be on top of all this , suggesting non drug solutions for the side effects of FFA, unfortunately big pharma cology…"
Sep 21, 2019
Plf replied to NorthCarolinaMama's discussion All natural makeup brands in the group Frontal Fibrosing Alopecia
"Re titanium dioxide, this is the response I received when I queried ingredients in Inika products::- Hi Heather,Thank you for your enquiry.As INIKA Organic products are 100% natural there is a very high chance of the existence of Titanium Dioxide…"
Sep 5, 2019
Plf replied to NorthCarolinaMama's discussion All natural makeup brands in the group Frontal Fibrosing Alopecia
"I switch to Inika makeup , and no longer use product with SPF in it.  Inika is available on line, I am happy with their products, I also use a brow soft pencil .hour glass, it's great for creating soft hair like strokes to fill in the bald…"
Sep 5, 2019
Plf replied to ohnonotme's discussion Changes you've made to your hair care routine since diagnosis? in the group Frontal Fibrosing Alopecia
"I am still colouring my hair but switched to Aveda products, not cheap but I find their colours softer and not full of bleach.  I actually don't lose hair when I shampoo, my hair loss is just at the front, and it happens insidiously"
Sep 5, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Elizabeth, I will try and down load to this forum, as you probably don't want to give me your email address"
Aug 5, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi all, a review of current drugs for FFA has just been published, just google Nonsurgical hair restoration treatment: Cutis, cutaneous medicine for the practitioner.  Dermatology July 30 2019.  This covered the regime of drugs my…"
Aug 2, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi afraid, no low temp, but a low temp would definitely affect hair growth, ..what are you taking your temp with? And where? If not a rude question"
Jul 9, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hola all, well the sunscreen theory would certainly fit with why I have lost hair on my arms and legs as well!  But quite a problem as I also have had skin cancers removed from my face and body so need sun protection in Australia"
Jul 2, 2019
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi everyone, also a while since I have posted ..living in the land of denial, sounds like some small wins..but not 'the cure', Lu can you tell me if you have had any side effects from the medications?  I'm good to hear re the…"
Jun 30, 2019

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About Me:
57 year old women just diagnosed with frontal fibrosing alopecia, ..
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Plf's Blog

Just diagnosed with frontal fibrosing alopecia

Posted on January 25, 2018 at 12:48am 2 Comments

Hi, so glad to have found this forum, just before Christmas I went to have hair cut and my hairdresser was in shock at the loss of hair on my scalp since the last cut.  Needless to say he was pretty blunt and filled me in with horror stories.  I promptly went home and search Ed for a dermatologist in Melbourne who specialises in hair loss and managed to score an appointment on a cancellation.  Fast forward I had my appointment and apart from my diagnosis have been prescribed : aldactone,…

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