Newjack
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Newjack's Discussions

I'm having a difficult time with AA.

Started this discussion. Last reply by Karaholly Nov 19, 2017. 1 Reply

My girlfriend noticed a spot in July, I ignored it well because I didn't think it was anything. September, I went to the dermatologist, and the one spot I had, it was the size of a quarter or even…Continue

Steriod shots have adverse effects?

Started this discussion. Last reply by saba26 May 14, 2019. 4 Replies

I have had about 2 or 3 rounds of steriod shots in a couple of spots. I notice hair growth , however I am still seeing the patches travel. Also, it seems like Everytime I get myshots that is when it…Continue

Is taking a biopsy always necessary?

Started this discussion. Last reply by Alo-mom Nov 12, 2017. 1 Reply

I went to a doctor back in september and I had a circle, there was still hair in it and extremely itchy. She immediatly said it was AA. In July I would ITCH the living hell out of it, and it reminded…Continue

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Latest Activity

Newjack and Peciamom are now friends
Jan 5
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I was shaving it till I had full regrowth"
Dec 31, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey,  Yeah I did have burning but it stopped almost 2 weeks ago to do the day. Don't know why (was studying like crazy and tapered the antibiotics )"
Dec 28, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Interesting I noticed this when I got Seb derm on my face. I'll ask my derm to take a closer look, but I don't notice any red spots under my scalp or any irritations or burning. I'm actually taking minocycline for 2 months for it and…"
Dec 28, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"No burning or itching. The hair behind  my ears are actually filling behind my ear.. The first picture was from today and the second picture is from Dec 18th(2 weeks ago).. What do you think it is if it's not my AU?"
Dec 28, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My spot that I've been very worried about seems to be filling in. I've been using clobetsol for 2 weeks and it really helped with the progress. But what I can't shake is shedding and thinning. It is probably in my head. It's with…"
Dec 27, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Merry Christmas Frida!!"
Dec 25, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"For those that have been on Xeljanz for awhile, did they ever notice just generic shedding of hair and then it goes back to normal? I swear I think I am going through some sort of shedding on the side of my head and over the summer it started…"
Dec 16, 2019
Newjack and nb3689 are now friends
Dec 12, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Frida, I should probably do the same and see someone in my area. If anyone knows of anyone in NYC please let me know."
Dec 11, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks everyone... I come here because no one knows other than us..."
Dec 11, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I also noticed that I have another pencil sized spot but it actually has hair in it. Makes me think that my hair isn't falling out but stalling and regrowing...I had a similar issue in August with a bigger spot but it really wasn't bald it…"
Dec 10, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida and everyone else.  I have burning, but no tingling. I have a negative pull test but the burning is not in that spot only it's all over. Could be anything I suppose.  Thanks for everyone listening to my anxious ranting…"
Dec 10, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm going down a rabbit hole whether or not I need to get another injection. My doctor thought everything looked good but I looked at pictures from a month ago and it seems my spot grew (was growing in,) First picture is from first week of…"
Dec 10, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Joja,  I see Dr Bordone too! Let me know what she says. She's great but wondering what her plan for you is. She helped me go from 0 to a full head of hair.  Granted I am shedding a bit right now and she's not concerned. If she…"
Dec 6, 2019
Newjack replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"(Dec 2019) I have had great success with xeljanz, however the last few months I feel like I've been regressing. My spot has been filling in however I do feel like my  sides are slightly more diffused.  (October 2019)"
Dec 2, 2019

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In a Relationship
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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