Nari
  • Female
  • Chicago, IL
  • United States
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Relationship Status:
In a Relationship
About Me:
Started with a small pea-sized spot in March, and one day in late July my hair just started falling out, hundreds per day. I'm guessing it's AA, and it's unbearable.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Nari's Blog

Headband wigs - seeking advice

Posted on August 10, 2010 at 6:00am 2 Comments

I was going to post this on the discussion board, but decided to post here instead. I've decided to try a headband-style wig as an alternative to a hat. Problem is, I'm in Asia (where the chances of finding a non-costume blonde wig are not very good) and my friend in the US is going to send it to me- so I have to choose one just from online pictures.



I'm kind of torn between the Paris Hilton headband fall ($20 on sale, synthetic hair) and a Put On Pieces headband fall ($150 on sale,… Continue

Identity

Posted on August 7, 2010 at 2:30am 6 Comments

I have a scar on my forehead about 2/3" in length. I got it when I was four years old, from jumping on my grandmother's sofa and falling headfirst onto her ancient radiator. My mother had heard that they don't use anesthetic in the ER when they stitch you up, so trying to save me from further pain, she cleaned and bandaged my wound herself. The scar is actually an oval depression on the surface of my skin, probably not something you'd notice right away upon meeting me. Through the years I've… Continue

Irony

Posted on August 6, 2010 at 4:30am 7 Comments

Day 5 of collecting hair and today's pile is biggest of all. I uploaded a profile photo, and you can't *really* tell how much hair I've lost thanks to the damaging power of hair bleach. I think my hair looks scraggly as I don't dare to style or even brush it all that much- just let it air dry as it is. But at this point I'll take scraggly hair or my natural dark or my abused blonde or whatever I'm allowed to keep.... just please don't take any more away.



Irony, 3 months ago I bought… Continue

Hell...

Posted on August 5, 2010 at 9:30am 8 Comments

Well, looks like my shedding isn't going to stop anytime soon. For four days I've saved the hair from my morning brushing and lined up the piles of hair on a shelf. Day 2 (since I started saving) so far has been the worst, and the other days more or less the same. I feel like I've gone through so much in the last few days. I'm emotionally tired. But I write this blog for the sake of documentation.



I wear the same hairstyle now, 24-7. A low ponytail at the base of my head which is… Continue

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At 4:08pm on August 11, 2010, Jessica said…
Hi Nari..

welcome to Alopecia World.

if you need further support ,the chicago land group often holds get togethers once a month or more. just send an email we can set up something.

jessica
At 7:36pm on August 7, 2010, LeslieAnn Butler said…
Hello and welcome, Nari!
Let me know if you need support or advice. I've had alopecia universalis for about 30 years and wrote a book about it. I am here to help and I care.
LeslieAnn
 
 
 

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