Nancy79
  • Female
  • Shawnee, KS
  • United States
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Latest Activity

Nancy79 replied to Chelsea's discussion General shedding of hair! in the group Frontal Fibrosing Alopecia
"Dutasteride was shown to be twice as effective as finasteride. I will have to look up the studies.  Nancy"
Nov 13, 2018
Nancy79 replied to Chelsea's discussion General shedding of hair! in the group Frontal Fibrosing Alopecia
"Hi Chelsea, I'll tell you what worked and is still working for me.  I had bad experience with two dermatologists with bad side effects to drugs. I went to the local university medical center library and did my own research. Dutasteride 0.5…"
Nov 13, 2018
Plf left a comment for Nancy79
"Hi Nancy, I have been reading some of your comments re dutasteride...I have been prescribed dutasteride 0.5 mg daily...haven't had the script filled as didn't want to start taking a medication prior to my daughter s wedding, the big day…"
May 2, 2018
Nancy79 left a comment for LittleSadEyes
"I have been on Dutasteride 0.5mg for 4 years with no side effects. It stopped my attack in its tracks and no new follicles became inflamed. The original inflamed follicles are very slowly still falling out four years later. I am in burn out right…"
Dec 19, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I have not noticed any change in that regard but I am not sexually active due to lack of a partner. I think the sexual side effects are more for men as they can become impotent."
Nov 11, 2017
Nancy79 commented on Celia UK's group Frontal Fibrosing Alopecia
"I went back to my notes and discovered I have been on Dutasteride 0.5mg daily for four years (Feb. 2014) except for my attempt to cut back to every other day this past summer. Let me be clear, I did not suffer any additional loss…"
Nov 6, 2017
Nancy79 commented on Celia UK's group Frontal Fibrosing Alopecia
"I knew there was something wrong with severe itching of the scalp. It did not take years for me to notice something was wrong. I found a small 1/4 inch wide and 2-3 inch long strip of hair missing behind the hairline on the right side of my…"
Nov 3, 2017
Nancy79 commented on Celia UK's group Frontal Fibrosing Alopecia
"Dutasteride 0.5mg daily has a 50-60% chance of arresting the disease where it is at with little or no side effects. It worked for me 5 years ago. I do not know why it is not mentioned more on this blog. It is worth a try."
Nov 2, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"No, I was not taking vagifem when my FFA started. Also, it is not systemic going through my body."
Oct 31, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Thanks for the info. I will keep it on file. I feel right now I am in burn out. These drugs look like there could be some severe side effects though. You are right. Women waste so much time and lose more hair than necessary because docs don't…"
Oct 31, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"I only take Vagifem which is estradiol vaginally. Not on any other hormone therapy. Nothing systemic. I saved a lot of time getting on Dutasteride immediately five years ago and lost very little hair."
Oct 30, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"Not sure if you were notified of my post on Monday. I answered most of your questions except whether I take supplements.  I have taken the normal array of healthy supplement but stopped them 2 years ago. I have noticed no effect on my hair loss…"
Oct 10, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"generic Dutasteride 0.5mg one pill daily."
Oct 9, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"The studies had patients take it for a year to 2 years. One study stated the drug was just as effective taking a dose every other day after you had been on a long course of it.  I tried this after being on it 4 1/2 years and…"
Oct 8, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"You cannot take it if you plan to get pregnant. Men have sexual side effects. Some women report some weight gain of 15 lbs but I did not notice this. Discuss it with your doc."
Oct 8, 2017
Nancy79 replied to Donna's discussion Just diagnosed with FFA in the group Frontal Fibrosing Alopecia
"According to what I read these follicles will scar over eventually. Again, Dutasteride was found to be significantly more effective than finasteride. "
Oct 8, 2017

Profile Information

About Me:
I have frontal fibrosing
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Nancy79's Blog

Oral Dutasteride and narrow band UVB phototherapy

Posted on April 17, 2014 at 7:00pm 0 Comments

I have frontal fibrosing which has become very aggressive in the last 5 months. I am going to try these therapies. Does anyone have any experience with either therapy? I have to do something that has the best chance of working because it is going fast. Thank you for any help or information.

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At 7:45pm on May 2, 2018, Plf said…

Hi Nancy, I have been reading some of your comments re dutasteride...I have been prescribed dutasteride 0.5 mg daily...haven't had the script filled as didn't want to start taking a medication prior to my daughter s wedding, the big day has passed and now I'm have to make the decision re if to take medication .  Did your dermatologist give you a time span that you would be on meds, ? And no side effects? And this has halted frontal fibrosing alopecia?  Sorry just so scared .trying to make an informed descion, thanks

At 2:17pm on February 11, 2017, Christi Q. said…

Hi Nancy79.  I live in Lenexa/Shawnee area.  Which hairloss doctors are you seeing?

At 1:30pm on February 11, 2017, Leni said…
Just received a message from you but don't see any posts from you on other boards . Kind of a confusing website
At 11:27am on September 25, 2015, Let's Solve This said…

Nancy, I'm still figuring out how to work with this website, so hopefully I'm replying to you in the right place!  Yes, I will have to travel to Duke in order to participate in the study.  Fortunately I live about an hour away from them so it's not a big issue for me.  I'm guessing that you saw all the other sites where they are gathering data around the country?  If any of them are within a reasonable travel distance you may be able to participate in the study by contacted someone at that site.  I remember reading somewhere that someone was having trouble connecting with the right person at one of those sites - I think it was in Pennsylvania, so I thought I would try to find out for that person whom they should call.  It took me several attempts to get a response back from Duke - I think people are just so busy with other things that they don't get around to responding in a timely way.  Probably because they are not losing their hair :-). 

At 12:56am on April 29, 2014, Cheryl, Co-founder said…

Hi Nancy,

I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Be sure to check out the “10 tips for getting the most out of Alopecia World” which include a few tips to get you started!

Cheryl, co-founder

At 10:25pm on April 17, 2014, LeslieAnn Butler said…

Hello and welcome, Nancy!

How are you today?

Leslie Ann

 
 
 

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