Nana
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  • Likasi
  • Congo, Republic of the
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The pain is back...

Started this discussion. Last reply by Nana Jun 4. 12 Replies

Hello everyone,Is anyone ever experienced this: after a few years of feeling "stable" about my alopecian, I was surprised to feel the pain like in the very first years of witnessing my hair…Continue

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Nana replied to Nana's discussion The pain is back...
"Hello Tara49, You're right, I forgot to mention that it was an emotional pain... It seems that I have to come to realize that there will be time when the pain will be back not matter what...  I still wish for this miracle pill and…"
Jun 4
Nana replied to Nana's discussion The pain is back...
"Hello  Christine,  Thank you so much for your post. It helps to know that we are not alone in this, and some emotions that I experienced are also (unfortunately) experienced by another person because of this disease... The ladies and…"
Jun 4
Nana replied to Nana's discussion The pain is back...
"Hello Finley, Thank you for your comment. Is it emotional pain, for me. I did not had any physical pain in years, I was hoping that maybe something was going on, like hair follicle growing back...So I went to see a doctor. She told me that it was…"
Jun 4
Nana replied to Nana's discussion The pain is back...
"Thank you so much Jessica.  You are so right in the way you talk  about this disease. I can now understand why I feel like there are two people in me, the one that go out with a wig and look ok, and the one that really don't look good…"
Jun 4
Nana replied to Nana's discussion The pain is back...
"Dear Theresa,  I am sorry to hear that you are having hard time... I hope I was in a brighter season to offer you comfort and strength. But, when I read your post, I realize how deep the pain can be and I just want to help and tell you that it…"
Jun 4
Nana replied to Nana's discussion The pain is back...
"Hello Alo-mom,  Sorry for the late reply to your nice email.  I forgot to be more specific about the type of pain I've been experiencing recently... It is an emotional pain. I am wearing a wig on a daily basis unless I am alone. It…"
Jun 4
TARA49 replied to Nana's discussion The pain is back...
"Sorry to hear that you still get the pain. I get it very occasionally but not too bad - but its odd as there is no hair there! Could it be diet related?"
Jun 3
Christine replied to Nana's discussion The pain is back...
"I have the same issues as you, there are days even weeks where I’m ok with it, well maybe not ok but accepting I wear hair that allows me some security in the world where full heads of hair abound, when I do get down is when there is a…"
May 31
Finley replied to Nana's discussion The pain is back...
"Emotional pain or physical? I have scarring alopecia as well, and when there's fallout it burns badly enough to keep me from sleeping. As for emotional pain, I understand. I feel like I'm a 'no hair don't care' person, but…"
May 29
JessicaStinkle replied to Nana's discussion The pain is back...
"When I think of my feelings with alopecia, it's similar to being bipolar. Some days I wake up completely fine, I don't care at all and I'm the most confident person that I never knew I could be, other days, I forget that I can be that…"
May 17
Theresa replied to Nana's discussion The pain is back...
"I'm sorry for the way you're feeling. It's very tough, I've been AU since Feb 2017 - I'm not sure it's something that I'll ever get used to.  I avoid looking in the mirror at all costs.  When I talk to…"
May 14
Alo-mom replied to Nana's discussion The pain is back...
"Auto immune can play these games. It is all about inflammation in my mind and that an come and go. My daughter found the Ibuprofen can work well for the discomfort. Go see your dermo, and tell them you are feeling pain, it could be something else…"
May 14
Nana posted a discussion

The pain is back...

Hello everyone,Is anyone ever experienced this: after a few years of feeling "stable" about my alopecian, I was surprised to feel the pain like in the very first years of witnessing my hair falling... In the last 3 years or so, I did not think that much about my alopecia. I thought I was finally used to it, I thought I went down the path of acceptance. I avoid looking at myself in the mirror anyway, I just felt like it was a waste of energy to keep living with that painIt's been over 20 years…See More
May 14
Nana commented on Melinda's blog post I Quit My Job Because of My Alopecia
"I am sorry to hear that.  The only thing I can hear when I read your post is: don't quit. As our one of the lady wrote in one of the above post: alopecia has taken so much out of our lives, don't let it take the job you like :)"
May 11
Nana is now a member of Alopecia World
Apr 4

Profile Information

Relationship Status:
Single
About Me:
Hello. I am a christian looking for a christian perspective for dealing with this sickness that had change my life ever since I had the diagnosis
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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