Mel
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  • Sacramento, CA
  • United States
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NYT article

Started Jul 29, 2015 0 Replies

I thought folks might be interested in this article....…Continue

Tags: women, bald, 4

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julie left a comment for Mel
"Hi Mel. I saw the below comment you wrote in 2017 about the AIP diet. I'm wondering if you're still following the AIP...non-stop or intermittently... and if you've seen any further outcomes...sustained remission, changes to your hair,…"
Feb 17
julie left a comment for Mel
"Hi Mel. I saw the below comment you wrote in 2016 about the AIP diet. I'm wondering if you're still following the AIP...non-stop or intermittently... and if you've seen any further outcomes...sustained remission, changes to your hair,…"
Feb 17
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"@illustr8r Thanks! I am going to try this.... My forehead is red, itchy and peely going on a month now. And the skin is rough and looks ancient. The peeling is going into the hair like you described. But I don’t use Clobetesol or any drugs.…"
Apr 23, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"I do castor oil in eyebrows and it helped though they are still thinner than before. I do on my hairline sometimes but mostly do coconut oil in the hair because it feels cooling. Has anyone else had peeling skin?? My forehead has been a mess for the…"
Apr 23, 2018
Mel replied to Jess's discussion More Tentative Evidence of a Cause: Sunscreen/Titanium in the group Frontal Fibrosing Alopecia
"Whoa. Very interesting. i didn’t understand why they might link FFA to sunscreen but studies like this would explain it. I use all non-nano zinc oxide now though one “Kiss My Face” product in my cupboard has 6% non-nano titanium…"
Apr 3, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"Water intake is supposed to also be important for autoimmune... my friend saw a documentary about that. Did you see national news about 90% of bottled water tested positive for plastic?? Filtered tap is safer. I now get the triple filtered water (35…"
Mar 31, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"On the podcast it said two good really good for skin/hair issues are oysters and pineapples (not together...ick). Buy fresh pineapple (when a center leaf can be easily pulled out and turn upside down infridge to distribute sugars.... the cut up.…"
Mar 31, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"Haha! I know what you mean... no fun (diet) and a lot of work. Remember lots of vegetables and diverse veg and fruit, including greens 1-2 times per day is the goal (veg 3+ times). I love Mickey Trescott’s recipes. And since Christmas I know…"
Mar 31, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"Oops. Sorry for the duplicate comment!!"
Mar 31, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"I agree with you all in not opting for pills, creams and shots from the doc. My derm recommended against “no treatment,” but I feel they are more harmful than good. I fight it with working hard to ingest tons of healthy food, doing what…"
Mar 31, 2018
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"I agree with you all in not opting for pills, creams and shots from the doc. My derm recommended against “no treatment,” but I feel they are more harmful than good. I fight it with working hard to ingest tons of healthy food, doing what…"
Mar 31, 2018
Mel replied to DragonandFox's discussion FFA since 2014 diagnosis...Now, Scalp Psoriasis...any1 else? in the group Frontal Fibrosing Alopecia
"Regarding the face rosacea, I have seen links to studies on this site that link the face rosacea (forehead/cheeks/side) to FFA. My dermatologist originally told me the two conditions were not linked, however I sent her those studies and she…"
Mar 27, 2018
Mel replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"Liz — I just looked up the Boots product on the EWG app and it scores a 6, not great. 1 is best. It has several petroleum-derived ingredients but, most interesting, I see it has retinyl palmitate. That’s also a common sunscreen…"
Dec 28, 2017
Mel commented on Celia UK's group Frontal Fibrosing Alopecia
"I agree, Jules Australia. But we always have a choice. My dermatologist said “I would advise you NOT to choose no treatment,” but that’s what I chose. I chose not to take recommended drugs used to treat malaria that could harm my…"
Nov 5, 2017
Mel replied to April's discussion Essential oils in the group Frontal Fibrosing Alopecia
"Thank you, April. I also was diagnosed more than 2 years ago now and think I had it much longer, however I have also chosen not to take any of the recommended drug treatments. Last year at Christmas I asked for Emu oil and got some. I have used it…"
Nov 2, 2017

Profile Information

Relationship Status:
Single
About Me:
I hold a professional position. In my free time I am into cycling, hiking, visiting friends and family.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 4:22am on February 17, 2019, julie said…

Hi Mel. I saw the below comment you wrote in 2017 about the AIP diet. I'm wondering if you're still following the AIP...non-stop or intermittently... and if you've seen any further outcomes...sustained remission, changes to your hair, etc. Could you please comment here or in that thread? Thanks!

Permalink Reply by Mel on July 25, 2017 at 1:40am

I have been super tired lately for a number of reasons unrelated to AIP (or perhaps in part because I need to get BACK to the diet!)
I will write some now.
Yes, I tried AIP and yes I had success. With many autoimmune conditions you can see or feel a difference in 30 days to 3 months. But I listened to a podcast about how your skin (and I think that relates to hair disorders) is the "last priority" organ in your body, meaning your body nourishes and heals other organs first. SO, the tough part for people with FFA is that the elimination phase could take a year or more. Once you see improvement, that's when you add foods back one at a time. I did the diet for 10 months, 100%, and after month 5 I had regrowth of hair in the FRONT!!
Then I traveled abroad for a month and got off the diet.
I never thought I had tummy trouble or any problems with grains or foods, but on AIP I realized I did because on the diet any occasional bloating or pain was GONE! It took about 3 weeks to react to eating other foods while traveling but I definitely got a stomach ache. Long story about why I'm still not back to AIP 100%, but I am getting ready to try again. It made me realize I think I relied a lot on grains and dairy before. On AIP you have to fill up on vegetables so you eat them every meal -- and our bodies need all those enzymes and nutrients. I am still off gluten and try to eat ALL organic. Grass fed meat is also important. Organ meats and fermented foods are a plus, and the podcast said oysters and pineapples are key for hair/skin conditions. Avoid mango.
At 7:12pm on May 14, 2015, LeslieAnn Butler said…

Hello and welcome, Mel!

How are you today?

 
 
 

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