MJ
  • Female
  • United States
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Relationship Status:
Married
About Me:
I have Frontal Fibrosing Alopecia
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 2:09pm on January 1, 2014, Pauline said…
Hi Maria and Happy New Year! Thank you for the lovely comment you made, it gives your morale a boost when people reassure you that how you look is really not so bad! My photo was taken in Feb 2013, almost a year ago and my hair has receded a bit since then. I also lost most of my eyebrows but took the plunge and had them tattooed the week before Christmas (which I can highly recommend!). On my last visit to the dermatology unit in November, the doctor reckoned that my hair had not receded any further from when she saw me 6 months previously (good news). However, I don't feel confident enough to stop taking the hydroxy just yet and so it was agreed that I would continue until my next appointment around May this year. Then we can see about perhaps reducing the dosage and ultimately stopping. I haven't been applying the protopic ointment for several weeks now as it makes my hair feel greasy and, I think, draws people attention more! I have started taking 2 zirtek per day and do not suffer from any redness or itchy scalp which is a bonus! I have also agreed to take part in Dr Christos study and did my saliva DNA test just before Christmas. I would honestly be willing to be a guinea pig for and new trials they may wish to conduct and wouldn't wish this devastating condition on anyone! Kindest regards, Pauline
At 6:13pm on December 13, 2013, LeslieAnn Butler said…

Good luck -- let me know how it goes!

At 4:50pm on December 13, 2013, LeslieAnn Butler said…

Hello and welcome, MJ!
How are you today?
Leslie Ann

 
 
 

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