"Hello Minter and Lu,
First I would like to mention that none of us should feel ashamed of our emotions when it comes to this horrible condition. Why should we accept this disease or any disease. Sometimes I`m so provoked by this word…"
"Hi all of you,
Back on this forum and after so many years with this dreadful disease it is obvious that only women who suffer from this condition really understand you. We lose at lot in life, even if this disease does´nt kill you, But to feel…"
I have just read your comment and I am so sorry for you. You are not alone when it comes to depression, fear, anxiety, I feel exactly like you. I was diagnosed three years ago and since then I have been on Plaquenil, Finasteride and…"
I have been on Doxycylin, Finasteride and Plaqunenil for three years now together with different ointments. without any significant success. I have even tried AIP diet without success.
Four weeks ago I was prescribed Methotrexat (strong…"
I have been in contact with Lucinda Ellery in UK. Bonded hair would be the perfect choise for me IF the bonding NOT will cause further hairloss. My dermatologist has strongly recommended me NOT to use any bonded hair at all.
Has anyone of you…"
I don´t know if this a success story yet, BUT after 4 weeks on Metotrexat, a strong immun suppressive drug, there is no redness on my scalp, the bumps are more or less gone I went to my hairdresser the other day and she noticed that…"
"Hello Minter and Bloomingdalekid,
Thank you for your response, It means a great deal to me. I am quite aware of how awful it sounds comparing this disease to cancer etc.
But I have a lots of friends who had or has breast cancer and all of them said…"
I would never ever consider to shave my head, I would rather die.
I will fight until I die against this disease, is a lifesentence.
I have been taking any available medication and I am starting with a new one next week, it is a…"
As ladies says beneath it is a part of the disease, I have got pumps all over my head itching, burning and painful, and I think is to much to endure, because it reminds you that all that hair will fall off. I´m in my third year…"
I am quite new at this forum. I had my FFF diagose 3 years ago and I will ´quote what my Doctor said " You should not be ashamed of for your feeling s or your depression, What women woudl´t be. The disease is…"
A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
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