Louise
  • Female
  • Gothenburg
  • Sweden
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Latest Activity

Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hello Minter and Lu, First I would like to mention that none of us should feel ashamed  of our emotions when it comes to this horrible  condition. Why should we accept this disease or any disease. Sometimes I`m so provoked by this word…"
Apr 28
Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi all of you, Back on this forum and after so many years with this dreadful disease it is obvious that only women who suffer from this condition really understand you. We lose at lot in life, even if this disease does´nt kill you, But to feel…"
Apr 17
Louise commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Kandy15, I have just read your comment and I am so sorry for you. You are not alone when it comes to depression, fear, anxiety, I feel exactly like you. I was diagnosed three years ago and since then I have been on Plaquenil, Finasteride and…"
Apr 2
Louise replied to Irisheyes's discussion Finesteride, Cellcept results? in the group Frontal Fibrosing Alopecia
"Hi, I have been on Doxycylin, Finasteride and Plaqunenil for three years now together with different  ointments. without any significant success. I have even tried AIP diet without success. Four weeks ago I was prescribed Methotrexat (strong…"
Feb 22
Louise replied to DW's discussion Integrated Hair Systems in Toronto? in the group Frontal Fibrosing Alopecia
"Hi, I have been in contact with Lucinda Ellery in UK. Bonded hair would be the perfect choise for me IF the bonding NOT will cause further hairloss. My dermatologist has strongly recommended me NOT to use any bonded hair at all. Has anyone of you…"
Feb 22
Louise commented on Kathy in Denver's group Frontal Fibrosing Sucess and Burnout Stories
"Hi, I don´t know if this a success story yet, BUT after 4 weeks on Metotrexat, a strong immun suppressive drug, there is no redness on my scalp, the bumps are more or less gone  I went to my hairdresser the other day and she noticed that…"
Feb 22
Louise replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"CurlyK,  My dermatologist recommended me NOT to use bonded hairpieces because they couse even more hairloss. Have you experienced that? Louise"
Jan 21
Louise replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Hello Minter and Bloomingdalekid, Thank you for your response, It means a great deal to me. I am quite aware of how awful it sounds comparing this disease to cancer etc. But I have a lots of friends who had or has breast cancer and all of them said…"
Jan 15
Louise replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Hi, I would never ever consider to shave my head, I would rather die.  I will fight until I die against this disease, is a lifesentence.  I have been taking any available medication and I am starting with a new one next week, it is a…"
Jan 14
Louise replied to Donna's discussion FFA sores on scalp in the group Frontal Fibrosing Alopecia
"Hi Donna, As ladies says beneath it is a part of the disease,  I have got pumps all over my head itching, burning and painful, and I think is to much to endure, because it reminds you that all that hair will fall off. I´m in my third year…"
Dec 30, 2018
Louise replied to Lu's discussion New diagnosis in the group Frontal Fibrosing Alopecia
"Hello Lu, I am quite new at this forum.  I had my FFF diagose 3 years ago and I will ´quote what my Doctor said " You should not be ashamed of for your feeling s or  your depression, What women woudl´t be. The disease is…"
Dec 29, 2018
Louise joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Dec 29, 2018
Louise joined Kathy in Denver's group
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Frontal Fibrosing Sucess and Burnout Stories

A site dedicated to tracking success separate from a broadly focused site on FFA. When people are new to the diagnosis and searching for info, the success side of things is elusive while the dark side is at every turn. I think this is in part because with success, one moves on. I want to make a plea for people to leave their good stories --- timeline and treatment --- here as those of us who are early in the process need the hope and understanding that success and burnout do happen.
Dec 23, 2018
Louise is now a member of Alopecia World
Dec 23, 2018

Profile Information

Relationship Status:
Married
About Me:
I am diagnosed with scaring alopecia.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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