Alopecia World
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Lolin
- Female
- Saint Paul, MN
- United States
- Blog Posts (1)
- Discussions (2)
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- Groups (3)
- Photos (8)
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Be more concerned with your character than your reputation, because your character is what you really are, while your reputation is merely what others think you are
Profile Information
- Relationship Status:
- Married
- About Me:
- Hi! My name is Lolin and I am 30 years old. I am currently living in the St. Paul area here in Minnesota. About 22 years ago while my mother was brushing my long, curly, dark brown hair, she noticed small clumps of hair from the back of my head falling out. That happened a couple more times after that and before you knew it I had 3 small bald spots on the back of my head. And it stayed that way until 5 years ago. My hair started to slowly thin out. Then suddenly like a thief in the night Alopecia had completely taken what little hair I did have. I wear a wig everyday, everywhere. I am still having a very hard time talking about it or admitting that I even Alopecia. Last September, I decided, during Alopecia Awareness Month that I would actually walk out of the house and go shopping with just a baseball hat on. I felt the eyes on me and could only imagine what people may have been whispering to each other. The funny thing is, I was completely embarrassed. I think nothing of it if I see someone who has lost their hair walking around the mall or at the beach. So why do I care???
Anyway, I am looking for people that I can be me with. I don’t know too many people with Alopecia personally but would love to! Message me anytime! And i've got myspace too!
www.myspace.com/lolin78
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Choose one
Lolin's Photos
Lolin's Blog
hmm
Posted on July 8, 2008 at 11:25pm 4 Comments 0 Likes
i have had AA for a looooonnnnnnnggggggg time now and only started talking about it 3 years ago when i got to the point that i couldn't hide it as well and needed a wig. ok so today i goy my first negative reaction when i told this one person about my AA. some of you know me,i can't repeat what was said quiet yet but would like to know what some of the nagative comments you have gotten and how you handled it.
hugs and kittens,
Lolin
hugs and kittens,
Lolin
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Stopped in to say hello.
How is everything with you?
Jeff
Wow. So she told you about me. Shes very nice. I had a great time in Louisville with her. Do you attend to some support meetings in Minnesota?
Take care, Roger.
Im fine thanks. I see that you live in Minnesota =) I met a woman with alopecia from Minnesota last summer at the conference in Louisville. Her name is Heidi. Maybe you know her?
Roger.
How are you? I love your name ive never heard it before its very pretty!
anyways just wanted to introduce myself. im pretty new to Alopecia World and wanted to meet others like me! If you ever wanna chat I would love too!
Have a great night!
CASEY
People will judge, we all do it and we always will. Unfortunately, judging and gossiping are two different things and people who gossip are not usually very intelligent. When I was very little my father used to read this poem to me about a wise old owl who spoke less and heard more. I try to remember that all the time and to always be considerate of others. If someone needs their eyes and ears opened then we all have to act together and make them realize how foolish they're being. I see myself as a teacher and role model and try to practise what I preach and I would hope that if you were in a similar situation that you would stand up for yourself too. Have a nice day!
Hows life in Minnesota?
Roger.
I just read your profile and I'm amazed about how people feel so different about alopecia.
I need to say that I also ALWAYS wear a wig. Everywhere and always except when I'm at home. I've had AT for only a few months. In march my hair was already thinner but I was still able to have a ponytail and to go out even without a hat. Now, all my hair is gone and I really don't mind. Hair, to me, has never been anything special. I've never been that kind of person who was able to style it in great and different way. Now I can wear different wigs and I look different and I feel great.
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