LeeKath
  • Female
  • Perth, WA
  • Australia
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Latest Activity

Irisheyes liked LeeKath's discussion Thinking of giving up treatments and going to a full wig
Feb 15
Jan replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"It is a very unfair situation all us ladies are in, but I've watched 2 friends die of cancer and I've come to the conclusion if this is the worst thing that happens to me - well its not too bad! I know exactly what you mean about the…"
Jan 27
CurlyK replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
" Louise, my personal opinion is that it depends on how much hair you have lost. For me, I was at the point where my temples were gone and my hair was extremely thin through the crown. Honestly, I looked like Bozo the clown before I did all of…"
Jan 25
Louise replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"CurlyK,  My dermatologist recommended me NOT to use bonded hairpieces because they couse even more hairloss. Have you experienced that? Louise"
Jan 21
RAOULA liked LeeKath's discussion Thinking of giving up treatments and going to a full wig
Jan 21
LeeKath replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Thanks CurlyK! I really like the idea of a bonded hairpiece.  I will check into it.  Not sure if it is available in my part of the world (Perth, WA).  "
Jan 20
LeeKath replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Hi Louise.  I am very sorry to hear about your struggle with this disease. I certainly felt that way when I was first diagnosed and I had some very dark days.  I have grown to accept it and am now just navigating how best to live with…"
Jan 20
LeeKath replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Thanks for sharing Diart I've heard of others who've managed to reduce their inflammation using CBD cream so I might look into it."
Jan 20
LeeKath replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Thanks! I like the idea of the bangs with hairbands.  I will check into this.  "
Jan 20
LeeKath replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Thanks so much for sharing your experiences Bloomingdalekid. I agree with you on taking the medications.  I just don't feel my hair is more important than my health anymore.  I also am not sure the drugs are making any difference. I…"
Jan 20
LeeKath replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Many thanks Liz. I've never heard of an integrated hair system.  Would love to see some pics."
Jan 20
CurlyK replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"LeeKath - I SO relate! I never did any medications because by the time I found someone knowledgeable enough to know what this was, my hair was too far gone. I did all of the products, shampoos, Toppik, etc and thought of shaving my head but I'm…"
Jan 16
Minter replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Hello Fi,  I am sorry you have to join us, but glad that you have found us because this is a really good, supportive group that has helped me a lot :-)  Look into Lucinda Ellery, they have salons in the UK & do a free consultation and…"
Jan 16
Minter replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Louise, I am glad you are writing down your feelings as it definitely helps to get it out.   I don't really have anyone else to talk to about this either, except for my hairdresser- who I am very lucky to have as she is very patient and…"
Jan 16
Fi replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"Hi Everyone I am in the Cambridge UK and have been thinking about options for a hairpiece/integrated system etc.  I have visited a few places for wigs and the problem for me is that I have a small head so not many fit me, and my hair at the…"
Jan 16
Bloomingdalekid replied to LeeKath's discussion Thinking of giving up treatments and going to a full wig in the group Frontal Fibrosing Alopecia
"The salon I go to deals with all kinds of alopecia, including FFA.  I have a bonded system and, as many others on this forum have stated, I am not to the point of shaving the crown of my head in order to adhere the piece - right now I use…"
Jan 15

Profile Information

Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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