"Hello Fi, I am sorry you have to join us, but glad that you have found us because this is a really good, supportive group that has helped me a lot :-)
Look into Lucinda Ellery, they have salons in the UK & do a free consultation and…"
"Louise, I am glad you are writing down your feelings as it definitely helps to get it out. I don't really have anyone else to talk to about this either, except for my hairdresser- who I am very lucky to have as she is very patient and…"
I am in the Cambridge UK and have been thinking about options for a hairpiece/integrated system etc. I have visited a few places for wigs and the problem for me is that I have a small head so not many fit me, and my hair at the…"
"The salon I go to deals with all kinds of alopecia, including FFA. I have a bonded system and, as many others on this forum have stated, I am not to the point of shaving the crown of my head in order to adhere the piece - right now I use…"
"Hello Minter and Bloomingdalekid,
Thank you for your response, It means a great deal to me. I am quite aware of how awful it sounds comparing this disease to cancer etc.
But I have a lots of friends who had or has breast cancer and all of them said…"
"Louise, I have to say that sometimes I have had the same thought, that it would be easier to deal with a missing limb, or have a bald head because of chemo then because of this creeping insidious disease with all it's horrible side effects.…"
"I am so sorry to hear about your depression over this disease. It is HORRIBLE, I get that, and it sounds like you have made the decision to take drugs with unknown side effects in the long term. Personally, I chose NOT to take the drugs…"
I would never ever consider to shave my head, I would rather die.
I will fight until I die against this disease, is a lifesentence.
I have been taking any available medication and I am starting with a new one next week, it is a…"
"I, too, am 65 and LOVE my bonded hairpiece - even though right now I’m only bonding it at the front and using pressure clips for the rest of my head. I often think wigs would be easier, but I am not ready to go there yet. I still…"
"I’ve only been doing this with the clips for less than a week. I’m still “new” at it and it only takes me about 10 minutes from start to finish. The hardest part is making sure that I don’t put the tape too…"
"I have tried a number of things. I went to wigs because I was so tired of the wispy, little old lady hair. Not gray enough to color, perms fry, etc. I got tired of the wigs. Because my hair seemed healthier after wearing a wig. and I looked at times…"
"I was sick and just wanted to rip my hair off and couldn’t because it was linked to my head. I had a fever, I was sleeping a lot and I just wanted it off of my head. I wouldn’t go to the salon to have them remove it because I…"
"Can I ask you Bloomingdalekid, why you decided to go with clips this time around? Is it so you could remove your hairpiece at night for comfort? Overall you seem happy with your system which is good to hear! Thank you to you and…"
"H Kath. Like Liz, I too wear an integrated hair system - more than a topper but less than a wig. (Although there are days that I think about getting a full wig - it would just be easier. I wear a custom hair topper that was molded…"
"Hi Kath. From what you describe I think we've lost a similar amount of hair. I don't take any medication and now have an integrated hair system. I'd be happy to message you some pictures of you like xx "
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