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  • Salt Lake City, Utah
  • United States
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  • Megan
  • Jill Casaldi
  • Rainey Clark
  • Dustin Nelson
  • Jenn
  • Shannon
  • LeslieAnn Butler

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About Me:
I have had AA for 7 years. I started out with just a small spot and went to the dermatologist who diagnosed me with AA. I had never heard of the disease and never knew anyone with it. I started having cortisone injections in the scalp monthly. Slowly it progressed into more and more spots. I have to tell you that I felt like we were just chasing the spots around my head. One would grow back some hair and another one would lose the hair. Every month I left the Dr.’s office feeling very frustrated plus the shots were painful. I remember giving a speech at a Family Reunion (100 plus people) and the wind started blowing and I just sat and prayed that my hair wouldn’t move because of all of my missing hair. I began to hate the wind and my hair.
Two years ago I decided to start wearing a wig. What was funny is that no one noticed! My family knew, but I had to tell my friends I had a wig on.
After reading about others who had shaved their heads, I finally got the courage to shave my head last summer. I was sick of the disease being in control of me. It felt good in a strange way. I still wear my wigs most of the time.
It has been a journey, and one that you all so courageously have been on. I love to read the encouraging words here. Life seems to just keep getting better!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 9:20pm on May 1, 2009, Cheryl, Co-founder said…
Hi Kathy, your comment really touched me. You mentioned that you don't post much, but our wedding was "post worthy". Thanks alot my made my day! Cheryl
At 12:40am on February 5, 2009, Shannon said…
Thanks for your kind comment, Kathy. I wasn't sure if you were active on this group or not but I'm glad you commented back. Yes, shaving your head can be liberating in many ways. It is not easy or fun but it is always good to look at the bright side. Thanks for saying that I have helped you in some way. I sure hope so. If we can't learn from our trials and help others then we are wasting a lot of suffering. :) I hope to get to know you better. Take care, Shannon
At 6:32pm on June 21, 2008, LeslieAnn Butler said…
Hi Kathy!
Yes, you need a prescription for Lumigan. Do you have a dermatologist who is knowledgeable about alopecia? You can get it from her/him. It's very new, cutting edge so not all derms may know about it.
Hey! Tell me how you like the book, okay? I would love to know!
At 1:54pm on June 18, 2008, LeslieAnn Butler said…
Hi Kathy,
To keep your eyelashes, you might try Lumigan. It's a new discovery that originated to help glaucoma, but has been shown to help alopecians keep their eyelashes, and even grow them back. Check with your doc! It may be covered by insurance.
And, how are you today?
By the way, you might like to read my book! It's called "If Your Hair Falls Out, Keep Dancing!" Check it out by going to my page, and if you want to get it you can click the link AND you'll get a discount!
Hugs, LeslieAnn
At 11:28pm on June 16, 2008, Cheryl, Co-founder said…
Hi Kathy, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 9:06pm on June 16, 2008, Drew said…
Hello Kathy, and welcome! I hope you find the support and answers you need here like I have. Best of luck...



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