Shay and my girl Kaleigh :)
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  • Morganton, NC
  • United States
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Shay and my girl Kaleigh :)'s Friends

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Shay and my girl Kaleigh :)'s Discussions

Our First (small) Alopeica Awareness Project!

Started this discussion. Last reply by Angie, Gracie's mom Sep 25, 2009. 1 Reply

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Shay and my girl Kaleigh :)'s Page

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I'm new to alopecia but trying to learn more about it. We found out today that my 2 year old daughter does have alopecia. I'm feeling helpless and alone but I'm trying to focus on all the positive things in her life, and this site helps sooo much with that!
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Shay and my girl Kaleigh :)'s Photos

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Shay and my girl Kaleigh :)'s Blog

Doctor's appt tomorrow

Posted on September 18, 2009 at 2:32am 11 Comments

its 2am and I can't sleep, the house is quiet and my dd if fast asleep with no worries. She has a dr. appt at 4:30pm tomorrow at which time I will be wishing that I could sleep, I'm sure. I want them to do blood work so we can learn as much as possible but yet I don't because I HATE HATE HATE having to hold her down and… Continue

What a Day!

Posted on August 30, 2009 at 7:24pm 1 Comment

Sundays are my favorite day of the week! I came home this morning from work to find that a water pipe had busted under the house yet again. So I fill up the kitchen sink before he cuts the water off. First I bathe Kaleigh then get her out and start to let the water out. Panic sets in for a split second as I realize if I let the water out there will be none for me and I need to shower before church so I grab the sink stopper and plug the hole. As I'm climbing in the kitchen sink to take my turn… Continue

More hair loss

Posted on August 27, 2009 at 10:18am 0 Comments

Guess I'm not really looking for answers at this point, just coming to accept that we will never know what tomorrow holds. We do have a new bald spot and some more thinning hair. So far, this has all been in the same area, very close to each other. I'm having dreams now, that she is bald and I fall apart. I guess thats my fear, not the baldness but that I fall apart and can't give her the support she needs. I'm to the point now of asking myself how I can turn this into a minsitry. Not that I… Continue

Feelings...

Posted on August 21, 2009 at 12:30pm 0 Comments

I'm not even sure what I feel right now. I am going to school to be a sign language interpreter so I am comfortable with being involved with the Deaf culture/Deaf community and I have always imagined how life would be if my daughter was somehow different from other kids. I thought that I would embrase it with positivity and open mindedness, that it would not change a thing. That I would adapt and do what needed to be done without feeling sad for her but I just can't do that right now. I don't… Continue

Comment Wall (11 comments)

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At 6:02pm on December 22, 2009, Samantha said…
Hi , Sorry Ive not been talking to you guys I men it . But Ive been doing good in school . Samantha
At 2:51pm on November 17, 2009, Angie, Gracie's mom said…
Hey Shay, wondering how you and Kaleigh are doing these days? How are the pagents going? We are doing well, gearing up for the holidays.Gracie is going through a frustrating stage where she does not understand "later" and does not agree with "no!" Can't wait for her to really start talking and reasoning to kick it!! :) Angie
At 3:32am on September 26, 2009, Annie said…
Hi there!
What a beautiful girl you got! Read some of your blogs and recognize many of your thoughts and feelings. I was supprices to realize how strongly I identified myself with my daughter when she got Alopecia. What is that, a mother-daughter thing? I even dreamt at night that I found patches on my own head.
One day I feel that my daughter Klara, 8 years old, is soo strong. Look how well she answers other kids questions! She s comfortable without a wig, wears a cap sometimes. Other days I feel I am wrong supporting her currage not to wear wig, maybe she s not that strong really, and she d be happier with a wig? One day I feel that she is sooo coool not minding the looks and the questions. The next day I think about how shy she really is, not the type to be standing on a stage, and what does it do to her being looked at like this, for this reason.
What is the right way to support her? And does act as if her hair doesnt matter even work, when I cry from worry for her and her hairloss, when she doesnt see it. They say children can allways tell what their parents feel. Just in case I tried telling her that I am upset by her Alopecia because I can see that it upsets her at times. (she is at times) And that is really the truth anyway.

Ysterday we went to the swimminghall, and the 12-yearolds gave her the reagular looks in the changingroom. Klara made a great deal out of calming the little fuzz she got left. Unfortunatly there was a knot involving halv of what she s got left. Pulling it it broke off. I have no illusions of her keeping her fuzz, it is too fragile. She didnt cry or anyting, but her face was hartbreaking, at least from where I was standing (or was it my feelings talking?) She went on to calming her sister instead, giving her compliments about her hair. Klara wants to be a hairdresser.
Take care, and hope to read more about how your coping and if you have any strategies for it all!
At 2:17pm on August 24, 2009, Angie, Gracie's mom said…
Welcome to the site! My daugter is almost 20 mo old, and has had AA since she was 13 mo old. I guess I've been dealing w/ this for awhile--I'm at the point where its not so raw anymore. Friends and family are helpful, but I found the commonality of this site to be the most helpful. Let me know if you have any questions or want to chat! Angie
At 5:10pm on August 22, 2009, LeslieAnn Butler said…
Yes! Go to this link for the children's video and they'll send it, free.
http://www.naaf.org/temp/childrenvideo.html
At 3:27pm on August 22, 2009, LeslieAnn Butler said…
Hello and welcome, Shay!
There is also a lot of good information on the National Alopecia Areata Foundation web site. When she is ready for school, you can get a free school pack which includes a video that the teachers can play for the school to help everyone understand the condition.
Go to www.naaf.org.
LeslieAnn
At 8:35am on August 22, 2009, Cindy said…
Hi Shay, this is Cindy, Samantha's mom..I did not realize it, but I wrote you an note from Sam's page...I am glad I could help..write anytime..Cindy
At 5:31pm on August 21, 2009, Samantha said…
I want to add, that you should contact the childrens alopecia project. They maybe able to help you locate a family in your area for local support. They are great..www.childrensalopeicaproject.org..Your daughter is cute no matter what!!
At 5:29pm on August 21, 2009, Samantha said…
Hi Shay, your daughter is the cutest thing? This condition can take a toll on us as parents emotionally. Once you have time to absorb it all things will get better. How are you and your daughter doing? I hope you find the comfort in this site that we do..Cindy
At 3:36pm on August 21, 2009, Tracy and Amanda said…
Hello and Welcome,

How are you and your daughter. I also have a daughter with alopecia. This is a great site for support. Hope to be talking with you soon.

Tracy
 
 
 

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