Johnny99
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  • Edinburgh
  • United Kingdom
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Johnny99 replied to NicoleT's discussion Xeljanz from India
"Hi Everyone, I'm in the same boat as some of the recent posters here - Beacon are now asking for details of my prescription and I don't have one. I live in the UK and as far as I know there isn't a doctor in this country who will…"
Feb 6, 2023
Johnny99 replied to NicoleT's discussion Xeljanz from India
"Hi Dan, From what I've gathered the following should be tested:  lymphocytes, neutrophils, hemoglobin, liver enzymes, lipids (cholesterol).You'll find those mentioned in the Pfizer prescribing information…"
Jul 5, 2019
Johnny99 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Everyone! I'm looking to start taking Xeljanz and have just had a blood test before starting treatment, as is recommended. It turns out that I already have high cholesterol, which is a bit of a blow. I understand that a common side effect of…"
Jul 5, 2019
Johnny99 replied to NicoleT's discussion Xeljanz from India
"Hi Everyone, After paying a small UK customs charge, I've now received my first delivery of ten boxes from Beacon. Exciting! Magmck - sorry it's taken me so long to reply to you. I'm going to enquire about having blood tests done…"
May 31, 2019
Johnny99 replied to NicoleT's discussion Xeljanz from India
"Hi All, Firstly, a sincere thank you to everyone who has contributed to this thread so far and shared their experience, the information found here has been enormously helpful.  I ordered 10 boxes of Tofacinix from Beacon two weeks ago,…"
May 17, 2019

Profile Information

Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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