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Jennifer - Mom of Scott
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Science Research Survey - Emotional and Social Impact of Autoimmune Diseases
Started this discussion. Last reply by Callum Neild Feb 4, 2021. 1 Reply 0 Likes
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- Relationship Status:
- Married
- About Me:
- My name is Jennifer and I have 3 beautiful boys. I have a 7 year old and 5 year old twins. One of my twins, Scott, was diasgnosed with alopecia areata just before his 4th birthday. He has had 2 "episodes" so far. The 1st time he lost 20% of his hair and it all grew back within 6 months. The 2nd episode was almost a year to the day later and he lost 50%. We are starting to see regrowth now. We have grown his hair long enough to cover most spots now and we use a hair crayon on his scalp to camouflage the spots that are more obvious. This second episode has been much more difficult to handle but things are looking up right now!
- Are you age 18 or older?
- Yes
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Comment Wall (17 comments)
- At 4:40am on September 7, 2015,
MOM2607 said…
Hi Jen,
My daughter who turned 6 in Aug, has alopecia. Her first experience was in Dec 2014. She lost over 60% of her hair, but a year later she had grown all of it back. This year 2 days before her birthday I noticed a new patch. A month now and everyday she looses hair...the alopecia this time is difference as it seems to be slower but I dont know what to expect!
PLease connect so that I have someone to talk to
- At 2:16pm on August 10, 2009,
Cindy said…
- Hi Jennifer, it was nice to meet you at the CAP conference. I would love to keep in touch and see how Scott makes out..Cindy
- At 6:04pm on January 20, 2009,
- Hi Jennifer - I am having a hard time as well with this site. My e-mail is patty916@optonline.net. Please contact me as soon as you get a chance. THanks, Patty
- At 12:05am on September 19, 2008,
JeffreySF said…
- Hi Jennifer,
I just wanted to let you know about a product that is amazing. It's called XFusion Check it out. You can get it at hair salons and it's not very expensive and is way Fab.
www.xfusionhair/info
Jeff
- At 10:49am on May 7, 2008,
Miranda said…
- Hi...
Well, we are flying phoenix to see a pediatric dermatologist. We are going to start something called Squaric Acid Dibutylester. We tried all of the possibilities that new mexico has to offer. This is the treatment that Cindy's daughter uses. We have never gotten results from any treatment before.
I just signed up with the National Alopecia Registry at MD Anderson. They called me back and signed up my other twin because they said they are in great need of twins. I guess with twins they find out the answers better, especially if only one is effected. We now have to send some blood samples from both girls, but if they find something promising Della will be one of the first able to try it.
- At 12:21pm on May 6, 2008,
- Hi Jen! I haven't talked with you for awhile! How is everything going?!
- At 12:25am on May 5, 2008,
Michelle (mom of Sam) said…
- Hi Jen, yes, my twins are identical. The twins had Chicken Pox in February and we noticed a small bald spot on the back of Sam's head a few weeks later. The pediatrician is pretty confident that this triggered Sam's AA. My twins also have autism so Sam doesn't notice anything different. I can't wait to see the pediatric derm so he can give us an idea of what to expect. If we do any treatments, they will have to be holistic as we do not believe in the use of meds unless medically necessary. We were told to try Aloe Vera. Have you tried this? Michelle
- At 9:51am on April 17, 2008,
Debbie G. said…
- thanks for the message jennifer! I would love to chat more, i don't know how you feel about leaving your email on my page? let me know! my son blake is currently just using an ointment that is usually used as an immune-supresent medicine. we rub it on his spots and then hair will usually regrow. that is all we use or have ever used on him. how about you? do you use anything on scott?
- At 12:37pm on April 15, 2008,
- hi Jennifer~
My name is Debbie and I have a son Blake who is 7 and has had alopecia since he was 1yr. old. He is currently regrowing almost all of his hair(he was completely bald for quite a few years) but has some bald spots in the back. I would love to chat w/ you more especially about the hair crayon you use...I've never heard of it! Take Care~Debbie
- At 10:38pm on April 12, 2008,
Andrew said…
- Hi Jennifer! If you ever want advice...just send me a message. I have been were Scott is. It's tough, but with support from a great mom like you....I know he will be fine!
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