Jean
  • Female
  • Kent
  • United Kingdom
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Profile Information

Relationship Status:
Married
About Me:
Diagnosed with FFA about 18 months ago. Still just about able to cover hair loss but will soon have to resort to wigs. Married with two grown-up children and two lovely grand children - everyone very supportive.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 6:28am on April 30, 2018, Plf said…

Hi Jean, I hope that you FFA is still in remission, the problem I have with this support group is that long term members stop contributing, which leaves me to believe the worse that there is no cure and a hair piece is required.  The literature says the disease burns itself out..if this was the case with you, would you be happy to answer a few questions..I am currently resisting medications due to toxicity and lack of results..bit would love to here your story..I know it's traumatic bit bome guidence would be great..hope you r one of the lucky one, 

At 6:23am on April 30, 2018, Plf said…

HHi jeanH

At 5:01pm on June 4, 2015, Lo said…
Jean, I saw your comment today about the positives of having FFA. That was a good reminder. I have to ask a question. Is your hair loss to a point that you are in a wig daily? Have you lost a lot? And may I ask what medicines/treatments you've been on since diagnosis. Any info would be appreciated. Blessings, Lori. If you prefer to email me outside of this site, feel free. My email is lobertella@yahoo.com. Thank you so much.
At 5:09am on October 13, 2014, Celia said…

Hi Jean - we are having a get together on Thursday 16th Oct - can you make it ? C XX

At 5:38pm on November 2, 2013, LeslieAnn Butler said…

Hello and welcome., Jean!

How are you today?

Leslie Ann

At 5:50pm on October 13, 2013, Celia said…

Jean - glad you had the Belinda Hayle treatment - I wonder where in the UK you live and whether you would like to come to the next get together we will have in the spring, if you're close enough. ^ of us got together last week for the second time and it was so good to talk. Hope you get this message, Celia.

 
 
 

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