• Female
  • Aberdeen, WA
  • United States

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  • Susan Innes
  • LeslieAnn Butler

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About Me:
I am a 51 year old woman. I was diagnosed with alopecia areata 2 years ago. It was very devastating. It then turned quickly to totalis and is now universalis. However, it has started to regrow on my head. It is still very thin and came in pure white. I finally got the courage to color it and it does look better. But, I still spend my most of my waking moments thinking about my hair and how I hate that this has happened to me.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Jean's Blog

No wheat is working!

Posted on April 14, 2013 at 3:46pm 0 Comments

I've been off of all wheat products for around 3 months. People are starting to notice that my hair is getting fuller!!!

Wheat Belly

Posted on January 25, 2013 at 6:25pm 9 Comments

So, I was reading the book, "Wheat Belly," and it said that there may be a connection with Alopecia, along with other autoimmune disorders that are connected to eating wheat. I have gone off of wheat, just to see if there is any truth to it. I will keep you posted!

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At 12:30pm on November 29, 2012, LeslieAnn Butler said…

Yes, I first had patches, then it morphed into AU. I never had AT only, it all came on together...

At 2:52pm on November 28, 2012, LeslieAnn Butler said…

Hello and welcome, jean!
How are you today? I have AU, too.
Leslie Ann

At 1:42pm on November 19, 2012, Susan Innes said…

Hi Jean,
Most of my hair fell out during my late 40s; it also came back as soft fine white hair which, like you, I continued to dye. The hair loss consumes us. I started an artistic hobby to keep myself from running fingers through it all day...all tests to see if the situation was improving. If the loss worsens over the holidays, you might try an inexpensive wig (which I wore to an Easter Shrove pancake supper; it matched my own hair closely so I don't think people even noticed.) There's probably a salon in your area that could help; my husband accompanied me which helped considerably. I wish you well...((Hugs)) Susan



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