Jc
  • Female
  • Barre, VT
  • United States
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Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think I'm in that percentage also. No family history and xeljanz isn't working for me either.  It's very disheartening.   I tried cyclosporine and prednisone with no luck. Tons of kenalog shots which worked at first and…"
Jan 6
Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Mine is getting progressively worse and I've been on xeljanz for 3 months. Not helping at all as far as I can tell...still on kelalog injections every 6 weeks also. Almost time to give up and deal with very minimal hair.  Just a few…"
Jan 5
Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been taking the 2 pills a day for almost 3 months and nothing new, actually it has gotten worse. I will keep taking for a bit longer to see."
Jan 4
Jc replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I've been taking it for almost 3 months and NOTHING yet.  I'll try 1 more month. I'm devastated but can't keep putting all this poison in my body... wish it worked quicker but heard it doesn't last anyway..."
Jan 2
Jc left a comment for Jc
"Has anyone taken xeljanz and had their symptoms gotten worse? 2 1/2 months and my hair is almost all gone. No new growth and it's worsening.. not sure if I should stay on it."
Dec 31, 2018
Jc replied to NicoleT's discussion Tofacitinib Results after 9 Months
"Most posts I have read say they can see something in like 2 months. I have been taking it for 2 1/2 months and see nothing. actually it has gotten worse. now I am losing eyebrows and nothing on legs and arms.  I was ready to give up but maybe…"
Dec 31, 2018
Jc is now a member of Alopecia World
Apr 16, 2018

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 12:42pm on December 31, 2018, Jc said…

Has anyone taken xeljanz and had their symptoms gotten worse? 2 1/2 months and my hair is almost all gone. No new growth and it's worsening.. not sure if I should stay on it.

 
 
 

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