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Developing alopecia at a young age
Started this discussion. Last reply by ciearap6 Feb 9, 2015. 19 Replies 0 Likes
Janna's Page
Profile Information
- Relationship Status:
- Married
- About Me:
- I'm a mommy to three beautiful girls, Isley and Lynnea, and baby Fiona, and have been married to my best friend, Graeme, for 11 years. We live in sunny western Canada. I'm just entering my 30's and life has never been better. I'm very blessed and I look forward to each day.
Alopecia touched our lives when my youngest daughter, Lynnea, developed it at just 8 months of age. She's now 5, and we've been seeing a naturopath and have been seeing some improvement in her immune system activity. She's even grown her eyebrows back! We know that this might be temporary, but she's beautiful with or without hair. She has a sparkling smile and a personality that just shines.
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes
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Janna's Blog
PLAYING A LITTLE CATCH-UP!
Posted on July 16, 2009 at 3:26pm 0 Comments 0 Likes
It's been AGES since I've last been logged on, and I'm feeling rather ashamed that I haven't been in touch with you wonderful people as I should have been (darn Facebook vortex...). So, to make amends for my absence, I've transferred my Facebook Blog over to my Alopecia World page. It's the way I keep in touch, and hopefully, if you find it entertaining and a worthwhile read, it will give you a little glimpse into my life as a… Continue
Taking a Moment to Play
Posted on March 23, 2008 at 12:13am 6 Comments 0 Likes
Learning from My Children
Posted on March 8, 2008 at 10:00pm 8 Comments 0 Likes
"Mom, can you stay a yiddle bit?"
"No, Sweetie. You need to go to sleep now."
"Pease? Just one cuddle on my pillow???" (??? denotes this little high pitched thing she does at the end of her questions)
"Alright. Just for a minute..."
"Sanks, Mom." Nnea then starts to caress my face and cheeks. She says… Continue
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Thanks so much for your note. I to am not on AW that often. I try to remember to check - but time sometimes escapes me.
Let me know if you do end up coming to Vancouver. I know I am a lot older than your daughter - but perhaps meeting someone else with a similar problem would help. And if she meets my mom (also has alopecia) and can see that I am her daughter with the same problem..... whatever you think is best. I know some little girls in Alberta with the same problem. Breaks my heart.
I hope you had a great holiday. I look forward to meeting you one day. Let me know if you make it across the water.
Your friend Nikki
That is so sad about your daughter. I have a daughter age 6 and it's my worst fear that she to will get Alopecia. My mom has it to. So it's on my mind a lot. How does she cope? Does she want to wear hair or go au naturel?? With me... mine started at 11 and I made it through school and even my wedding. But shortly after that I had to wear a hair piece. Now...some 18 years later I am good with it. My husband loves that I don't spend hours in the bathroom and there is never hair all over the floor. So some positives. I would love to meet one day. Actually I am supposed to be in Victoria for business at the end of the Nov. Not sure 100% if it's going to work - but I would love to meet up with you. If I don't end up coming - do you ever come to Vancouver?? I have organized a meet and greet (it was in the summer). Only one person came. I will try and do it again though. It's nice to know that there is others with the same problem.
Thanks so much for getting back to me. I look forward to talking more to.
SO glad to hear from you and glad to see that Lynnea, Isley, and Fiona are doing great!
Hope you're enjoying the winter -- how is Nnea's hair doing?
Hugs, YoKasta
Just dropping by to say hello to you, Graeme, Lynnea, Isley, and baby Fiona!! Hope things are going well for you guys!! Give my favorite girls lots of hugs and kisses for me -- perhaps one day we will finally meet at the NAAF Conference??? :)
YoKasta
How are Graeme and the girls doing?? I was outside on this lovely spring day here in TN and thought about you and the girls and just wanted to say hello! Hope all is well!
Hugs, YoKasta
Merry Christmas to you too , i hope you and your family have a wonderful holiday !
xoxo , Essence .
Tell Graeme I am sorry to hear of him losing his beloved father; I lost my own father 8 years ago and there isn't a day that goes by that I don't think of him -- he was my biggest supporter growing up and really was my bestest friend in the world -- I sometimes feel like every day that he's been gone has been really hard, and although you never get used to the idea of someone that close to you being gone, it does get easier knowing that he isn't suffering or sick or hurting in any way any more!
Please don't be a stranger; and Happy Holidays!
How are my favorite little girls on Alopecia World doing?? By now you should have had the new baby; how is he/she doing? What did you name him/her? As long as he's healthy, I'm overjoyed for you and your family!
If I don't hear from you soon, Merry Christmas and Happy Boxing Day! BTW, can somebody explain to me just what the hell Boxing Day is???
YoKasta
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