Jan
  • Female
  • Palmerston North
  • New Zealand
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  • Pamela S
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Jan's Discussions

Motorbiking! Alopecia and helmets - advice please :)

Started this discussion. Last reply by BaldGirlsDoLunch.org Feb 2, 2009. 5 Replies

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Profile Information

Relationship Status:
Single
About Me:
Have had alopecia for about two years now ... would love to connect with others who have similar experiences!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes

Comment Wall (23 comments)

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At 4:10pm on September 3, 2014, Ginny said…

We are a small group who meet occASIONLY Do you want to join us? I send out a short monthly newsletter

At 8:43pm on November 15, 2010, Holly Dixon said…
Hi Jan,

My apologies! I haven't been on here for so long now and am now catching up! Phillipa and I did meet up. It was lovely to finally meet someone else in the same boat! I'd still love to meet up with you sometime. I'll try to jack something up. Perhaps a weekend before Christmas?

Cheers,

Holly
At 4:50am on October 6, 2010, Kath said…
If you do come up here I am sure my lady here could help. I have had both my Freedom wigs highlighted now which is nice. Let me know if you want her details and if you came up we could meet up! Kath
At 6:45am on September 23, 2010, Kath said…
hi Jan. I just saw your not about getting your hair washed at the hairdressers. Do you ever come up to Auckland, becaseu the lady that I have here to cut my hair is fantastic. She is in a private salon from her home and is used to freedom wigs. Let me know if you want more info. Kath
At 4:12am on May 26, 2010, Holly Dixon said…
Hi Jan :)

Would you be interested in catching up with myself and Philippa (also from Wellington) some time over Queen's Birthday Weekend? :)

Cheers,

Holly
At 4:36am on May 23, 2010, Holly Dixon said…
Hi Jan :)

Thanks for your reply to my thread :) I hadn't forgotten about ya!

I wanted to leave it for a bit before I responded till I had a fair idea of the number of people who are keen. So far, it's only you & one other. But that's okay :)

So I see your from Palmy ... would a catch-up on a weekend suit you?

Cheers :)

Holly
At 3:24am on October 18, 2009, Kath said…
no prob - drop me a note if you want to chat or if you come up to Auckland. From what I understand a lot of people get longer freedom wigs. My first one was slightly shorter and then when I got my second i left it a bit longer as i felt more comfortable with that. Still short though. You can get the curly, straight etc as well so really individual. talk soon. Kath
At 3:56am on October 12, 2009, Kath said…
Hi Jan - I have a short freedom wig - in fact 2 of them. I will put up a couple of pics on my page for you to look at. I was the same as you and always had short hair and short synthetic wigs. I was worried if I could get a freedom one short enough but it has worked out really well. Feel free to give me a call to chat if you want. email me and I will send number. Talk soon
Kath
At 1:44pm on July 1, 2009, Sharon said…
Hi Jan Nice to meet you. Our daughter Nicole (12) has had alopecia since she was 8 and has been AU for about 2 years I guess she has lost her eyebrows and most of her eyelashes...........however the eyebrows are trying to grow again =).

Nicole has just had her Freedom wig highlighted..........check out our page I put some pics on there.......it looks great. It would be great if we could all get together at some stage.
Anyway Take care
Sharon
At 4:08am on July 1, 2009, Kath said…
Hi Jan - lovely to hear from you. I have had both of my Freedom wigs highlighted. Just make it look a bit trendier. In fact I quite often get comments from the ladies in the office how my "new" colour looks so good - if only they knew!!! If you hairdresser isnt keen, you could contact mine - who also Deanna uses. She may be able to talk to your hairdresser. Alternatively if you were planning a trip to Auckland you could do it up here. I would chat to Deanne though as I think that you just do it like normal hair - highlights in foil. Not too many though. Let me know if you need help. PS - you look great!
 
 
 

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