Donna
  • Female
  • Seattle, WA
  • United States
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Donna's Discussions

Microblading

Started this discussion. Last reply by Anne Williams Jun 27, 2018. 6 Replies

i had my eyebrows microbladed yesterday .  I have frontal fibrosising alopecia.  After she started with the microblading she was having a hard time with my skin on the eyebrows.  She said it was very…Continue

Using rogaine

Started Oct 30, 2017 0 Replies

With frontal fibrosing Alopecia I am only using the rogaine on the temples & hair line area. Not all over. What are other doing

FFA how much hair loss will happen

Started this discussion. Last reply by Murmo Aug 14, 2018. 2 Replies

How much hair loss is average for FFA? I’m so worried I’m going to lose half my head of hair. I saw a woman that was almost bald except for the back half of her head.

I’ve read some that Tramadol can cause hair loss

Started this discussion. Last reply by Return_life Oct 10, 2017. 3 Replies

I have been taking tramadol for several years. 2x/day Does anyone experience hair loss that they think may be caused by it? I don’t know if it is or is t with my FFA

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Louise replied to Donna's discussion FFA sores on scalp in the group Frontal Fibrosing Alopecia
"Hi Donna, As ladies says beneath it is a part of the disease,  I have got pumps all over my head itching, burning and painful, and I think is to much to endure, because it reminds you that all that hair will fall off. I´m in my third year…"
Dec 30, 2018
Jules Australia replied to Donna's discussion FFA sores on scalp in the group Frontal Fibrosing Alopecia
"Hi Donna Yes I have had many of these over the 6 plus years with lpp & ffa. They can be tender & quite irritating. They are actually called papules ( little red or pinkish pimply sores, inflammation on the scalp at top of the hair follicle),…"
Dec 21, 2018
Jan replied to Donna's discussion Have FFA & now red bumps on scalp in the group Frontal Fibrosing Alopecia
"I've had this and its very unpleasant. I started using a shampoo called Garnier delicate oat (rice cream and oat milk). Very soothing on the scalp. Not sure if you may need to go through Amazon to buy it now. I've had mine for some…"
Dec 17, 2018
Jan liked Donna's discussion Have FFA & now red bumps on scalp
Dec 17, 2018
DW replied to Donna's discussion FFA sores on scalp in the group Frontal Fibrosing Alopecia
"Yes, unfortunately I have experienced this as well. Mine usually occur on my forehead and the top of my head/scalp. Also sore, not necessarily itchy. A friend of mine who also has FFA was told by Dr. Jeff Donovan, whom I’ve also seen in the…"
Dec 16, 2018
Donna added 2 discussions to the group Frontal Fibrosing Alopecia
Dec 16, 2018
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"You look really good Bloomingdalekid .  Where did you get that piece & was it expensive?  "
Nov 27, 2018
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Rose, I just saw your post.  The clobestatol I use is a solution.  It’s not a lotion or a cream.  It’s clear & like water & I only need to use a little bit along hairline."
Nov 21, 2018
Donna replied to Rose's discussion FFA too young in the group Frontal Fibrosing Alopecia
"I have been using clobestatol  propionate topical solution 0.05% 3x week.  When I was first diagnosed the doctor told me to use 2x/day for two weeks. Then once a day for a few months. Now I am using it 3x/day since the inflammation went…"
Sep 25, 2018
Donna replied to Rose's discussion FFA too young in the group Frontal Fibrosing Alopecia
"It’s hard to tell by your photos.  You should just look at photos already online. They have a lot of good ones that show the receding.  My inflammation started out with little red dots above my forehead in the hair roots. I didnt…"
Sep 24, 2018
Rose replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"What type of sunscreen are you using I’m looking for a new one that doesn’t have a lot of chemicals."
Sep 21, 2018
DragonandFox replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"I notice more loss different periods but haven’t noticed it being a certain time of year.  Rather I relate it to stress or I’m wondering if it’s connected to what I eat or what I’m putting on my head ( shampoo, coloring,…"
Sep 21, 2018
Steve replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Wow! This is exactly the same as me. I thought I was going a little bonkers when I used to think mine was seasonal. Every time my AA has decided to flare up or get very bad is always within the months of May to August. This year it is bad again…"
Sep 17, 2018
Diart replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Thanks AnnieMay for your comment. My head has been very sensitive this summer. I have been thinking it is due to wearing hats a lot more. I'm trying to wear more sunscreen clothing and big hats so I don't have to use sunscreen very often.…"
Sep 13, 2018
cubbieblue replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Interesting observation!  I too notice more hair loss during the times my sinuses are acting up, particularly in the late summer early fall when the mold is high.  I've always wondered if this condition is related to…"
Sep 13, 2018
AnnieMay replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"I don't notice more hair loss at certain times of the year but what I do notice is differences in the sensitivity of my scalp. This summer has been very hot here and it's been driving me crazy. I try and forget about all this but it's…"
Sep 12, 2018

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Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 7:56pm on November 14, 2017, illustr8r said…

Hi Donna,

This is the thread where the essential oils were listed:

http://www.alopeciaworld.com/group/frontal-fibrosing-alopecia/forum/topics/essential-oils

It was posted by "April"

Here is the recipe:

4 tsp. grapeseed oil + 1/2 tsp jojoba oil

2 drops cedarwood EO

2 drops thyme EO

3 drops lavender EO

3 drops rosemary oil

Here is  a link to the study

http://www.ncbi.nlm.nih.gov/pubmed/9828867

I have a friend who has always had thin hair. She hasn't been diagnosed with anything- just unlucky in the hair dept. She started using essential oils and had some success. She used something call Ylang Ylang along with lavender and cedarwood. I'll try this concoction since it was a scientific study. I have been using cod liver oil and it's soothed my itchy scalp. Dr. says to stop with Clobetasol for awhile...*sigh* It's always something isn't it! :)

 
 
 

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