Donna
  • Female
  • Seattle, WA
  • United States
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Donna's Discussions

Microblading

Started this discussion. Last reply by Anne Williams Jun 27. 6 Replies

i had my eyebrows microbladed yesterday .  I have frontal fibrosising alopecia.  After she started with the microblading she was having a hard time with my skin on the eyebrows.  She said it was very…Continue

Using rogaine

Started Oct 30, 2017 0 Replies

With frontal fibrosing Alopecia I am only using the rogaine on the temples & hair line area. Not all over. What are other doing

FFA how much hair loss will happen

Started this discussion. Last reply by Murmo Aug 14. 2 Replies

How much hair loss is average for FFA? I’m so worried I’m going to lose half my head of hair. I saw a woman that was almost bald except for the back half of her head.

I’ve read some that Tramadol can cause hair loss

Started this discussion. Last reply by Return_life Oct 10, 2017. 3 Replies

I have been taking tramadol for several years. 2x/day Does anyone experience hair loss that they think may be caused by it? I don’t know if it is or is t with my FFA

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Latest Activity

Rose replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"What type of sunscreen are you using I’m looking for a new one that doesn’t have a lot of chemicals."
yesterday
DragonandFox replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"I notice more loss different periods but haven’t noticed it being a certain time of year.  Rather I relate it to stress or I’m wondering if it’s connected to what I eat or what I’m putting on my head ( shampoo, coloring,…"
yesterday
Steve replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Wow! This is exactly the same as me. I thought I was going a little bonkers when I used to think mine was seasonal. Every time my AA has decided to flare up or get very bad is always within the months of May to August. This year it is bad again…"
Monday
Diart replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Thanks AnnieMay for your comment. My head has been very sensitive this summer. I have been thinking it is due to wearing hats a lot more. I'm trying to wear more sunscreen clothing and big hats so I don't have to use sunscreen very often.…"
Sep 13
cubbieblue replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Interesting observation!  I too notice more hair loss during the times my sinuses are acting up, particularly in the late summer early fall when the mold is high.  I've always wondered if this condition is related to…"
Sep 13
AnnieMay replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"I don't notice more hair loss at certain times of the year but what I do notice is differences in the sensitivity of my scalp. This summer has been very hot here and it's been driving me crazy. I try and forget about all this but it's…"
Sep 12
Ellen - MN, USA replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"I've noticed this too. I've been stable for a couple years and then all of a sudden this spring I started shedding lots of hair again. I was wondering if it's due to allergies--tree pollen in spring and ragweed now. Nothing else has…"
Sep 8
Donna replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"Thanks for replying. Strange isn’t it? I have had no stress at all. So I don’t know what could be causing it.   Guess we might  never know."
Sep 6
Diart replied to Donna's discussion Anyone notice unusual hair shedding/loss certain times of year? in the group Frontal Fibrosing Alopecia
"I was diagnosed a year and a half ago. I noticed but didn't realize I had the same pattern you describe last July & August and this year. Last year I chalked it up to stress ( moving, building a house, living in a trailer). This year the…"
Sep 6
Donna added a discussion to the group Frontal Fibrosing Alopecia
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Anyone notice unusual hair shedding/loss certain times of year?

I was diagnosed with FFA  about a year ago. Last August I noticed  lot of hair loss.  Then it seemed to slow during the winter & Spring.  All the way through July,  then in August it flared up again. I’m still losing hair just like last year. I did change my sunscreen from the bad ingredients in them that I read on this website.  Just wondering anyone else notice a pattern? See More
Sep 6
Murmo replied to Donna's discussion FFA how much hair loss will happen
"From the reading I’ve done I have to agree with Chris. All we can hope for is that it burns itself out but have a plan and goal in place for the worst case scenario, but don’t give up hope for the worst case scenario. Good luck!"
Aug 14
Donna replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Today Show today (8/9/18) had a story on CBD oil. Today’s Health segment. They basically said this is something we’re going to be seeing a lot more of.   Did t say anything negative."
Aug 9
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Does anyone know how long we have FFA before burn out happens"
Aug 7
Donna commented on Celia UK's group Frontal Fibrosing Alopecia
"Minter - I’m glad to see your comment on the microblading. Your tech commenting on how thick your brow skin was. I just had the same experience & googled it but didnt see anything specific to eyebrows being thick skinned. My lady that did…"
Jul 16
Donna replied to JAM's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Hi jam, I’m sorry you have been unfortunate to get this awful disease.  I was just diagnosed last October. I don’t understand why you were only offered the hydroxyxhloroquine.  There are more options. But the one that I have…"
Jul 7
Anne Williams replied to Donna's discussion Microblading
"I had mine done about a month ago. It is so nice to get up in the morning not looking like an extra in a Star Trek movie. Mine are a little thinner than I wanted but I just use a little brow powder. My technician didn't have any trouble with my…"
Jun 27

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Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 7:56pm on November 14, 2017, illustr8r said…

Hi Donna,

This is the thread where the essential oils were listed:

http://www.alopeciaworld.com/group/frontal-fibrosing-alopecia/forum/topics/essential-oils

It was posted by "April"

Here is the recipe:

4 tsp. grapeseed oil + 1/2 tsp jojoba oil

2 drops cedarwood EO

2 drops thyme EO

3 drops lavender EO

3 drops rosemary oil

Here is  a link to the study

http://www.ncbi.nlm.nih.gov/pubmed/9828867

I have a friend who has always had thin hair. She hasn't been diagnosed with anything- just unlucky in the hair dept. She started using essential oils and had some success. She used something call Ylang Ylang along with lavender and cedarwood. I'll try this concoction since it was a scientific study. I have been using cod liver oil and it's soothed my itchy scalp. Dr. says to stop with Clobetasol for awhile...*sigh* It's always something isn't it! :)

 
 
 

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